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Thread: I might lose my Uterus :(

  1. #1
    ~Sarah~ Guest

    Default I might lose my Uterus :(

    Some of you know my story...(2nd and 3rd D&C and not looking good) Yes well, all is not fixed.

    After 3 D&C 's from my miscarriage and still constant bleeding and cramping the ultrasound today has shown that something (placenta?) is still stuck deep in the muscle. My options are: High dose Chemo treatments to kill the growth followed by another D&C. Or... a surgery where they 'try' to cut it out of my muscle and then a low dose of chemo to kill any particles left behind. They don't really want to do the surgery because of the danger of dying in theatre due to blood loss. The third option is to just take the uterus which is the safest option.

    They say that if the Chemo works and I save my uterus...They don't suggest any future pg because of the severity of the incretta (placenta growing into the uterine muscle) it will almost certanly happen again with the likelyhood of losing me and the Baby.

    They also say that the Chemo may not work and they will have to do the surgery or take the uterus anyway....Hmmm, so going through Chemo for nothing!

    They are so puzzled by me. My HCG is only 1.5 so they dont know exactly what is in there just that it must come out. They do know that it's not Molar but thats about it! Hmmm Smart, arnt they?!



    I just dont know what to choose! they all seem like crappy scarey and sad choices.

    I have been given until Monday morning to think about it. DH says he wants me to choose what ever option will ensure he doesn't lose me.

    I am going to call another hospital tomorrow (Royal womens) and see if they have any other ideas. So then at least on Monday I know the best way to go.

    What would you girls do in my situation. I do really want another Baby, but not at the risk of me dying or getting pg and losing my life as well as that of any prospective Bubba.

    I'm so worried and confused about what to do my head is spinning.

  2. #2
    JadeTara Guest

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    O Sarah, I am so sorry that you have been going thru so much. I have been following your story and have been amazed at how much this doctors are putting you thru. I would be sure to get a second opinion if I were you.
    Goodness, you are a strong woman, I just went thru a blighted ovum with a D&C 3 weeks ago and am still greiving a bit, I cant imagine how hard it must be to have to go thru all of this on top of it.
    I just wanted you to know that I am thinking of you.
    x x x x x :hugs:

  3. #3

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    No woman should ever have to make a choice like that, but i am sure you will make the right one for you. Your DH sounds so supportive, he obviously loves you very much. We are all here for you to support you through this.

  4. #4

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    Sarah I can't imagine how hard this is for you. You have a very difficult choice to make in a very short space of time.

    I wish you all the best for whatever way you decide to go.

  5. #5
    lucysmummie Guest

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    Awe sarah... you poor hun....

    I think the best option IMHO is to get a second opinion and really look at getting into some sort of a specialist as the ppl u are dealing with are sounding a bit scary..... :-k I just dont know what else to say xept my heart, my thoughts and ALL my prayers are with you as u make the descions that u need to make... also Danny(dh) and my mum send there best wishes and hope u hold up....


    :flower:


  6. #6

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    Sarah
    I am so sorry to hear this awful news. It must be such a difficult decision to make.{{hugs}}

    I don't know what to say, and am sure that nothing I can say will take away the pain,anger and frustration you feel. The loss of your bubba must be devastating, and the potential loss of your ability to have more children just as devastating.

    I agree with others you should go for a 2nd opinion.
    Thinking of you

    "~♥~ DD Charlotte Rose 1/9/04 26wks born still ~♥~"
    IVF Twins due July 2006

  7. #7

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    I am so sorry Sarah for your ongoing trauma - you are sounding very brave to me.
    I agree with all the other ladies -you MUST get another opinion. perhaps even from a gynological oncologist -they specialise in cancerous/precancerous issues of women's bits! May cost a little to see a specialist but what price do you put on your life and the potential to have more children. What a very tough choice for you -I'm not sure what I would do except to investigate EVERY possible option and be sure I trusted the people looking after me.

    All my love to you and your family

  8. #8
    brodes80 Guest

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    you are right Sarah they are all crappy and sad choices!! you poor thing.

    If i were you, and 2nd opinions from other specialists all agreed with your doc, I would have to choose the safest option for myself (even if it was the devastating decision of no future kids), as your precious dd's need their mummy to be healthy. It sounds like they might save your uterus with chemo, but future pg's may risk your life. What an awful, heartbreaking decision you have to make.Let us know how you go.

    thinking of you (hugs). You will make the best decision for you and your family.

  9. #9
    ~Sarah~ Guest

    Default

    Wow Girls I am so grateful to all of you for your replies!
    I have made a decision....
    I am going to do the Chemo and D&C. Believe it or not my DH said something to me this morning that actually made sense! (yes ladies miracles do happen! lol)
    He said... "I think you should just have chemo and then (because of the risk with getting it back (accreta) ) just don't jump into TTC. Your only 26 Hon, and who knows if years down the track they come up with a cure for it or some way to make pg safe if you've got it. Wont you regret it if they take you uterus, then in say 5 years science comes up with something and your only 30 with no uterus?"

    OMG Girls...I just stood there and stared at him for a while! Gobsmacked!

    OK so if the chemo doesn't work I am still not going to gamble with them cutting up blood vessles in my muscle to get it out...Then I WILL just opt for the hysterectomy.

    So lets just pray that this chemo and D&C works [-o<

  10. #10

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    Good luck Sarah.

  11. #11
    Tigergirl1980 Guest

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    Awwwwwww your DH sounds like a gem, and he made perfect sense. You do never know what's going to happen. Sounds like you've made a great decision, I truly hope it all works out for you and you have a little bubby in your arms one day

  12. #12

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    SOunds like a smart man. Give him a kiss from me.

    I hope the coming weeks aren't too rough. Lots of cuddles and kisses from mum all round I reckon.

    And treat yourself to a bloody massage or something!! Sounds like you need a break too.

    Fi

  13. #13

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    Sarah all the best for the chemo and D&C.

  14. #14
    *TamaraP* Guest

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    Sarah I was sooo sad when I read your first story, but for your DH to say what he said put a smile on my face.

    He is being such a strong support for you and he is right. With all the technology these days I am sure within 5 years you will have a bouncing bubs!!

    Goodluck and I hope all goes well.

  15. #15

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    oh sarah, I am so sorry this happening to you, i can't imagine the stress you must under right now, Im happy to see that you have made a decision and personally its the one i would have made also, your DH sounds wonderful in helping you make such a big dicision.

    I wish you the best of luck with everything


    Shell :flower:

  16. #16

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    Good Luck Sarah,
    thinking of you in this stressful time. You are an inspiration.
    Best
    D :flower:

  17. #17

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    Sarah that is so horrible - no woman should ever be faced with that choice - especially not when they are in their twenties (or thirties or forties!). I think that you and DH have handled this terrible terrible situation beautifully. I'm so glad that your DH said what he did - its amazing when they come out with stuff like that isn't it?

    When will you start the chemo? I'm going to be praying so hard that it works quickly and you don't experience any horrible side effects.

    You are being so so brave.

    Liss.

  18. #18
    stc Guest

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    Good luck Sarah...my thoughts and prayers are with you both...
    Love Tracie [-o<

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