NAIT or FMAIT anyone help?(long)

[sams_mum]

have been doing a lot or research since i had my DS a year ago, and cant find anyone that has been through this.
NAIT or FMAIT stands for Neonatal Aloe Immune Thrombocytopenia, or Feo Maternal Aloe Immune Thrombocytopenia respectively. It is a condition that during pregnancy the mothers body attacks the childs platelets (the clotting factor in the blood)- similar to your body fighting a cold or sickness, which leaves the child with little to no platelets of their own, leading to major problems concerning the inability to stop any bleeding.
This occurs due to a rare platelet antigen incompatibility between mother and father, each person has a set platelet antigen type, similar to a blood type, there are three types- AA, AB, BB. while a large portion of the population will have either AB or BB, and the pregnancy will be normal and no problems occur. In our case i am AA while my partner is a BB- which results in the formentioned NAIT/FMAIT.
After pregnancy for the first few months the baby lives of the mothers immune system while it starts to make its own body fluids- platelets. A child with nait will generally need platelet transfusions until they produce their own after that the illness is no concern

NOW, if we were to have another baby there would be a 100% chance of this occuring and with each pregnancy the cases get worse until generally resulting in still births and deformities and illnesses.
To prevent/ lessen the severity of this happening there are procedures involved including weekly transfusions steroid injections and cord blood sampling all extremely risky. Im omly 22 and although one child ATM is a handful, the prospect of not being able to have anymore children with my partner is upsetting
does anyone know of this condition or heard of any cases?

[ourmiraclekids]

Hi Samsmum,
I am finding this a little late and sure hopr you are still around. I started a support group for this on yahoo. We have a few ladies from Australia who have had treatment for this. It is not as rare as you would think. Every year more and more people deal with this condition. I have it myself and my first son Chris born in Sept 2000 had massive intercranial bleeds and brain damage from it. He is the joy of our lives despite the challenges he faces. I have a second son named Jason born in May 2008 who is ok because of treatment during my pregnancy. So please let me know if you are still around. I would love to help you
Steph