Migraines (again)

[aussienic]

ok quick run down for those who don't know.. Isaac DS2 has had migraines since he was 3. they were random but over the last 2 years have gone to 6-8 weeks apart lasting 5 days at time

We had a bad one in January where it lasted 14 days but the pain wasn't so bad. We started Bowen Therapy and he had 2 sessions.. We actually went 10 weeks without a headache but downfall was it was bad on day 3 he had a session with Bowen and the bowen therapy didn't lessen the duration or pain

Anyways we finally got into see the peadiatrician (only a year long waiting list)

They want to start him on a drug and he will take 1 every day for 6 months. They suggested it at 4 yrs but we said no. reason: He wasn't really even having panadol every time he got a headache so we felt giving him 180 pills over a 6 month period was not helpful

Anyways fast forward to now. Our treatment plan for now is this.. He has a repeat EEG next wednesday and if or when another migraine strikes we do the bowen therapy on day 1 or 2. Day 3 is usually his bad bad day where he throws up and can't walk without help.. Pead told us to bring him to the ED when he is like that.. Hosp is over an hour away so hopefully it is a smooth trip If the bowen therapy doesn't help at all this time we are going to reconsider the meds

I am waiting for my GP to ring me back with the name of it as I forgot what it was called.. I want to research it and make an informed decision as to whether this is the right path to take

Now my other reason for this thread is this....

Last year Isaac joined a study with Griffith uni on Migraines.. I was looking up there findings today and it is possible that he could be deficient in Folate and Vitamin B.. So how would I go about talking to the GP or PEAD about that? I was thinking of ringing GU tomorrow and see if they can send me some of their study findings so I can take it with me..

I am very curious to find out if we can help him without using actual meds and just go to vitamins..

Also another interesting this I read was that Phenytoin (anti epilepsy drug) can cause folate depletion. Isaac was on Phenytoin for 6-8 months from birth due to seizures.. so now I am wondering if the 2 aren't related..

So no real point to this thread but if anyone on here has some sort of input that would be great.. Even what to say to the GP or PEAd when I ask about the folate and Vitamin B..

Thanks for reading Nic

[Miss.B]

Oh hun, I remember the last time you wrote about Isaac having the migranes. I really feel for your little chook, I wouldn'd wish migranes upon anyone let alone a small child. Big cuddles for your little one You could be onto something with the folate, I would definitely investigate this first. It could mean taking actions with this supplement rather than going to meds on such a huge scale (and still it might not help). I hope they can work out a solution for Isaac's migranes, it must be so hard to see him in so much pain

[Catastrophic]

Poor little man I read this thread and my heart dropped thinking he had another one :-( I hope they start to ease for them soon. You could just mention to the Gp that you want his Folate and Vit B tested.
xoxoxo "hug"

[aussienic]

Poor little man I read this thread and my heart dropped thinking he had another one :-( I hope they start to ease for them soon. You could just mention to the Gp that you want his Folate and Vit B tested.
xoxoxo "hug"

No Thank god he isn't due for another 2 weeks (or 4 weeks if we are on a 10 week schedule now) Will make an appointment with the GP today as DH is also very keen to look into the folate and vitamin b thing before we go with the drugs

[aussienic]

most excited i had a satisfying Drs visit

We are getting another blood test done on Isaac to check his Folate and Vitamin B levels.. The peads hadn't sent through the info from Monday so they might be waiting for his Wednesday EEG to be done but the Dr is going to look into the Medication for me. Long term short term effects as well as other possible options..

Will let you know how it all goes

[Catastrophic]

Sounds like you have a great dr!


Love MN ;-)