Hi slyder, I have severe KC in both eyes and have had an episode of hydrops in each eye (where the cornea actually splits and fluid leaks in - very nasty stuff and just a shade away from a cornea transplant on one side). One of my corneas is so steep I can't get lenses to correct it anywhere near an acceptable level of vision, but at least it helps me get about five lines down the board. My other eye is much better with lenses.
But my optometrist still fiddles around and tries one fit after another if need be to get it right. I have had lenses sent back three or four times to get a better fit on that eye. I take out the insurance cost every time I need a new lens because I know, even now, it's trial and error. The thing is, depending on how bad your KC is, the contact lenses can actually help the condition, by reducing the level of pressure on your cornea. So not having contact lenses in my case is not even an option (besides the fact I'd be legally blind because glasses can't correct my vision enough), I'd end up with a double cornea transplant before I'm 40.
It sounds like you should be seeing someone who specialises in KC. I found my opt through my eye surgeon and this opt was the first one in numerous tries who got it right for me. PM me if you live in Sydney and I can give you either name for a recommendation.
ETA: there's also a KC Assoc in Australia. They might be able to help you out with a good opt who specialises in your area.
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