Oculocutaneous Albinism

[Bridg]

Hi everyone. DS Logan has just been diagnosed with Oculocutaneous Albinism.

Is there anyone out there who's child/children have this? Or know someone or someone's child/children with this.

I know it is very rare, so maybe there won't be anyone out there.

Thanks.

[Olive]

i dont hun but i hope someone can help you out. is his vision going to be affected??

[Bridg]

Olive- Thanks darl. His vision is affected at this stage, but because his eyes are still developing, it may get better or it may get worse. Vision Australia are coming to see me on the 19th November, so hopefully they will have some more info for me. I googled the OCA and got some info, but the lady at VA said she would have some more info for me.