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May i share with you a very special poem that i have only ever shared with my DP & DD that i would read to my little sister when we were kids snuggled up in bed at nightime - " I scream, YOU scream, WE all scream for what ... ICECREAM " :dance:
... Thought that might give you a little giggle ;)
... Marydean, i'm soooo glad Fri results were good !!!!!!!!
Well one week after Chemo 1 - off the roids, but starting to really feel the effects. Still have a lingering bladder irritation, my scalp hurts in places (uh oh hope that's not my hair getting ready to fall out), my cuticles went to sh*te overnight on the third day (sort of dry and raw at the same time), and my tongue has been sore throughout. But that's not the best bit.
The best bit is that it has made me completely PARANOID about getting sick. Unlike everyone else who's hysterical about the inconvenience of swine flu, I really could be laid out by a simple cold, a regular virus, even an infected ear. Any temp over 38 degrees and it's straight to hospital (do not pass go, do not collect $200). That means the germy cancer ward :o. My glands were all up on Sat night - I could barely turn my neck and I shoulda gone in to get myself checked out but soooooo didn't want to have to sit in an ER full of ppl who should be coughing over a hot drink at home. Then DH got up yesterday and had a spew so now I'm waiting to see if I have gastro. Been pretty vigilant about the handwashing but who knows??
I guess I expected the chemo to run me down physically...to a certain extent. But I really didn't anticipate the way it would weaken me psychologically too. In the space of a week I have gone from feeling strong and healthy in myself to now feeling utterly vulnerable, diminished in some profound way. I guess this is the bit where I have to dig deep in myself and stay positive. This is the bit where i boost my own immune system and my health by filling myself with alive, positive, strong, vibrant energy. This is the bit where I dance to the beat of my own drum, and let everyone else get wiggy to their own tune.
I am glad we are restricted to net speak hun, coz I have caught a cold and I do NOT want you getting it!!
Keep posting hun, you are strong. You can and will defeat the funky cells.We can support you online without making you sick so know that we are all here for you. Get well vibes for DH too!!
Hope you can draw on the healing power of your body this week, hun. The chemo is clearly having an effect so all the bad stuff is dying away. :hug:
Hope all the germies stay away from you while you need to heal.
wow, it must such an intense process MD. i know, such a 'well duh' comment, but i guess you never really know until you see how quickly it takes effect. i like Jennifer's stance that it's the funky-cells doing the final march...my Oma always told me as she was applying the dettol to my scraped knee that the pain from it being applied was the sign of the baddies losing and me winning. i always thought it provided a great visual feast, and i am sure that this is what's happening now for you too!
One day in the not too distant future MD they'll have a chemo to target the nasty cells and spare the good ones.
Stay away from all those sniffly people out there, and beat on! :hug:
And the nasty roids can mess with your head too. Remember that. :hug:
And know you can draw on the strength of all of us too. :strongarms:
Enjoy all that dancing! xo
oh I think we need :strength: ... and probably a top up of :Power: ;)
I know the chemo sucks babe, you will see and feel so many changes to your body and your mind in the next few weeks, it will be exhausting...But that's why we are here for you!
Hang in there, I know you can be strong, and you know you can be strong.
And dont fret too much, if you need to go back to hossie - the cancer ward is probably the cleanest place in the building ;) Stay away from flowers and get yourself some dettol hand wash and a some lavender oil - it will make you feel better ;)
Sending masses of :strength: your way
xxx
Ugh. My scalp has gotten really itchy and sore today...:( Soooo hope this is not the start of hair falling out!! I have an appt to get my hair cut on Fri then the hairdresser goes on hols for a couple of weeks so it would be pretty bad timing if it does. They say it tends to be more partial but I'm not in love with the idea of shedding, at all!
On the plus side, saw my gorgeous naturopath today and she's blended up some ripper herbs to keep my bladder tidy. Everything else is cranking along nicely, have a lovely fresh batch of acne on my face, but feeling strong and fit and (besides an irritating after cough) healthy. Have ooodles of energy and feel like I've had lots of personal 'ahas' this week too. :)
Wow MD, you sound like you feel amazing considering what your body is going through. Hope the natropath didn't leave the purse too empty. If only medicare covered complimenary therapies, i wish! Lu and i are seeing a natropath at the moment and he is fantastic. Got me on a few bits and pieces to make me feel great. But the money starts adding up doesn't it?
There is nothing worse than an itchy scalp. Hopefully it's just a bit of dandruf and those follices are holding tight. ;) Do you have a backup hairdresser in case of hair emergency???????
WOW MD sounds like you are feeling great all things considered - physically and emotionally. I think it is fabulous that you are doing a mix of natural and medical treatment too - the best of both worlds is IMO the way to go...
Hope there are no hair emergencies when the hairdresser is away - make her give you a recommendation in case! who does she think sheis taking a holiday NOW???
ooh i second PP...is there a back up hairdresser that she recommends in case of dire emergency?
big woo hoo on the herby werbies. nice one! and yeah, pity that you need to be an oil baron to keep it up. wish wish wish they would have it on the medicare levy thing. i am sure that it would keep so many of us outta the hospital system.
Ask your hairdresser who she lets cut her hair - a fussy hairdresser is likely to select a really good substitute for you!
Power on, lovely woman. Hopefully we'll be hearing more positive news from you soon.
Just bumping this so you know there are stilll a heap of BBers out there thinking about you and sending healing vibes.
XXOO
Just wanted to let you all know the happy news that today was my LAST CHEMO!!! Still have my hair, still have my sense of humour, unfortunately I also have some new kgs of fabulous me, thanks to the crazy steroids LOL.
Still have a couple of weeks of side effects before me, but then I can look forward to building my health and strength again, ready for surgery later this year.
So pleased because today, speaking to the onc, the word CURE came up a few times. Nothing's certain and won't be for a few years but I"m a damn good candidate, if I do say so myself.
MD thats the best news ever!!!! I am so happy for you!
oh honey that is the most awesome news I have heard in AGES!!
I am so happy for you :leap: :leap: :leap:
So glad you have still got your sense of hunour ;) Sending more :strength: your way for the healing process ahead!
WOOOOOOO-OOOOOOOP!!!
:grouphug:
*insert happy dance here*
fantastic news MD
well done on being so brave