I am seriously thinking about having a hysterectomy.. i really cant deal with the pain anymore

Right at this moment i am in so much pain that i am just about screaming in pain i am bawling my eyes out and keep saying to myself i cant do this i cant do this. I have never been in this much pain and i really cant handle it, i have a very low pain tolerance. I know that everyday isn't like this but i can't afford to have any more time off work, i will not let this condition hold me back from living a normal life.

I actually had an interview today and the cramping and severe pain started as i was on the bus home. I got into town where DP works and i stumbled into his work in tears, i just broke down i couldnt walk properly i couldnt talk. He paid for me to get a taxi home, i got so upset with him because he looks at me as though im just over exaggerating and i wish i was! i said to him if child birth is this pain full then i cant do it

I'm sorry if this makes no sense or if your sick of my whinging i just have no one to talk to i have no friends who understand what im going through.
Hi trying4ababy88 - I can sooooo relate to what you're going through. I'm actually home from work since yesterday with awful period cramping and pain, so bad that it feels like you can't sit, stand, lay down or even walk properly. It's just so horrible and there's really very little that helps with the pain.

I was diagnosed with my endo in 2007 and was originally put on the pill continuously to stop my periods, which helped for a while, but then I randomly started bleeding for weeks on end because the estrogen in my pill was too low. I then started taking a slightly stronger dose and was told to have my withdrawal period again every month. I did that for a while, but again I started bleeding for weeks. I got switched to a high dose pill and then started to suffer from migraines frequently and was told by my GP to stop the pill and was put on a prevantative migraine med. I haven't been on the pill for about 13 months now and although the pain with my periods weren't as painful, the pain started coming back and my periods were causing me agonizing pain. I went back to my GP and gynae who put me on Ponstan for 3 times a day for 2 months and that helped heaps, but that caused problems with my liver function and so I was told to stop the Ponstan. I then got a prescription for Endone, which helped heaps, but made me feel drowsy and sleepy and all I wanted to do for days was just sleep. I'm still taking Endone for my period pains and it's much better than it was a few months ago, but at least takes the edge off the pain for a while now.

I saw my gynae in September for my annual checkup and because I'm wanting to conceive in December this year. He said that he could do another laparoscopy to have a look and clean out my endo if there was a lot again, but because it is so close to when I would like to start TTCing, I decided to wait the 3 more cycles I am to have before TTC and see what happens.

I also understand totally how you feel and what you mean about partners not understanding fully. My DH did not understand why I would bawl my eyes out and curl up on the couch or in bed for days on end in pain.

Sorry for my longgg post and rant and vent, but just thought I'd share my story with you and let you know that you're not alone. I too like you have felt like going and having a hysterectomy many, many times. My Mum had endo in her 20's too and was thankfully able to conceive me and my 2 brothers, but ended up with a full hysterectomy at age 32 and she hasn't had any pain (associated with periods, cysts or fibroids) since (she's 49 now). I've already decided that once I have had kids that I'm going to have a hysterectomy too as I can't deal with the pain and the frustration anymore either.

Have you seen your gynae? If you haven't, I would recommend you see him/her and ask them for other pain treatment options until you can TTC. If your gynae doesn't have any options or treatment plans, I would recommend you get a second opinion.

Hope you are feeling a bit better by now (seeing that you posted this a while back).

Hugs

PS: If you ever want to talk or vent, please feel free to send me a message...