Oh Hun I'm so sorry! Your little heidi is a fighter and she will give it her all!!! I can't even imagine.
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Oh Hun I'm so sorry! Your little heidi is a fighter and she will give it her all!!! I can't even imagine.
Oh hun, I am lighting a candle to send Heidi massive get well vibes and to give you and your DP strength.
I wish there was something I could do. Please if there is, let me know.
Heidi is a little fighter as are so many premmies - keep fighting princess!
Poor baby sending her lots of strength and love xx
Oh no poor Heidi :( I hope she gets well asap :hug:
Oh Infinity :hug: :hug: :hug:, I can only imagine how scary that must have been for you to see such a big change over a short amount of time :(
Hopefully the weight gain and strength she has gained over the past couple of weeks with your amazing EBM will give her the extra strength she will use to get past this infection. Her Paed team sound really on the ball and doing everything to take the pressure off her and give her the best fighting chance, and she will fight, she already fought so much to come earthside, she will fight to be back in the arms of her Mummy and Daddy.
Gathering all the strength, courage and get well vibes I can and sending them right to Miss Heidi :comfort:
I wish I could give an IRL hug right now :hug:
:hug: I hope little Miss Heidi gets well soon..
Sending Heidi get well vibes and I hope she responds to the treatment soon. It must be so hard for you to see her like that :hug: She is a fighter so I have everything crossed that she will continue to grow stronger and fight this infection off.
:yeahthat::
She's strong just like her mumma. xox
Oh Hun :hug: My thoughts & prayers are with Heidi, you & your family.
Heidi has proven to the world that she is a little fighter! These little ones have an amazing will & determination. With the help from modern medicine & the love & strength from her family she will go on to fight.
:hug: Rosebud
Thoughts and prayers are with you, your DH and Heidi as her little body fights this challenge. :pray: I hope all the strength and weight she gained from your wonderful milk so far holds her in good stead over the next little while.
:hug:
Scary times :hug:
She's a strong one though infinity. Will be thinking of you and hoping for a speedy recovery.
:yeahthat::
she has a good 4 weeks of awesome progress in her backpocket to draw on for strength and reserve. xx
sending Heidi all our love and healing vibes xx
Sending Hiedi lots of strength and healing vibes. She has done an amazing job getting this far, she is such a fighter, her strength will keep her going :hug:
Oh darling one. :( Thinking of you and your family and especially your tiny Heidi. :comfort: Wishing everything I possible can for you. :comfort:
Infinity another one thinking of you and sending positive energy and strength to your little fighter Heidi.
:hug:
Oh no, sweets :hug:
NEC is one of the scariest & most life threatening things about the prem journey, it's never going to be an easy ride but we know a little boy who got it severely and is tonight at home with his Mum & Dad, cuddled in his own bed after a huge fight for his life.
Thinking of you and praying for little Heidi, this is just horrible, horrible news but hang onto the fact she's over the kilo, it makes a HUGE difference.
Nothing I can say will make this fight of hers easier or ease this burden, but the belly belly community is watching over her journey and hoping for her speedy recovery. She's a pretty tough little thing. :hugs: to you, her Daddy & her brother x x x Thinking of all of you
Oh my dear. The poor little thing. I can imagine how heartbreaking it must be for you to see her like this. I feel awful when my ds is sick and he's not seriously sick.
You are in my thoughts and prayers. Take heart in the fact that Heidi is proving to be a little fighter and that she has been well up until now. Hopefully that will help.
Big squishy :hug: to you, your DH and DS
Thinking of you
Hope Heidi is doing better
Thinking of you as Heidi finds the strength to fight this battle.
Hugs and prayers for you.
xoxo
Sending Heidi heaps of healing vibes and strength vibes to mummy.
Thinking of you and Heidi today :hug:
Just dropping in to let you know that your whole family has been in my thoughts, praying that Heidi has stabilised and that they can get control of the NEC :hug: :hug: :hug:
:hug: Thinking of you & Heidi. Praying she's stabilised.
Hi everyone, so sorry that its taken me a few days to come back in & update. Thank you all for your thoughts & prayers, it looks like having so many people behind her is helping.
Sal - thank you for sharing with me your friends little boy who also had NEC. Positive stories like that really give us hope. And big woohoo to you guys for taking your little guy Archer home! So amazing.
After a terrible day on Wednesday with Heidi going back on the ventilator etc. she seems to have stabilised which is a really good sign. She is still very unwell but the positive thing is that her condition hasn't worsened and all her xrays have come back clear which means the condition hasn't perforarted her bowel. The doctors seem to think that she may well be out of the really dangerous zone which is encouraging but I am by no means counting my chickens yet. She is still ventilated and on morphine which is keeping her comfortable and of course on some very strong antibiotics to stop the infection progressing. Her little tummy is still quite sore and red, but isn't quite so large as compared to the first few days. Its pretty clear that she's still in some pain, I can see it in her precious face and she's still very guarded when the doctors examine her. She is retaining quite a bit of fluid too which is a normal response to treatment so she's all puffy and stiff. I can't even begin to explain how hard it is to see my baby girl so sick like this, it is just eating away at me every moment. But we have to remain positive and hopeful. It will be another 10-14 days before we know whether she is starting to truly recover and think about any further implications for her. Her treatment will remain the same over the weekend and they'll re-assess early next week to decide what to do about the ventilator & pain relief etc. The NICU doctors are watching her so closely and the paed surgeon has been in to visit her each day just to keep a steady eye on things, so we know she's got everything possible helping her to get better.
She won't recommence feeds until they are satisfied that her gut has recovered - even then it will be done VERY conservatively. Just before she got sick the milk room asked me not to bring anymore EBM in for a while as they had so much there already to use - and now she won't feed for another 2 weeks at least. I'm freezing about 600ml of milk everyday so she had better pull her socks up and get her appetite back.
I'm still unwell and have gone downhill again after everything this week. I got my voice back and thought I was getting better but not so - and to top it all off DS has conjunctivitis and I've woken up with it this morning too. So we've just come back from a trip to the GP to get that all sorted out. I'm banning myself from the hosp for a few days (as much as it breaks me) I need to fully recover, and I'm also contagious right now so I just can't go. The more I run myself into the ground, the less time I get with my baby girl. DP doesn't need to work again until Tues so he is going to be at the hosp with Heidi to help her through this.
Keep sending your thoughts & get well soon vibes Heidi's way - she needs every bit of strength right now. I will keep you posted, I'll have a bit more time at home over the next few days on my self-imposed rest.
You are so strong Infinity - you are such an inspiration hun.
As hard as it is to not go to the hospital to see your princess you know you can always call and ask about her progress, no where near the same as being there in person I understand - but better than nothing. She'll still be on your mind and in your heart hun.
I'm sending all the strength Heidi's way - and tonight I'll light a candle for her too. What a little fighter you've got on your hands ;-)
Thinking of you and DH and your boy, today and most days. Get better soon Heidi, healing vibes.
Oh Infinity! I'm SO glad to hear she has riden the worst of the storm and I have everything crossed for her to continue to get well. I'm thinking of you all a lot :hug:
It's such a relief to hear she's out of the worst danger!
Please rest up and heal yourself infinity :hug:
Thanks for the update Infinity - I have been worried about her and you. Hope you are all well again soon and you can spend some more precious time with your little girl. :hug:
That's good news Infinity :hug:. I hope your recovery is super-quick, and you're back with your precious girl in no time.
Rest up, Infinity, sounds like it's important for both you and your tiny girl to be taken care of right now.
Heidi has been in my thoughts and prayers. I hope she continues to respond so well to her treatment.
What a strong little fighter you have there hun (I bet she takes after you ;) ). I hope you are able to visit your beautiful DD soon hun, but I am really proud of how well you are coping in the meantime. You are all in my thoughts and prayers hun.
Aww Hun your an inspiration to me i'm in awe of your strength!, you have beautiful little fighter there beautiful and i know exactly where she gets that from :hug: i've been thinking of you and your precious little girl and will keep her in my prayers. Rest up Hun and take care of yourself :hug:
Its so lovely coming back in here to such kind-hearted people cheering Heidi on. Thank you all from the bottom of my heart.
DP has been with her each day, morning and going back down at night. Being such the sweetie that he is, he took our video cam down and has filmed her for me to watch. Its not the same as being with her, but makes a big difference. She is improving slowly, bit by bit each time he visits. The doctors are happy with her, she just needs some more time and hopefully we'll be on more solid ground. Even on the morphine she's starting to get a bit more active which is a great sign.
DS & I are getting much better which is good. I'm still banning myself until Tuesday, I'm so paranoid about being infectious and stopping at home for a few days has forced me to rest up a bit instead of running around like a mad woman. I still need to keep busy though...I'm going nuts being away from her.
I forgot to add that the day everything went pear-shaped, we received the professional photos of Heidi that were arranged through the ACOCP. They are just beautiful. I sat and bawled my eyes out looking through them - it was such a tough day and to have those beautiful pics of Heidi when she was well really gave me a lot to stay focussed on.
I have a follow up appt with the Obstetric team at the hospital tomorrow morning - I'm guessing its all going to be routine stuff for me post-natally. We may or may not have any more info as to why Heidi decided to arrive so early - I suspect its going to stay her little secret. Precious little girl.
Thank you so much for keeping us in the loop with Heidi.
Last post I said I was going to light a candle to send Heidi strength. At about 8.45pm or so I had lit the candle and not 5 mins later we lost electricity - Heidi's light kept DH and I from being in darkness :-)
So glad to hear the Heidi is improving and that her activity is increasing which is always a good sign. Little things like that always put a smile on my face especially when they were able to open their eyes again and look at you as if to say thank you! I don't know exactly what it is about these little miracles but they have a special aura about them, a special connection.
Hugs Hun for a quick recovery. Self imposed visiting bans are always a difficult time. Hoping that both you & Heidi are soon well enough for cuddles again.
Best of luck with your appointment tomorrow. Hopefully they will have some answers for you.
Sending healing vibes to all & keeping you all in my thoughts & prayers.
Sweetheart, you just made me cry. To think of her lighting up so many people's lives is just beautiful. Thank you x:
Rosebud, she has been opening her eyes again today when DP has been with her, grasping his finger as if to say "I'm still here daddy" so we're so hopeful its a little message from her that we just need to be patient for a few more days.
That's so beautiful!
All the best for your appointment tomorrow and hope you are soon well again
Infinity, I have been stalking this thread for a while now, praying for your little one. I hope she goes from strength to strength and you have past the hardest days. Even though you are not physically by her side at the moment I am sure she knows that her mum and dad are thinking of her. The joy of seeing her on Tuesday will banish the last few days so quickly it will seem like you never left her side.
Wishing and praying for you :hug:
oh gosh infinity, reading that she is opening her eyes to see her daddy is just so precious xx
our thoughts and prayers are with you all and we are cheering Heidi on as she grows and goes from strength to strength - and i hope that your postnatal appt goes well and that you also get in some good recovery and are back to 110% in not time :hug: