thread: Just don't know what to do... sorry long post

  1. #1
    Registered User

    Apr 2006
    Western Sydney
    24

    Unhappy Just don't know what to do... sorry long post

    Hi ladies, Just need some reassurance or similar stories.

    On the 4th of Feb I went for an U/S for some period type cramping at that time I was 12 weeks along, was in there for a while the U/S technician took lots of photos of baby which was happy bouncing around touching his/her face a good heart beat at 170 bpm (to me that seemed a bit high but I guess in the normal rang?). The scan wasn't for the Trans nuchal because I had that booked the following week.
    I was told to come back and pick up the results in a few days, and I did. I quickly read the report knowing that I had no medical background on reading U/S reports but just wanted to see and I wish I never had read them!

    The findings were that the skin on the back of the neck measured 3.8mm (As I said before this wasn't the initial Trans nuchal test the technician must of just checked everything) I knew in my head and having had this test done twice before I knew that was above normal. Then the next blow it said that I have Gestational Trophoblastic Disease! I have never heard of this before and it didn't sound good, (Also the baby had swelling on his/ her head ) I went back to my car in tears I couldn't breathe in tears trying to call DF that something wasn't right with me. So I went to my GP who then tried to explain it but wasn't very helpful. So I went home cried and cried googling what this disease was not liking what I was reading.

    Sorry for tmi I went to the toilet where I had started to bleed went to emergency cause of being O negative and needing the anti - d shot. Showed them the report and was told to come back in 2 days for and U/S for I guess a second opinion.

    I went there this morning where they did the Trans nuchal test and the neck measurement was 3.4 still high and they also took bloods and said I will have the results tomorrow more waiting and suggested an amnio, ( I can admit that the U/S technician was wonderful he really explained things in the was that I would understand he was very sympathetic) Baby was moving around good heart beat at 155 bpm everything looked so perfect. Then came the placenta they said it wasn't normal functioning but not normal.

    I am so heart broken. I can't sleep or eat I am at a loss.

    Sorry for the long post just needed to see if there are any ladies that had this or have been in a similar situation and what were the outcomes?

    TIA

  2. #2
    Registered User

    Dec 2007
    1,039

    I am so sorry hun, I don't know anything about this but I had to give you a massive . I hope you get some answers soon xx

  3. #3
    BellyBelly Member

    Oct 2006
    Queensland
    2,039

    I am so sorry to, I am not sure on this but I really hope you get some answers soon and it is all ok

  4. #4
    Registered User

    Sep 2008
    Perth
    486

    Big hugs here too. I hope you find some answers.

  5. #5
    Registered User

    Apr 2006
    Western Sydney
    24

    Thanks girls its so hard I really don't know what to do I feel as though its my fault.

    I am trying to stay positive and be strong for my 2 little ones but it's so hard.