NT u/s Gave High Risk

HI All,
I guess I am looking for some hope atm. My NT u/s came back at 1 in 28 chance of my bub having downs. To comfirm they are going to do a chorionic Villus samplling on Wednesday. I am so scared of losing another bub, it is just breaking my heart atm. I feel so helpless and all I wanted to do was protect my baby, and it just seems to be getting harder and harder to do. The fluid at the back of bub's neck was 3.4. So doesnt look promising to me. The baby was moving around so well, I just cant comprehend what is happening.

Any encouraging news would be greatly appreciated, I really need something to hold onto right now. Hugs

Oh sweetheart, I'm so sorry to hear that... My prayers will be with you on Wednesday for your testing :hug:

Cheryl im so so sorry hun (HUGS) :( My thoughts and orayers will be with you Wednesday also.

Did you see that thing on the morning show on channel 9 yesterday? about the testing for DS and they had a guy on there saying how inaccurate it was? Hold tight to that thought until you know for sure hon. :hug:
Wish you lots and lots of luck :hug:

Thanks ladies, I didnt see that about the NT. Yet it just seems like one battle after another. My head and mind as well as heart are in so many different places I just dont know where to turn. I was so hoping for better results than that, and it has been such a shock to my system. Now I just need to work out how I am going to get thru the next few days.:(

Csab i agree with Mel. I am hoping so bad that it is wrong and everything is perfect with your little bubba. :hug: Thinking of you :hug:

Oh no cheryl, you are so not having an easy time.. I am hoping that all goes well for you on Wednesday and we hear some good news. :hug: xx

I wish you did see the program it was quite good. There was a couple there who was given a 1 in 8 chance of child being DS and he came out completely normal. One of the scanning guys said that if you use two different types of scanning devices during the ultrasound, it can produce very different results...
so try to hold on to that hope - and don't think about what could happen, just keep safe and well until you know what WILL happen.
:hug:

There's a thread about it Here
I know it wont stop you worrying, i'll be thinking of you on wenesday xo

Thanks Everyone. I am trying to think positve. I am nervous as anything about the CVS on Wednesday. it certainly wasnt the news I wanted to hear today. I just want the stress to end.:(

Cheryl, you are having way too hard of a time, it's not fair :hug:
I am praying that your results are good and I'm sure they will be. I have been reading about the NT scan and how inaccurate it is when trying to decide if I was going to have it myself.
:hug: be sure to let us know how it goes.

Thanks SJ,

With my age it really doesnt help matters.:( I will let you all know, I am just not sure on how long it will take for the results to come back. The hospital is trying to have it done as quickly as possible. Hugs

cheryl, I am so sorry that all this is happening to you hun, what a stressful time:hug: I do have to agree with the other ladies, i have heard that the NT scans aren't very accurate, I know of a few people that have had not so great results, yet their babies are born H&H. Try to keep calm and stay as positive as you can, I know that it is easier said than done, i will say a prayer for you and bub right now.

So sorry to hear that you have been given a bad result. But perhaps you can think of it more as 27 chances of your baby being just perfect too.

I am praying for you that you get a great result come the cvs. OR.... you could just not have the CVS done.

Oh Cheryl, I don't know what to say :( HUGE :hug: for you! You have been through so much and really don't deserve it. I will be another that will :pray: that the results will come back good. It's only fair with what you have been through that you have a healthy bubba growing inside of you.

Take care of yourself :hug:

:hug::hug: I know exactly what it is like to be waiting for possible problems. It is heartbreaking. I was told at one scan Kane was 100 % perfect, then told he may have problems just a few weeks later :(

There are no words, just the knowledge that we can only wait and pray for now. I wish you and your family all our love and thoughts, and fingers crossed for the best result for your little bubba bean. Good luck csab :hug:

Hun. I was going to say the same thing as Trish... It is 27 / 28 chances that all is ok.
Try not to stress too much till after the CVS. Which I know you wont, but I had to say it anyway...
Thinking of you and sending all the positive vibes I can. :hug:

Hi Cheryl

Keep the hope darl - we are the same age (I think I am older!) - and I know that isnt a good starting point alone cos they use age in calcs.

There is a thread in general discussion - what was YOUR nuchal fold results (I dont know how to put the link in) - I felt better when I read that. And I have seen results from a 41yo woman whose results came back 1/38 (I think from memory) and nuchal lucency measured 3.8mm and she had an amnio and all was fine.

Just keep in your mind and heart it is screening, not diagnostic - so it just looks at markers, not actual bubs :)

From my reading (too much googling :() 3.4 is only just above the high end of normal.

Good luck and keep talking to bubs about staying put :)

Stress - I am convinced our bubs thrive on it now :)

Hope it all goes well.

Sam

cheryl, I posted in the older womens thread as well, the neck meausrement is not good or bad, up to 3 is consider normal, there are a few sites out there with lots of good info. women have had far worse measurements and gone on to have healthy babes, is this your combined results? I have everything crossed for you that all will be okay, sometimes there ar eother reasons for the higher measurement, reasons that can be treated once the baby is born eg:heart, have a read and try and ease your mind, good luck for Wednesday.:hug::pray::(

Cheryl OMG my heart just sank when I saw this thread! I hate knowing what a hard time you've had throughout the past 12 weeks, I was praying your scan would show you all was ok & no need to worry anymore!

Please don't give up hope, I've heard many stories about older woman getting the high risk on the NT scan & go on to have a H&H bubs.

I'll keep you in my prayers, I truely hope all your fears are cleared after your test on Wed, I'll be thinking of you hun.

Good luck & huge hugs!

A Friend of mine went through a similar situation only last week and was originally high risk - had the CVS done last Thursday and was given the amazing news on Friday that all is fine with the baby - have faith and be kind to yourself - this is totally out of your control - all you can do is pray and think good thoughts - I know easier said than done but give it a try OK :hug:

PS - Make sure they fast track your results too - they can do this I think you just need to ask

Thankyou all for your such amazing support and for your kind hearts. I am finding this really hard, much harder than what I thought I would. I am trying hard to be positive and to think that I will be one of the 27, not the one of one. This outcome has been going over and over in my head, and the thought that I could end up losing my baby just cant escape my mind. I so want to be strong for this baby, yet I am failing again.
The hospital are making arrangements for the results to be done quickly due to the time frame we have due to my previous c/s's as if I wait any longer then it would be too late to do anything under the circumstances. The possibility of m/cing a healthy baby is also there and playing havoc with my mind and emotions. How can I get thru this? I feel like I cant cope anymore. My eyes feel like they are burning and my head and heart are aching.
Thanks again everyone, as soon as I have a result, which I am praying will be a positively healthy baby result I will let you all know. Hugs

Honey I am soooo sorry you are going through this. You know in your heart what is the right thing to do :hug:

oh honey , i and praying for you and your family .... huge comforting hugs for you :hugs:

oh cheryl, big hugs honey, i didnt see this thread earlier.

i dont know if this will make you eel better, but odds of 27/1 are pretty good! bookies would go mad over those odds ;)

I have a friend of a friend who had very similar results, even higher - i think she was told one in ten. but she decided not to go through with the furhter tests, believing that whatever was meant to be would be.

Baby turned out absolutely beautiful, perfectly fine and healthy. :dance:

Thinking of you, keep strong xxx

Hi Cheryl,

Sending you positive vibes at this terribly difficult and anxious time. A lady in another thread (she's 41) had a nuchal measurement of 4.1mm - I think she was 1/37 risk.... she had amnio and all was fine - they thought her high measurement may be related to slow growth of her bub - but they were wrong - her bub is measuring ahead for dates. So no answers there, but a relief to know all was fine.

I don't want to scare you - but if you need any information re. cvs - I had one last August - when my nuchal measurement was 2.3mm which gave me a 1:36 chance for DS, then with combined bloods (which were bad) I ended up with a 1:10 risk - so went straight to CVS. It was such a horrible week, not knowing if the bub was alright or not. I felt ill all the time, sick with worry........ sadly it turned out my bub did have DS. I'm now pregnant again, and my nuchal was 1.3mm - a 1:1500 risk - I'm 39. So all is looking fine this time around. The nuchal measurement can be really misleading I think - you can have a high measurement and all is fine, or you can have a lower measurement and all is not fine.......... mine was really only the upper end of normal. Hang in there, and the chances are still way in your favour that all is perfect with your bub. As I said, I really feel for you, as I know firsthand what you are going through. If you want to pm me or ask me anything I'm happy to share.

Take care,

Lee x

Hunni. you and your precious baby will remain in my thoughts and prayers this week. My heart is heavy waiting for your news.
Hang in there. You can do it... You have got this far. I am here if you need me.
Thinking of you. :hug:

Thankyou all so much, I appreciate all your thoughts and prayers. I also thankyou for sharing some stories of hope.

Lee - I am so sorry for what you have been thru, I feel sick with worry right now too. I am sorry that your outcome wasnt a positive one, and having been thru such a hard time, I know how difficult it would have been with this pg as you approached your NT scan. I am so happy that this pg is going well for you. Thankyou for sharing your story.

Ruf - Thanks hun, I know you are here. You and all you other ladies are wonderful and I appreciate every single one of you. Thanks again. Hugs

Cheryl, I am sorry that you are having to go through this. I was told by a very good OB that for some reason, older women do tend to get high readings on their NT scans and quite a high proportion of these women will go on to have perfectly normal, healthy children. How old are you? Are you over 40?

I haven't had a CVS but I have had 4 amnios. The procedures are very similar, just done at different stages of pregnancy and the cells they take come different areas (placenta CVS, amniotic fluid amnio). Both procedures in expert hands are fairly safe. Some people find them merely uncomfortable (me for one). Everyone is different.
The main thing to remember is, what do you intend to do with the results. If you would end your pregnancy if there is a problem, then having the test is the best thing. I had the amnios for that reason. If you intend to see the pregnancy through no matter what, then you don't have to have the test. Of course, a lot of people prefer to be fore warned even if they intend to have their baby no matter what. It is a very personal thing.

Still, none of that really helps you other than to know that we are all thinking of you.

One other thing. I was 45 when I had my last babies. I am 46 now. I didn;t have a NT U/S, went straight to amnio. Even at my age things can go right.

Hugs and best wishes to you,
Debbie

Oh Cheryl, I'm so anxious for you. What a decision.

CSAB - Try to be more positive about this. I know how hard it is because I've been there. I got a 1/37 risk from the combined test. My measurement was 4.2. I went on and had the amnio done and no abnormalities were found and all appears normal in the latest scan. Of course I still have to wait til the birth day to be sure but I've decided to stick with positive thoughts. I found that being as positive about it as possible was the thing that got me through all the stress. If you are worried about the CVS it probably wont be as bad as you are imagining - I know my amnio was no big deal to actually go through, it was the whole lead up to it and the waiting for results that was the difficult part.

I feel for you atm. My friend who is 39 had a 1:10 chance from nt/us etc but when she had the amnio everything was fine so be positive! I think isn't it funny- if you were told you had a 1:27 chance of winning lotto you wouldn't expect to win but if its somethng bad you always expect it will happen!
Hugs to you at this difficult time.

Satya - I am nervous about tomorrows CVS. I have to still drink the 2glasses of water, how am I going to hold that in with all the nerves and them sticking a needle up there All the while having the u/s done at the same time. Doesnt sound like a pretty look does it.:redface: They had me empty 4times during the NT scan yesterday as my bladder was too full for them to get the results they needed. I have composed myself especially after the hospital visit today, speaking with the counsellor again, and the physician and OB. Yet I know I must go thru with tomorrow so I know for sure how healthy bub is. I was told today it will take about 2days for the results to come back as all the tests are done at Westmead hospital and then sent back to my hospital. They said that the quick results will give a high percentage I think they said around 90% cant really remember now, and by that they will have a good indication, but they then wait for the rest of the week until they get the correct results. So I agree waiting for the results is going to be the worse. Thanks hun.

Kim Thanks once again hun. hugs

Debbie - Thankyou for sharing your story. I have been told that the Dr doing the procedure tomorrow does 100's of them. I believe he is also the head Dr of the Feto Maternal Unit. He is the only one that does the Vaginal CVS and they have another Dr that only does the other CVS. So I feel confident that he will do a great job. Thankyou for sharing with me your story about your last babies and congratulations for the birth of them. I am 35 and next week 36.

Mrsmac - Thankyou too hun. And you are right with the lotto. Funny that.

Big hugs Cheryl :hug: You have been given some really wise advice from the gorgeous women in here.

I just need you to hear that NT u/s is an indicator - it is a test that puts you in the group of women who are least likely to have a baby with a chromosomal issue or in the group that is more likely to. Your results put you in the latter. That is very very difficult information to deal with - especially given your history. CVS in the hands of an expert is likely not to cause problems with your pregnancy so try to relax about that as much as is possible. Keep a mantra playing over in your head. One that suits you. Use it to replace the negative thoughts and words that come to mind. This is something that helped me enormously during my pregnancy with Imogen - it may help you too...

The CVS is usually described as uncomfortable. It is over quickly. Spend the rest of the day resting and eating tim tams. YOU deserve it.

I know you alone have to live this but know that we are all here - though we are far away physically you are in our positive thoughts. There is a power to that that you will feel. I know that I did all those times that I was in need of support.

We will be holding your hand tomorrow as you go through this - what time is it?

Sending you loads of love and hugs... :hugs:

Cheryl, sending you big healthy positive vibes for tomorrow's CVS. And huge hugs and lots of love for you. Will be thinking of you tomorrow and keeping everything crossed for you. All of us will be beside you in spirit to hold your hand and give you strength. :hug:

Flowerchild - Thankyou for your kind words, I am taking everything in a trying very hard to keep positive. I also know that the stress is not good for me or bubs. You have been thru quite a bit too, I hope little Imogen is doing well. My appointment is at 11.00am. Thankyou for letting me know that it is over quickly, I was a bit worried about that especially having a full bladder.:redface: Lots of hugs

Kerry - Thankyou too hun, I dont know where I would be if I didnt have all you lovely women next to me and keeping me as sane as possible with your words of comfort. Hugs.

Thankyou all you lovely ladies once again, as I said I just dont know where I would be if I didnt come here to vent and have all your caring hearts and souls helping me thru this tough time. I am truly praying that I can bring some wonderful news about my baby soon. Loads and loads of hugs.

Csab - Good luck for tomorrow, I am :pray: everything will turn out fine for you. You will be in my thoughts and please be sure to let us know how you get on.

You'll be in my thoughts tomorrow and my prayers tonight xo

I also was diagnosed high risk with DS at the 12 week scan. I don?t know what my baby?s neck measurements were but the dr?s told me it was combination of the measurement my age (26 at the time) and my blood test that gave me the high risk measurement.

I can so relate to how you are feeling right now. We chose to have the amnio test but had to wait till I was about 15 weeks to reduce the risk of miscarriage. I can tell you that it was the longest 2 weeks of my life.

A friend of mine who went through the same thing said something to me that made me feel a little better during the whole process. ?This is NOT a diagnosis just a possibility, if you were betting on a horse and it only had a 1 in 28 chance of loosing those are still pretty good odds.

I know there is nothing I can say that will make your anxiety go away until you know for sure but I will be thinking about you tomorrow and hoping that everything goes well for you.

I saw the article on the TV that the other ladies were referring to and I have to agree with what the Dr on that program was saying. A VERY LARGE majority of these positives are false positives and put the mum and dad under so much stress while they wait for these results of further testing, not to mention the risk involved with the test itself.

I wish you the best of luck with your test, the strength to deal with what ever the outcome and courage to make what ever decisions that needs to be made.:hug:

For the record my son was born healthy.

Lolly

Thinking of you today Cheryl :hug: