DS was born at 25+1 weeks weighing 800 grams. During his first 6 weeks of life, he contracted 3 life threatening infections and was ventilated for a lengthy period of time which contributed to his diagnosis of Chronic Lung Disease.
DS is currently 36+5 and has been taken off CPAP on to High Flow (flow of 3-6 and O2 of 25%) due to failed attempts on Low Flow. He currently weighs 2953 grams and is breast feeding well so, the next step is to slowly wean him off high flow onto low in preparation for him to come home.
Just wondering how people dealt with their premmie bubs coming home on oxygen and what was your day to day routine like?
A friend of mine brought home her little guy on oxygen. All I really know though is that you had to watch not to trip over the tube. And they had a small tank that went out and about with them, as opposed to the big tank they had in the car. He was gradually weaned down by the number of hours he was on it, and was off it by 6 months (was born at 27wks)
That's all I have to offer. Good luck with it, and I hope he keeps on growing strong!
hey there and congrats on your bubs!
a few of my friends have had prems born and home on O2. they found places like ausprem a great resource- so it might be worth looking them up!
i have seen one of my friends following her 3 year old around up and down a playcentre with the long tube of O2 follow- quite a sight! She was a 25 weeker. He other son who was a 32 weeker was on O2 for 12 months- but was the bigger of twins.
My twins were born at 30 weeks but did not need to come home on O2.
take care hun and hope that your prem journey doesn not have too many bumps in the road!
I just want to wish you all the very best, and hope your little man will be home soon. It is just so amazing to read your story and to hear that your little bub, has survived such odds. Congratulations hun, and lots and lots of healthy vibes coming your way. hugs
Premmie bub at home on oxygen?
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he will be home soon.
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