thread: Worried, waiting for results

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  1. #1
    Registered User

    Jan 2008
    New Zealand
    175

    Question Worried, waiting for results

    Hiya,

    Being in New Zealand we are so behind the times that we have our NT scans at 12 weeks, bloods taken at 15 weeks and then have to wait another 10 days to get the results of our risk ratio.

    I'm 5 days into the 10 day wait and it's driving me nuts, I just want the answer so I know if I have to brace myself for the risk of amnio or not. I've been told the risk of miscarriage is 1 in 100 but also 1 in 200, does anyone know which it is?

    Im 37 (just) so my age is against me and my paternal grandmother had a downs baby (I'm not sure if this will affect my results or not) so I'm terrified.
    When I had the scan the sonographer said that she could see absolutely nothing to concern her, the NF measurement was 1.6mm which she said was good so I know I should just focus on that but it's easier said than done.

    Sorry to moan but my husband doesn't really want to hear it, he will just deal with what happens when it happens which is fine but doesn't really help me now.

    Thanks for listening,
    Cheers Missy

  2. #2
    Registered User

    Dec 2008
    Melbourne
    214

    Hi Missy,

    I know how you feel with the waiting game, we had to wait for our results over the xmas period and I made myself sick stressing about it.
    It is harder said than done but all you can do is think positive and wait the next 5 days out...
    I did other baby related things to keep my mind off it (research the furniture you want for the nursery, make a list of baby names u like, consider other thing you might need once the baby arrives) try and pass the time the best way you can doing whatever you can to keep your mind occupied.

    I am sure you will be fine. All the best and Good Luck with the results.

  3. #3
    Registered User

    Oct 2007
    Middle Victoria
    8,924

    The risks quoted for loss of pregnancy following prenatal testing is 1/100 for CVS (which is performed earlier) and 1/200 for amnio. As doctors are getting more proficient, the risks are probably getting lower.

    Down Syndrome is not usually inherited. A small number of people do have increased familial risk, but in most cases having a person with Down syndrome in your family tree does not increase the chance of your baby being affected.

    If you want more info on familial increased risk i can explain further, but it is pretty rare so probably not something you have to worry about.
    Last edited by HotI; March 8th, 2009 at 09:21 PM.

  4. #4
    Registered User

    Jan 2008
    New Zealand
    175

    Thank you so much for your replies, I really appreciate it I guess it just makes me feel not so alone.
    I feel better about the 1/200 ratio for amnio thanks for that.
    Missy

  5. #5
    Registered User

    Oct 2008
    312

    HI Missy,

    We just had our NT scan at 12 weeks with bloods at 11 weeks. I am 38 and our results were given to us at the scan. That would be horrid having to wait that long for the ratio! Your nuceal fold measureent is really good! Ours measured at 2.8 . So we are having an amnio (YUK). My OB told me that one of her other patients had a fold measurement of 3.54 recently, had the amnio and bubs is perfectly healthy!

    Waiting is terrible.

    Good luck with the ration but I think you will be absolutely fine.

    Rachel

  6. #6
    Registered User
    Add Evie76 on Facebook

    Jan 2007
    SA
    1,086

    Hello everyone

    I'm 32 and had my first scan on 15 Jan. The NT measurement was 3.8mm and the bloods supported a diagnosis of 1:2 Downs and 1:6 Trisomy 18 (very bad).

    I was told that I would need an amnio to confirm the results, which I couldn't get until 18 Feb. So, I had 5 weeks wait until I could have the amnio.

    In that time I insisted upon a second scan, which my original Dr poo-pooed. So, I went to another Dr who said that it was fine. He agreed that there are not always medical reasons for things.

    Suddenly the NT measurement was 1.8mm. Completely different. Our odds went down to 1:230 for Downs, no T18 risk. The Dr was still not happy with the odds - they're not if they're under 1:300. So, after a COMPLETELY agonising and very lonely wait, I had the amnio. THEN I waited two weeks for the results, which I finally received this Wednesday just gone - NO DOWNS!!!

    There is no magic pill for the pain you will be going through at the moment. One day I was good, one day I was bad. Even though I got the new diagnosis, I still had the first diagnosis in the back of my mind. Thank goodness for my Belly Buddies. So many times I was writing to them in absolute tears and despair from feeling lonely. My DH was very good, but didn't understand my anguish and the attachment I already had to our little boy.

    I would also like to say that the miscarriage rates are based on worldwide figures. This includes countries like Great Britain and such. So, it is not necessarily an accurate representation of the success of amnios in Australia/NZ.

    If I had to again, I would have another amnio. It's not a painful procedure and as long as you rest afterwards, you should be fine. It feels weird more than anything and is especially amusing if your DH/DP faints during the procedure because he decided to be a big man and watch. Well, he watched you first child come out of your jaxy, so this shouldn't be too bad. WRONG.

    Good luck to you. Whatever you decide is right for you is the correct thing to do. Don't let people judge you - I had that.

    Your odds are very good.

    RommysMum, look at my first measurement - it's out of the ball park and I'm have a healthy bouncing baby boy in July. If either of you want to PM me, feel free. I'll listen to you and I understand EXACTLY what you're going through. The most important thing is to remember you are not alone and so many women seem to go through this. It's like a test of our mettle.