Big hugs to you hun, I understand what you are going through at the moment. Three years ago I had a baby with Trisomy 13 which was detected at my 20wk scan. We had genetic counselling and were told that Trisomy 13 is not a genetic condition and happens to 1 in 10,000 people and it would be very highly unlikely to have another baby with this condition. I fell pregnant a year later and refused to have any testing done, I would wait until my 20wk scan and if anything was picked up there would consider further testing. I also felt like you, did not want to risk anything happen to my baby if it was healthy. It was a very long waiting game. It was the best day when we had our scan and were told our baby was perfectly healthy. I'm not sure on what the risks are with these tests and hopefully someone will be able to give you some figures but for me even the slightest risk of miscarry was too high. I really wish you all the best and pray that you will carry your baby full term and be able to hold a healthy baby at the end. Please feel free to ask any questions you may have.

Regards,
Dianne