I wish you every best wish and all the strength you need.

The hard part is finding accurate information; I think you need to access real support networks and organisations and not just opinions. It's always difficult to pin doctors down to an opinion on what ifs. The hard part is that many opinions are linked to professional articles in journals and that can make it hard to decipher. So some that I have found briefly and seem useful:

Trisomy organization (SOFT) - Children with Trisomy 13 and Trisomy 18 Support Group - Trisomy Parental Support Trisomy information for 13 18 and related types.

Trisomy Oz Prenatal Support# An Australian site.

Living with Trisomy 13 - Photos and Videos of Children living with Trisomy 13 Seems like a very informative site.

http://www.genetics.com.au/pdf/factsheets/FS29.pdf Trisomy 13 Fact sheet

http://www.genetics.com.au/pdf/factsheets/fs30.pdf Trisomy 18 Fact sheet

Rainbows Down Under - A Trisomy 18 & 13 Resource Rainbows Down Under an Australian Trisomy site, with some great links to resources.