Our Little princess is OK

**meegm** · June 23rd, 2008, 03:00 PM

Background :

AT our 19 week US they discovered a cyst on our little ones head..... no one actually knew what it was - they needed a 2nd US to be done .. 1 week later and a whole lot of heartache and stress they said worst case it could be a NT defect... least case a scalp cyst... We hoped to god for a scalp cyst.

We had the 2nd US and was told it was likely to be what they call en Epidemoid cyst - a rare condition that they see maybe once every 4 years ....

They requested us to have an MRI to confirm that the brain was not attached to the cyst .

We had an MRI today and they have confirmed that it is ontop of the bone - and under the skin OUR best case scenario ...

OMG i cant explain the feeling of relief ater they told us the results..

I have to thank the doctors that have been looking after us from the Lyell McEwin, Womens and Childrens hospital in Adelaide they have been fantastic and we are public but we have been seen by some of the best .... they hold a special interest in this as they are so rare.

SO MY LITTLE GIRL IS OK and she will probably need to have the cyst removed after birth....

we still need to be followed up to see if it grows, and they may want to follow her up afterwards aswell which i am so happy to do if i can help another mum and dad by allowing my daughter to be monitored i am all for it

WHOHOHOHOHRAAAAAAAAAAAAAAAAAAAAYYYYYYYYYYYYYYYYYYY YYYYYYYYYYYYYYYYYY

**Lisa** · June 23rd, 2008, 03:04 PM

Oh yippee!!!

I am so glad your princess is great! It must be the hugest relief to you and your DH.

**Visitor7** · June 23rd, 2008, 03:06 PM

That's fantastic news

**meegm** · June 23rd, 2008, 03:08 PM

the feeling we got was beyond relief ..... its an unexplainable.... JOY

**Arimeh** · June 23rd, 2008, 03:11 PM

Excellent news!! Congratulations on your healthy little girl

**indie24** · June 23rd, 2008, 03:17 PM

That is wonderful news

**Kitt3n** · June 23rd, 2008, 03:18 PM

great news!

**MistyFying** · June 23rd, 2008, 03:20 PM

Fabulous news

My DD also had a dermoid cyst on her head. She had an MRI and several tests, and then had it removed under a light general anesthetic. She's fine

**meegm** · June 23rd, 2008, 03:28 PM

Mistyfying - did they say to you it was rare - the doc said alot of obs havnt seen them before ...

how old was she when she had it removed ... do they do it straight away and was it unsightly when she was born - or was it small - i dont really care if ours is big im just happy shes ok ... just trying to prepare myself...

scary stuff tho isnt it ... when you just dont know and you have to wait waait wait

**MistyFying** · June 23rd, 2008, 03:35 PM

meegm my DD's was about the size of a pea when she was born and it was on the back of her skull. She had it regularly checked (about every 6 months) until she was 18 months old, then they did an MRI to determine if it had "roots" and if it was above or in the skull. She also had xrays done. Through that process, they determined it wasn't attached, and was most likely a cyst sitting on top of the skull but not attached to it. She was booked in for surgery and had that shortly after she turned 2 (day surgery). They sent the cyst off to the lab to confirm it was nothing nasty.

The cyst did grow from the size of a pea when she was born, to the size of a marble by the time she had it removed.

The specialist didn't say it was or wasn't rare.... just didn't come up I guess.

**DiannaQ** · June 23rd, 2008, 03:35 PM

oh what a relief - you must be feeling over the moon - now go relax

**Madissun** · June 23rd, 2008, 03:42 PM

Fabulous news!!

Can only imagine the joy and relief you are feeling...

**Lulu** · June 23rd, 2008, 04:54 PM

Oh YAAAAAY!

How fabulous Misty can tell you all about it too!

**tan32** · June 23rd, 2008, 04:56 PM

thats fantastic news.
Im so pleased that the staff at the Lyell McEwin and Womens and children have been so great for you.
Im having my bub at the Lyell.

**meegm** · June 23rd, 2008, 04:59 PM

Thanks Grils

Lulu - Yeah its slightly different they have dermoid and epidermoid i think dermoid is a bit worse than what we have - but they are very similar - and oh yeah its fantastic i felt so alone.... no amount of internet reading satsfied my mind - it had been the worst 7 days of my life ....

I do really appriecate any info i can get .

tan - I am going there too they have been beyond what i expected...when are you due.