Nasal feeding

[Aligater]

We had a specialist app today and DD2 has lost weight again so are now suggesting a feeding tube over night. It will be our choice but as they have been talking about this for months we will probably agree. Why our little girl

[~me~]

have they given you a medical reason for the weight loss? It's tough as a parent to have to make these decisions.

[Aligater]

She has Cystic fibrosis but they cant work out why she cant maintain/gain weight

[~me~]

Go with your instincts..any decision you make is the right one.

[Schmickers]

I assume you've had some dietician involvement? It is really challenging to keep children with CF well nourished. I sympathise.