HALLELUJAH!

Kate, I hope you won't feel stalked. I have been desperate to find another CRPS Mum. I have a 14 month old divine son, Owen. I've have CRPS for 20 years or more, but only diagnosed about 4-5 years ago. Used to be mostly my legs, but lost the use of one arm after the birth of Owen - still don't have it back - due to a drip for post-birth infection. Mothering a baby who was nearly 5kg at birth with one arm has been so hard and I have felt so damn alone!

But you are a one-armed Mum too!!

Have lots of pain across my tummy from the stretch marks, could hardly breastfeed initially, but still going now. Presume this is CRPS. Pregnancy was great, hardly any pain but a mess since.

I also want another!

Found you in a Google search. There's too many obscure pains, now my hand not functioning properly either, seems to 'forget' to move, I have to look at it and concentrate so hard...

Would love to exchange some experiences.

Am in northern NSW - moved up from Melbourne due to the condition, when I was pregnant. In Mel, I'm on a walking frame and many days unable to walk. Here I'm much better off. Though haven't found good medical help yet.

Long post !!


online erratically, so advance apologies for any delays.

Warmth,
Josie