IVF with PGD #7

Hey Jess,

I agree with you completely on the medical rebates. It made me so angry, we get next to nothing back as it is, and now we will get even less. I can't believe how short sited it is by the Government, like you say us doing PGD is going to save the system a whole lot more money in the long run!!

We are doing PGD because my husband has a genetic disease of the nervous system. He isn't too bad but his family are much worse, and there is no way to tell whether it will be more or less sever from generation to generation. We really didn't think twice about it once we knew what we could do, but we had to wait to find the gene and then all the work ups etc, we started conversations with the clinic about 2 years ago. Sorry to hear you are a haemophilia carrier, has anyone in your family been a sufferer? I knew a couple of kids with haemophilia when I was younger and it was a tough life for them.

I am glad you are so happy with your FS, that makes a huge huge difference to how comfortable you feel through the whole process I think.

Between rounds, similar to you in terms of fitness and planning for my own health. I have a goal to lose a couple of kilos before we go for the FET which I think I can reach. We have had a couple of little holidays too and we're doing some stuff around the house, trying to get it into as low maintenance a state as possible. We will probably go back-to-back with the frozen transfers until we get one that sticks, so we wont have time for much else.

Hang in there today, think about the fact that one of those little eggies you are growing is going to be your child soon!!!

B*F

Hey bright*future,

Was it just me or did the work up like it took forever?

I am sorry to hear about your condition also. My father is a heamophilliac. Have watched him for the last 28 years makes me determined not to pass it on. I am the only carrier so if we can have a healthy baby this way the illness ends with me. My Dad has had to have knee and elbow replacements, contracted Hep C from blood tranfussions in the 80's and has never been able to live a "normal" life. I know medicine has come forward but no matter what anyone says I cannot bear the thought of putting a child through that.

We have the option of using carier eggs and even that pulls at my heart strings. I am thankful that PGD exists, just wish it was easier. But hey what doesn't kill us makes us stronger.

To be honest it is not just my FS that is great. All the nurses at G are great. They may be expensive but you certainly get what you pay for in terms of being able to talk to someone at any hour of the day and getting smiles at every blood test and every visit. And I have had to visit different sites due to work locations and they are always very flexible with that too.

I am so glad to hear someone else didn't think twice once they found this was an option. And thank you so much - it really is unbelieveable the difference it makes to be talking about this. My Mum is the only one outside of me and my Husband that knows and she is amazing but no one really understands what it is like without going through it. Thank you from the bottom of my heart.

Now if the sun would just come out my day would get even better.

Jess :angelic:

Our workup took about 14 weeks, it was all the testing prior that took SOOOOOO long and there were a few tense moments along the way. We weren't sure if we would find the gene and I honestly don't know what we would have done if we couldn't.

I'm so sorry about your dad's tough life, and I can totally relate to not wanting to put a child through the same thing.

When my husband came to terms with having the problem, it was heartbreaking. Also with ours you don't know when it will start to affect you so every time our child tripped or stumbled I would be stressing they had it.

I agree all the nurses are lovely. It can't be the easiest nursing job! When I imagine what it must be like for the nurses and the FS's to be dealing with women psyched up on huge amounts of hormones all day every day, I can't help but wonder how they do it!!!

Please chat away, no one else knows for us either (which is why sometimes I'll go back and delete some of my posts in case it could identify me) and I have only just been able to come to terms with that. I have used a counsellor from time to time when it all gets too much. We had our mandatory counselling session with G but I haven't been back to her - I would be too scared that what I talk about would go on the file and the Dr would end up thinking I'm irrational!! hahah!!!

Hi ladies, sorry it's been a while. The months r just rolling by so fast!!

BF- I'm so sorry to hear about ur chem pregnancy. That must have been really hard to deal with *hugs* I'm with u at ATM & trying to get healthy mind body & soul!! Hope all goes well & ur next one is it.

Welcome Jess - It sounds like u've had quiet a journey. How long have u been doing acupuncture? I have heard it can really help with different stages of ivf, so I'm booked in next month. I know with PGD especially that the number of eggs is stressful, I got high numbers but in my two cycles I've only ever had one good one to put back. So I hope u get good numbers & lots of good ones to put back.

AFM I had my tests today & get the results back in a few weeks. Fingers crossed this, my healthy habits & the acupuncture is what is needed to get us preggaz!! Everything else in my life seems to be going wrong so I'm hoping this is the one thing that goes right.

Take care ladies will pop in more regularly do

Hey Jbear, good to hear from you. Glad you've got your tests underway and hoping for good news! Not good though that other stuff in life seems to be crap at the moment - I hear you there. It all seems to happen at once right? You don't have to keep your venting to the topic, feel free to let it out!!!

Thanks BF ur a great support - yup certainly does all happen at once! I'm just feeling a bit defeated at the moment & at the same time trying to be optimistic which is very hard as u can appreciate. I'm always thinking geez what next? Anyways I think ur right we need to get it all out & this forum is the only place people really understand.

HI everyone ...
I hope you are all doing well

Jess: im also with "G" under the care of doc M L (i chose "g" as they were recommended and they were the only clinic doing the pgd and had been doing it for a while
As for the royal jelly it is soooo grosss but i was willing to do anything for more egg numbers :)


BF: what's involved with a frozen transfer? how are you going ?

J bear: glad that the ball is rolling for you good luck with all of your tests!

As for the tax rebate don't start me.....my dh told me that it was changing and i cursed and swore !

as for the emotions and rollercoaster......sometimes its just so hard to cope ,,,, between the injections, scans bloods etc the hormones......i was a mess.....thats why i love this forum ....so m any helpful ladies :)

bye for now :)

lu

Morning ladies,

Lu, are you with the male dr M L? I think we have had this conversation before but I've forgotten hahah!! I am with him too.

The frozen cycle is so so easy (well they are making me believe it will be). I just phone nurses on the first day of my period, go for bloods and scan on about day 10 and they track it til they work out exactly when I am ovulating, and then they put the embie back on the right day - 5 days after I've ovulated! Then I go through hell for a week or so, and eventually find out if it has worked!

Jess - how are you feeling today? How is the bloat going? Any ideas when trigger will be?

Hi to everyone else. :)

Hi,

Bf... yes im with the male M L and he is great!

have a great day ladies
:)

He is great, I would never go anywhere else.

Hi Ladies,

I hope you are all having a good day. Today is definitely better than yesterday for me.

JBear - I have only started accupuncture with this round but already I am huge fan. I am with you and the fingers crossed for healthy eating and accupuncture working.

Bright*future - Thank you for asking. I am feeling better, I think I am starting to adjust to the bloating and I managed to drink 3 litres of water yesterday. No news on trigger yet, scan and bloods tomorrow. Should have more news tomorrow afternoon.

So glad to hear this site is helping lots of people. I think G really need to set up a once or twice a week chat night where ladies can get together because even when I go in to get a blood test we all start to spill our guts and chat about where we are up to. So nice when other people really know what you are talking about.

Jess
:o)

Hey Jess, well done on the water & so glad you're feeling a bit better today!! Keep looking after yourself.

Hi Jess glad ur feeling better...
What a good Idea about the chat thing......
Whenever I went for blood and scans every one was always so quiet I was dying to talk to someone !!
Bf: yes he is fabulous... Such a great bedside manner and caring ... Always called when ever a cycle failed etc and said sorry it didn't work etc

Ciao for now

Morning ladies!

Just checking in on you Jess, how are you feeling today?

Hope you all have a great day - yay it's Friday!!!!

Good morning ladies,

Yesterday afternoon was a bit of a struggle. Just anxiety and tiredness I think. Had scans and bloods this morning, nervously awaiting results but feeling better than yesterday afternoon. I am getting hugrier and hungrier. Does this happen to any one else?

Bright*future - you are a gem, thank you so much for checking on me. I am doing okay and will be sure to post this afternoon when I get a call. Feeling like I could do with lots of hugs but hubby is carrying germs atm and think he might be coming down with the flu.

Luisella - I know what you mean about the bloods, first blood test, first round no one spoke. Second blood test in first round I smiled at this one woman and we just spilled our guts. I knew at the time that not only I needed to talk about this thing. So look for the friendliest face, smile and spill. :D I would definitely go to a chat group though. Just being on here makes me feel better, imagine how good it would be to sit around over coffee and just talk about it all. Reckon someone of us could be there all night :lol:

Better do some work. Later ladies.

Jess

Hi
Jess how we the results

Any egg numbers yet?


Well I really hope all is well....
The waiting is terrible wait wait wait......I found myself consumed by the whole process


Yey for Friday!!!!!
Take care of yourself

How is everyone else????

Lu
Xxx

Happy weekend ladies!!

Jess, how are you going??

Lu, I've been trying to figure out where you are up to, sorry I'm a bit slow! haha!! Sounds like you had a good cycle last time, where are you at now?

As for me, just enjoying the weekend, we are desperately trying to get a few things organised around the house before we start the FETs - new wardrobe, new ensuite, clearing out a lot of excess furniture and things that are just here to catch dust!!

Enjoy your weekends ladies, make the most of it!!

Bf; hi yes we did have a successful cycle last round ... I'm 23 weeks now ;) after the last three failed cycles I was loosing hope the low egg numbers and none to ever transfere.....we gave it one more go before a break due to the $$$$$$$$$ any way enough babbling

I hope everyone is feeling well and enjoying the weekend

Oh Lu - how did I miss that?? CONGRATS!!!!! I'm so happy for you, after such a crappy first few goes!!! I'll tag onto you as my inspirational success story!:)

Have you got any in the freezer?

Hi Ladies,

Lu - I would like to join the congrats, that is very exciting and very much deserved after bad rounds. It helps restore my faith in the process.

Bad day yesterday, two rotten headaches and some serious cramps. But let's just hope that means the 10 follicles they counted on Friday all have eggs in them that are a nice big healthy size.

Another scan and blood test in the morning. Hearing for Friday for collection at this stage.

Smiling because I can see some sun through the blinds, I hope you all have a lovely day. Thank you for asking after me.

Jess
xo

Bf: thanks Hun we r very happy and we have two un the freeze first time every we have gad some left over!!!

Jess: thanks For the congrats :)
I'm sorry your feeling unwell the drugs really knock you around hey??? My fingers are crossed that you have 10 big eggs!!!

I know when I say try and relax and take your mind off it it's impossible.....as I said b4 the whole process consumes you .,,,,, I hope you get great results everyone here really deserves it:)
What a lovely day in the sun it was
Ciao for now
Lu xxxx

So wonderful Lu. xx

Hi Ladies,

I hope you at all having a good start to your week.

Had a scan this morning, looks like we are down to 7 potentials but they are still too small. Another scan and bloods on Wednesday. Fingers crossed they all keep growing well. Feel pretty bloated and sore.

How is everyone else going?

Question for you - does anyone else call the nurses at G or their FS wit random questions? Made a call on Friday with a few little questions and was sort of made to feel like I was nagging.

Jess

Hi everyone....been in the background just seeing what's going on. Seems like most are in Sydney going through G. Been a few inquiries about other clinics who offer PGD testing. DH has Huntington's and there was no way we were wanting to pass that on. Being in Newcastle we went through Hunter IVF who used Monash IVF to do the PGD testing. Work up took about 12 weeks before we could start. Was touch and go in regard to egg harvest as they seemed to take their sweet time growing. From 9 eggs harvested, 8 fertilised, 6 were good enough to be tested but we only got results from 3 with 2 unaffected. We were very lucky to be blessed first time with our DD who has just turned 4. Have just started back to try for another. Saw my FS last week and advised they now use Melbourne IVF for PGD testing. Hopefully we won't need to go through that again as we are hoping for a FET. Still need to have a couple of natural cycles before we look at transfer.

Wishing everyone good luck with their journeys!

Hi Joe,
Nice to hear your story & congrats on your DD! So blessed to have a success first time round! Well done! Very very best of luck as you go again, good luck with your FET!

Hi Jess,
How are you feeling today? Hope your follies are behaving - not making you too uncomfortable and growing nicely. I know what you mean about the nurses. In the end I would write a little list of questions and wait until the next time they called with results next to ask. It's a balance between respecting the fact that they are busy but also that we are paying G a bloody huge amount of money and that is what they are there for!! So don't feel bad, I am certain they would have had worse patients!

Lu, hope you're having a good day already!!

xo

Hi
Welcome joe ! Congrats on ur dd and all the best for the next cycle :)
Bf: having a nice day thanks ! Hope u r too
Jess: I did ask a few questions here and there it's their job to be there for us.... There was only ine nurse that was a little rude but I never spoke to her again perhaps she's not there she was annoyed right from the beginning very unprofessional ! Especially considering the $$$$$$
Anyway are u feeling ok?????
Lu
Xx

Hey Ladies,

Joe, congratulations, that is awesome first time round. Good luck with your FET.

Bf and Lu, I am okay. Scan yesterday revealed my follies are a little too small for collection tomorrow so now we are thinking possible connection on Friday. So scan in the morning, fingers crossed they are at a good size. Feeling quite sore and tired, I think this is my longest cycle so far. Early to bed tonight, makes me feel old, but I know my body needs its rest. Trying to keep up with the water but work has been busy and I find I go hours without it and then try and drink too much :o).

How are you all going?

Jess
xo

Morning Jess, how was your scan today? Hoping your follies were looking a bit bigger?? How many are looking good? My stimming (only cycle) went for about 15 days and I was SO totally over it & about to lose the plot when I finally got the call saying I could trigger, so I totally understand how you are feeling. I felt so much better though after triggering just knowing I was past all the injections! Thinking of you hun. xxoo

Hey
Jess hope u got to trigger last night for a pick up tomorrow!!!
how u going????

Hope everyone is well :)

Hey everyone,

Hope everyone is well??....wow it's been busy in here!

I've been meaning to jump online but have been so busy.... tests are done my specialist called Wednesday and said everything came back normal & she'll see me next month to plan where to from here. We have decided not to tell anyone when we are going to do the next cycle, it gor a bit stressful last time having to explain everything to everyone over and over again. No one really understands IVF & PGD unless you have experienced it (that's why i love this forum).

Congratulations Joe that is really lucky first time round, I hope everything goes to plan with your FET.

Jess - How is everything looking for pick up tomorrow? I hope your getting plenty of rest and everything is good to go for pick up.

BF - How's everything? Keeping busy i see, I've been trying to organize my house so that everything feels zen!

Lu - Oh my your 23 weeks already, that is so exciting! Are going to find out what your having?

J :loveshower:

New thread ladies :)