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Hi Cuddlepie, i also have an appt with my FS on 23 April, and don't worry, i'll be taking a list with me! I have only had one failed transfer, but i don't want to wait for multiple failed et's and then ask for further testing iykwim? Best wishes to you xx
My FS was more than happy to discuss the differnt tests available, and personally I think FS clinic's should run the tests, when they run all the general tests initially, like HIV etc . I found the item numbers
10070, 65096, 65179, 66752, 69393, 69478,71097, 71099, 71183, 73928, & DHEAS AND Testosterone, FBE, SCP-679 , ESR/monospot/rectics, iron, electrolytes, liver function tests, lipid, group and antibody screen, thyroid, parvo and urine :o
Gosh, Its a wonder I didnt faint !
Now I wonder in all that have I been tested for the MTHFR ??
I seem to have missed this thread until now for some reason :rolleyes:
BDT- so glad you found an answer
wouldloveabubba- good luck with the results of your tests
and I would like to add- I also think IVF clinics should screen us at the start for more things!! DH and I sure wish I had been diagnosed with antiphospholipid syndrome sooner! i would be pregnant now if so..anyway, at least we know now
so definately always ask for tests if you are concerned!
I had 18 vials in one hit, and it did hurt a bit, but certainly wasn't a big deal.
This def is a great thread... it's amazing how all FSs seem to do such different things. We started on our IVF roller coaster at the beginning of 2006. We've had an unsuccessfull IUI, fresh transfer & 2 frozen transfers... all of which was done at a clinic in Canberra. I have had numerous tests, but all showing no abnormalities. We have had quite a big break, but after recently moving to Adelaide, decided we were feeling ready to give it another go so have joined up with a clinic here. Lucky enough to have 5 frozen embies left, they 'couriered' those over last week... successfully thank goodness! Anyway, this new clinic said that because I have already had a number of unsuccessful transfers, I should have an "Endometrial boipsy to check for immuno response of my endometrium". It was very similar to a pap smear so pretty simple in the scheme of things. I am really confused and frustrated as to why this test wasn't done soooooo much earlier (not like they haven't been 'up there' a million times already!).
Anyway, the results have come back positive to some abnormalities, which thankfully can be treated with some antibiotics & steriods (all in tablet form) and can be done at the same time as going through a natural frozen transfer cycle.
As written by some of you who posted before me, why not do all these types of tests straight up, that way treatment (if possible) can occur and hopefully the drawn out & emotional processes we are all going through can be possibly made much shorter.
In saying that I am now glad that there is actually something identified so that we can now do what is hopefully needed to fix it and hopefully get a positive result in a few weeks time.
Sorry about that... didn't mean to write a book, just started writing and kept going & going. Not sure if this is the same test as already mentioned, but if not, I hope I have helped in some way.
Good luck to you all!!!
Jozza- good luck! I am glad they found something which can be treated. And I totally relate to that idea, of why weren't you checked for this earlier?! At least, like us, you now have more answers to go forward to a BFP hopefully very soon. It's good you have those frosties ready to go
Jozza, thanks for dropping that information, I certainly will check with my FS...same with the other ladies and think why we need to go through so many failed cycles and asked these tests ourselves rather than as a routain check up to increase the success rate? I feel more and more cynical about IVF professionals now...just like my APist, she just doesn't think they have the best interest in their patients!
A question, I am going to see my FS on 23 April and it will be in the middle of my cycle, are those tests need to be done at certain time of the cycle or anytime? 18 virals of blood, oh my goodness, I am so not looking forward to that! But I will bite the bullet. This recent Antagonist cycle just failed to implant again, so I had enough.
Cuddlepie - I can help you with the date of the NK cell biopsy from the endometrium (you may know a high level can cause recurrent implantation failure). In the SIVF MC investigation program it is performed on approx. Day 26 of a 28 day cycle. But they will want to confirm O by tracking it with BT's so they can pinpoint the ideal biopsy date. Can be tricky coming off an IVF cycle as it can delay AF, so the test may not be performed at the right time (apparently they want to do it as late as possible in a cycle, but without the lining beginning to shed). Hope this is a help xx
Thanks WTH, its good to see your ticker....hope all is going well...
WLAB, how is your test result?
I have also booked an appt with Dr. Gavin Sacks on 28th April, just want to have a second opinion. Now I am not sure whether I should ask all these tests done when seeing my FS or Dr.S? I guess it doesn't matter where I get these done is that right? I want to stick with my FS for IVF cycles but just want to see if another pair of fresh eyes can pick up sth missing in the past. What do you think girls?
CP- well, I dont think it matters going to another Dr, and having that fresh pair of eyes...I am sure all the results will be passed on to your FS anyway. It might be good to have a new perspective.
In my case, I saw my OB, in my hometown, who said not to bother with any further tests. Then I spoke to my IVF clinic and they suggested a FS in newcastle (not even my regular FS with the clinic in Newcastle) who specialises more in recurrent miscarriage etc and I went to see her, and get the tests done/ results etc. And I am glad I did that. I have now decided to stick with her as my FS. So I guess what I am saying is, sometimes more opinions is a good thing. I even talked to yet another FS with the clinic about my situation on the phone, and got yet another perspective on things. good luck with it
Baby Dreamtime
I have just read your March 2009 post in this thread about MTHFR factor and I also saw that you had posted in the high FSH thread as well. I too have high FSH (19) and wondered whether you had managed to lower your FSH as well as doing the new protocol for MTHFR for your pregnancy in June?? Congrats by the way.
I had a BFN after my first IVF cycle in August (down reg) and the FS suggested we do a flare cycle... well today is CD1 and my FSH is too high. So i am waiting for the next cycle I suppose. In the meantime I was interested in MTHFR and am going to ask my FS tomorrow to test me for it. I have had Vitamin tests before though and think they were okay. Not sure. Anyway, it interested me because I googled MTHFR and saw it is related to miscarriages etc and I remembered that my mother and her sister (my aunty) both miscarried their first child (and they were in their early 20's) and I'd completely forgotten to tell my FS of this fact.
Like you i've been tested for most of the other stuff...but i"m pretty sure not this MTHFR factor. I know i've only had one cycle but I just think maybe there's more to it.
Daisie
Hi Daisie,
It seems that while my FSH level was high (day 2 = 12) it was combated by what my FS described as ovaries with PCOS tendencies, so despite a high FSH I normally still managed a decent number of follies.
I think it is a really good idea to make sure you have all the tests done, at least to set your mind at ease. I am assuming you have read all the threads, including the Immunological Tests sticky thread in the LTAC area, this made all the difference to me. I did post once for someone else my history and everything I did to get a BFP, maybe this will help some and give you some ideas.
http://forums.bellybelly.com.au/foru...ml#post1855283
Wishing you all the best, I hope it is only that you need another transfer to get your BFP. xx
Hi.
I just wanted to say that this thread was really helpful. I have had three failed transfers, and am currently in the TWW for the fourth. Am worried that I might have an issue with implantation. I was thinking of asking our FS about further testing, and now I know exactly what to ask for!
Like many of you have commented, I am frustrated that they do not do this testing up front, but your stories have inspired me to take charge of the process!
Hi ehm - first of all, good luck with the TWW. Fingers crossed for you. Do you know if you have a problem with high FSH? There is a good thread for that as well. And have you considered or are you taking low dose aspirin at all? There is a thread in here for that too. I have posted my story on one of those threads (along with the other girls stories) and there are heaps of ideas on things you can try yourself rather than leaving it all up to the specialist to advise you. Hopefully you won't need it though ;)
Daisie
Hi Daisie - thanks for your reply. I'm not sure about my FSH levels, but it has never been mentioned to me as an issue. I will definitely ask the specialist about it, and follow up the threads that you mentioned.
Congratulations by the way, and I wish you all the best!
Hi there girls, I agree, awesome thread :)
I am in a real dilemma at the moment. I have had tw m/c plus two failed cycles so my FS arranged for all the tests to be done on DH and myself. I already knew that I had small amounts of thyroid antibodies but we've also discovered that I am ANA positive and am probable coeliac as well. Now my big problem is that when our FS ordered these tests, I was about to start a stim cycle - I now am on day 4 of Buserilin jabs (equivalent to synarel/lucrin) and am still waiting to hear what the plan of attack for this round will be. Can they give me more drugs at this stage to counter my immune system or would we be better off cancelling and getting my health sorted to give it a better shot at succeeding? Don't know what to do, I'm expecting to hear back from the clinic today as my FS has been on holiday. The waiting is driving me CRAZY!!!!!
Hi MelissaI,
Sorry I can't help you with your query, but I was wondering whether you have heard back from your clinic about a plan for the next cycle? I had a whole lot of immunology and clotting tests done last week, and am just waiting on the results which are due tomorrow.
Hi there, EHM. I FINALLY heard back from my clinic, after we had started jabbing and it wasn't the best news in the world for now. My FS has recommended that we cancel this cycle in progress, get me sorted (she wasn't too worried about the positive ANA and thyroid antibodies but was concerned about possible untreated coeliac disease) and try again in the New Year. While I know that this is the right thing to do, I am really struggling with the fact that this cycle has been cancelled. Stopping hormones smack bang in the middle of things hasn;t helped so I am up and down like a yoyo at the moment. Still, we have everything crossed that this is a good thing for us and when we do start again at the end of the year, we will finally get the result we are after.
Have you heard back from your clinic? While it does suck hearing that something is wrong, one part of me is slightly optimistic cos it means there was a possible reason for m/c and implantation failure in the past. FX crossed for you hun that you get your BFP soon.