I might lose my Uterus :(

Some of you know my story...(2nd and 3rd D&C and not looking good) Yes well, all is not fixed.

After 3 D&C 's from my miscarriage and still constant bleeding and cramping the ultrasound today has shown that something (placenta?) is still stuck deep in the muscle. My options are: High dose Chemo treatments to kill the growth followed by another D&C. Or... a surgery where they 'try' to cut it out of my muscle and then a low dose of chemo to kill any particles left behind. They don't really want to do the surgery because of the danger of dying in theatre due to blood loss. The third option is to just take the uterus which is the safest option.

They say that if the Chemo works and I save my uterus...They don't suggest any future pg because of the severity of the incretta (placenta growing into the uterine muscle) it will almost certanly happen again with the likelyhood of losing me and the Baby.

They also say that the Chemo may not work and they will have to do the surgery or take the uterus anyway....Hmmm, so going through Chemo for nothing!

They are so puzzled by me. My HCG is only 1.5 so they dont know exactly what is in there just that it must come out. They do know that it's not Molar but thats about it! Hmmm Smart, arnt they?! :rolleyes:

I just dont know what to choose! they all seem like crappy scarey and sad choices.

I have been given until Monday morning to think about it. DH says he wants me to choose what ever option will ensure he doesn't lose me.

I am going to call another hospital tomorrow (Royal womens) and see if they have any other ideas. So then at least on Monday I know the best way to go.

What would you girls do in my situation. I do really want another Baby, but not at the risk of me dying or getting pg and losing my life as well as that of any prospective Bubba.

I'm so worried and confused about what to do my head is spinning.

O Sarah, I am so sorry that you have been going thru so much. I have been following your story and have been amazed at how much this doctors are putting you thru. I would be sure to get a second opinion if I were you.
Goodness, you are a strong woman, I just went thru a blighted ovum with a D&C 3 weeks ago and am still greiving a bit, I cant imagine how hard it must be to have to go thru all of this on top of it.
I just wanted you to know that I am thinking of you.
x x x x x :hugs:

No woman should ever have to make a choice like that, but i am sure you will make the right one for you. Your DH sounds so supportive, he obviously loves you very much. We are all here for you to support you through this.

Sarah I can't imagine how hard this is for you. You have a very difficult choice to make in a very short space of time.

I wish you all the best for whatever way you decide to go.

Awe sarah... :cry: you poor hun....

I think the best option IMHO is to get a second opinion and really look at getting into some sort of a specialist as the ppl u are dealing with are sounding a bit scary..... :-k I just dont know what else to say xept my heart, my thoughts and ALL my prayers are with you as u make the descions that u need to make... also Danny(dh) and my mum send there best wishes and hope u hold up....

:flower:

:heartbeat: :heartbeat: :heartbeat:

Sarah
I am so sorry to hear this awful news. It must be such a difficult decision to make.{{hugs}}

I don't know what to say, and am sure that nothing I can say will take away the pain,anger and frustration you feel. The loss of your bubba must be devastating, and the potential loss of your ability to have more children just as devastating.

I agree with others you should go for a 2nd opinion.
Thinking of you

"~♥~ DD Charlotte Rose 1/9/04 26wks born still ~♥~"
IVF Twins due July 2006

I am so sorry Sarah for your ongoing trauma - you are sounding very brave to me.
I agree with all the other ladies -you MUST get another opinion. perhaps even from a gynological oncologist -they specialise in cancerous/precancerous issues of women's bits! May cost a little to see a specialist but what price do you put on your life and the potential to have more children. What a very tough choice for you -I'm not sure what I would do except to investigate EVERY possible option and be sure I trusted the people looking after me.

All my love to you and your family

you are right Sarah they are all crappy and sad choices!! you poor thing.

If i were you, and 2nd opinions from other specialists all agreed with your doc, I would have to choose the safest option for myself (even if it was the devastating decision of no future kids), as your precious dd's need their mummy to be healthy. It sounds like they might save your uterus with chemo, but future pg's may risk your life. What an awful, heartbreaking decision you have to make.Let us know how you go.

thinking of you (hugs). You will make the best decision for you and your family.

Wow Girls I am so grateful to all of you for your replies! ;)
I have made a decision....
I am going to do the Chemo and D&C. Believe it or not my DH said something to me this morning that actually made sense! (yes ladies miracles do happen! lol)
He said... "I think you should just have chemo and then (because of the risk with getting it back (accreta) ) just don't jump into TTC. Your only 26 Hon, and who knows if years down the track they come up with a cure for it or some way to make pg safe if you've got it. Wont you regret it if they take you uterus, then in say 5 years science comes up with something and your only 30 with no uterus?"

OMG Girls...I just stood there and stared at him for a while! Gobsmacked!

OK so if the chemo doesn't work :rolleyes: :rolleyes: I am still not going to gamble with them cutting up blood vessles in my muscle to get it out...Then I WILL just opt for the hysterectomy.

So lets just pray that this chemo and D&C works [-o< :crossfingers:

Good luck Sarah.

Awwwwwww your DH sounds like a gem, and he made perfect sense. You do never know what's going to happen. Sounds like you've made a great decision, I truly hope it all works out for you and you have a little bubby in your arms one day :hug:

SOunds like a smart man. Give him a kiss from me.

I hope the coming weeks aren't too rough. Lots of cuddles and kisses from mum all round I reckon.

And treat yourself to a bloody massage or something!! Sounds like you need a break too.

Fi

Sarah all the best for the chemo and D&C.

Sarah I was sooo sad when I read your first story, but for your DH to say what he said put a smile on my face.

He is being such a strong support for you and he is right. With all the technology these days I am sure within 5 years you will have a bouncing bubs!!

Goodluck and I hope all goes well.

oh sarah, I am so sorry this happening to you, i can't imagine the stress you must under right now, Im happy to see that you have made a decision and personally its the one i would have made also, your DH sounds wonderful in helping you make such a big dicision.

I wish you the best of luck with everything :hug:


Shell :flower:

Good Luck Sarah,
thinking of you in this stressful time. You are an inspiration.
Best
D :flower:

Sarah that is so horrible - no woman should ever be faced with that choice - especially not when they are in their twenties (or thirties or forties!). I think that you and DH have handled this terrible terrible situation beautifully. I'm so glad that your DH said what he did - its amazing when they come out with stuff like that isn't it?

When will you start the chemo? I'm going to be praying so hard that it works quickly and you don't experience any horrible side effects.

You are being so so brave.

Liss.

Good luck Sarah...my thoughts and prayers are with you both...
Love Tracie [-o<

Sarah,
I only just saw your post.

It sounds like you have made your decision. I would just like to say. Please get a second opinion. This is huge and it is a decision that will impact on you a great deal. There are many many very good gynaes in Brisbane. A consult will only cost a small amount as you will be reimbursed some by medicare. Some of these private guys have lists at the public hospitals as well. Think about it...

Love to you,
Deb

Sarah - Hugs to you. Good Luck

Sarah, I don't know quite what to say, except that I'm so very sorry this is happening to you, it's just not fair is it.

And you're right they're $hitty options mate, but as you're DH (who sounds lovely BTW) says you are the most important thing, to him and your other kids, they need a strong healthy mum, and I know what I'm about to say is selfish, but you have beautiful kids now, is the risk worth taking when you have them already.

Believe me this has been put to me also, I want another (have 2 already)and I know the feelings you have if you're anything like me then you don't quite feel complete(sorry to sound like a movie script), but there's an acheing that needs to be filled, so I know what you mean honestly, but at the risk of dying it's probably not worth it in the long run is it?

Good luck with your decision, and why do they need an answer today?

Oh Sarah, i was extrememly saddened to read what you have been going through.

I think you have made a good choice opting for the Chemo and D&C. I'm thinking 5 years down the track you will have the beautiful little bubba in your loving arms.

Goodluck with it all, my thoughts are with you and your family during this difficult time.

Hey gorgeous girls!

I did get a second oppinion which pretty much agreed with the first one. All the gynaes and staff working on my case were excellent today the senior gynae spent hours with me talking everything through with me and i felt very much like they had done their homework, I understood and have made the right decision. They even say I can TTC in about 6 months and if I get the condition back that at the worst I would have a planed C Section and removal of the uterus. Not such a big deal seeing as I DEFINATELY aint having four! lol

Well, I had my first round of Chemo today. The injection hurt like a mother...
I just hope this works...I'll be having a scan in about 3 weeks to see if the mass shrinks.

Thankyou sooo much to all of you who posted...I think the support system on BB is fabulous!
Hopefully this will be the end of the drama and I can get back to my normal life as Trophy wife, Yummy mummy and Domestic goddess! ;)

Sending you every ounce of luck I have, please keep us posted on how you are going :hug:

Sarah,
It sounds as though you are really happy with your care and your decisions. That is great. I am so so happy that there is an end in sight for you. This has been quite an ordeal. Please keep us posted with how you are going.
Lots of love and positive thoughts for a quick recovery.
Deb

Thinking of you Sarah -hope it is a quick recovery for you so you fulfil your hearts desire for a new bubba.

Sarah, thinking of you and hope all goes well.
Take care

I'm so glad that they are looking after you and that they are finally giving you all the information you need. Good luck with the chemo Sarah, wishing you a speedy treatment and a fantastic outcome.. Keep us informed how you are
Love Tracie

All the best Sarah, you sound so positive, i just know that it will have a happy ending :hug:

Good luck Sarah! I am so glad you are finally happy with the medical care you are recieving. Sounds like they have taken some time to really "care" about you now (would have been nicer several weeks ago though!).
Hope the chemo doesn't knock you about too much.

Sarah, :hug: to you. I am thinking of you wishing you all the best with the chemo. :luck: