Hello everyone,

Thanks so much for your replies. Some news - Max is now on CPAP (since Thursday, 48 hours now) and... so far, so good! Big, big changes for us, and we're just so surprised and very proud of this clever boy.

Still a long way to go, but we hope he can hang on for a decent length of time (and maybe not ever go back!) off the ventilator.

Again, thanks,
Kate