thread: Crohn's disease

  1. #1
    Registered User

    Oct 2007
    Sydney
    503

    Crohn's disease

    Just wondering if anyone has Crohn's disease? The GP thinks I may have it and I am going to see the specialist on Monday.

  2. #2
    Registered User

    Jul 2006
    Cloud nine :D
    6,309

    No, but just wanted to give you a hug!


    Cat xox

  3. #3
    Registered User

    Oct 2007
    Sydney
    503

    aw thanks! that is super nice of you

  4. #4
    Registered User
    Add Khaleesi on Facebook

    Feb 2007
    Wonderland
    5,383

    I don't have Crohns but i do have Ulcerative Colitis...

  5. #5
    Registered User

    Oct 2007
    Sydney
    503

    I don't have Crohns but i do have Ulcerative Colitis...
    Are you on any special diet? How do you manage day-to-day? During a flare up?

  6. #6
    Registered User
    Add Khaleesi on Facebook

    Feb 2007
    Wonderland
    5,383

    Are you on any special diet?
    Only during a bad flare up, If i'm admitted to hospital they will put me on a fluid diet for a day or 2 to give my gut time to rest & then it's just bland foods & things that are easy to digest till i feel comfortable eating different thing.

    During a severe flare up it's hard, i can be bed ridden because of the pain & i usually flat out refuse to leave the house. It's also when i'm admitted to hospital for 5-10 days to get it under control.
    During mild-moderate flares it's not too bad, you will feel more tired & weak at times but you also learn to cope.

    Lots of hugs & i hope it's not Crohns.
    If you don't mind me asking, why does your gp think its crohns?
    Feel free to PM me, i'm happy to answer anything i can

  7. #7
    Registered User
    Add sepata on Facebook

    Sep 2011
    Sydney
    615

    My SIL has crohn's - it's been managed by medication for the past 8 years or so, but she's currently trialling a crohn's specific raw vegan diet and has been medication free for a month or two. If you'd like I'm happy to put you in touch with her


    Excuse my sucky spelling, I'm on my iPhone

  8. #8
    Registered User

    Aug 2008
    Ouiinslano
    5,303

    My DH was Crohns diagnosed, now changed to Ulcerative Colitis.

    A vegan diet has made a huuuuuge difference to his life. Medication dosage halved, and we're up to 6 years without a flare-up.

  9. #9
    Registered User

    Jan 2009
    5,235

    My mum was diagnosed with it, but she's not convinced as she doesn't have the very severe symptoms of it.

  10. #10
    Registered User

    Oct 2007
    Sydney
    503

    If you don't mind me asking, why does your gp think its crohns?
    Feel free to PM me, i'm happy to answer anything i can
    I am currently battling through constant runs since Wednesday, joint aches and pains, tummy pains, headaches. I had a BT and my body is fighting a massive infection. I also have really, really low iron, vit D and bunch of other ones. My Hb was 130 (should be around 70) so was dehydrated.

    A few months ago I had the same thing but it was massive, squirming in agony gut/tummy pains with constant loo going but not the 'runs'.

    I get what all call 'nervous' butt, whenever I have to go on a long drive or get nervous, I can't stop going to the loo.



    Thanks everyone for your replies!

  11. #11
    Registered User

    Jul 2006
    Cloud nine :D
    6,309

    HB levels should be around 120ish mark... not 70...

  12. #12
    Registered User

    Oct 2007
    Sydney
    503

    'The typical resting heart rate in adults is 60-90 bpm' from wikipedia. And what my GP told me

  13. #13
    Registered User

    Jul 2006
    Cloud nine :D
    6,309

    Bahahahahahna - typical nurse I was talking about haemoglobin levels lol!


    Cat xox

  14. #14
    Registered User

    Oct 2007
    Sydney
    503

    hahaha I don't know how your medical guys remember all the details and bits and pieces

  15. #15
    Registered User

    Aug 2011
    Adelaide
    238

    My hubby has a blanket IBD as they said he is shown signs to have both crohns and UC but without another colonoscopy at a flare up time they couldn't 'pin point' so said he has both! He is symptom and drug free by following the Gerson therapy methods and just started ready dr David kleins book.


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