When losec doesn't work, is there another medication above this one? what is the next step? the paed i saw was useless, i'm on a wait list for an appointment with a gastroenterologist, i'm currently dairy free, been on losec for 18 days - no improvement.
I am still waiting to hear from the gastroenterologist, the wait could be as long as 6 weeks.
Dairy free is still not making a difference.
He has been on Losec now for almost THREE weeks - shouldn't it be working yet???
The sleep deprivation i can handle (just) but seeing my baby boy in pain all the time is terrible and i can't believe the beginning of his life has been such a miserable experience for him.
Oh your poor little man . I can't give you any Losec advice, but I wanted to suggest trying a paediatric chiropractor. My DS2 had reflux and I took him to our chiro before putting him on meds and after one adjustment his reflux disappeared within 5 days. Sometimes when something is out it can cause other problems like reflux, colic, wind, etc. to occur.
On MummaB I am soooooooo sorry you and DS are having such a rough time...
I cant help with the next step after losec, but wanted to offer my support. My Paed didn't go any further into it than that with me.
Have you tired using the formula thickener, but giving it to your DS while breastfeeding? My Paed did suggest that that might be an option, but cautioned me that it can case some constipation, so advised me to make it up half strength and see how that worked. I had a look a the tin in the chemist and it does have directions on it for use with breastfeeding, but altering my diet has helped my DS enough so at this stage I have not tired this, but it sounds like you need to "pull out the big guns" now.
Also, with my DS I have cut out all "acidic" foods such as tomato, orange juice, and other reflux foods like chili, and curry and anything spicy, and I don't have any cafiene.... For me, this helps with my DS. I think other things you can eliminate from your diet are gluten, and wheat, as they can have an impact on reflux too.
Hang in there hun. I am sure, somehow, you will get through this.
The pain is horrible to see isn't it..I really sympathise with you.
The doctors may try another drug called Zoton. It falls into the same type of category of Losec, and again decreases the amount of acid the stomach makes. Our paed said that was an option for us, but we used Losec. But you know what, I still wouldn't lose out hope yet that the losec won't work.
If I was in your situation, I would definitely be trying some thickener with the bfs (like guarcol) as that would help keep the feeds in his belly, and therefor in time and in conjunction with meds, should reduce some of the pain he is feeling when the stomach acid creeps up. And of course positioning upright.
I guess if all that didn't help, there would be good reason for the specialist to organise some more tests to see exactly what is going on, and to confirm that it is reflux causing the pain.
Anyway, this is probably not much help but just thought I share it anyway.
Once again, hang in there.
Thanks for your support ladies... I just feel so down about this, my first DS reflux was pretty minor and i thought that was bad enough, i understand what its like now when someone has an ill child, its such a terrible feeling when there's nothing you can do.
I tried chiro with my first with no results, but i wonder if we didn't try it for long enough. SO i'm willing to try that again.
The lactation consultant i saw told me that the thickener starts to break down the ebm quite quickly, but as a last resort i'm willing to try that too. So in regards to that, does this mean i have to express every feed and give him bottles?? how do you avoid mastitis in that case?
I will google zoton, i can ask my gp about it tomorrow when we go back. Also he is supposed to have his immunisations tomorrow, and i feel so bad about giving them when he is already suffering, i am wondering if i should delay them? the only thing is i want to start going to play group because my 2 year old is going nuts at home every day, so he might be exposed to things now. (he never had the hep shot at birth).
Also i have been busy googling, and there is something natural called "slippery elm", but i can't find out if he can use this in conjuction WITH the losec.
As far as using the thickener, no that definitely doesn't mean you need to express every feed and make it up as thickened EBM. That is only one option.
The best option for bf bubs is to mix some thickener powder with cooled boiled water. This will make a gel, and then by using a syringe you can measure out a small amount of this gel before every feed (usually about 3-5mls or so). Then you need to give bub 1/3 of the amount before he starts to bf, then 1/3 half way during the feed, and the the last 1/3 at the end of the feed.
I have to run as I have an app, but will come back after and help it make more sense to you.
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