Worst month ever...

[bubno.3]

The next step for me is to see this Dr Lutjen as the pain is driving me batty.... anyone been to him?
since i last posted on August 2nd i have finally got my period day 3 today and the lead up to it and day 1 was the worst pain i have ever felt .... like contractions but not they were weird . I even called the ambulance but they recommended me staying home and ring my gp which i did and i told him the extent of pain with the endone/tramal/nurofen he prescribed wasnt hitting the sides so he said i can have 2 endone tablets 3-4 hrls to get me thru the acute stage ... so i did bloody zonked off my head but it killed the pain and the next day day 2 i only needed to have nurofen and panadol .. which was good as i had to drive to collect my babies . Today day 3 i have my babies home and this morning im still sore but its like the lead up pain ... its doing my head in. This month is the worst i have ever known it to be SO im thinking more and more will a hysterectomy fix this or if i do have endometriosis scattered ill still feel that every month still wont i?

I have no patients at all i had to take my kids to daycare today as i know my limits and today not a great day ....

Any one been in similiar situations and do you lose your patients when feeling like crap?

[juniper76]

Patience? What's that? I'm definitely with you - cranky as all hell at that time of the cycle. I know PMS for some women is a hormonal thing, but for me it has always been caused by the anticipation of the pain and then the pain itself.

I'm sorry to hear your pain is so bad again this cycle. Seeing a specialist sounds like a good idea. Hopefully they can relieve you pain without having to go to the extreme of a hysterectomy (although I know that's where a lot of endo sufferers end up).

[Lenny]

Your endometriosis only bleeds when you get your monthly AF. So without an AF (i.e. hysterectomy) i would assume that the remaining endometrial tissue would soon disappear.

Check out this website http://www.endometriosis.org.au/

Is there a cure for endometriosis?

Unfortunately, none of the treatments, with the general exception of a hysterectomy and removal of ovaries, is a permanent cure for endometriosis. In the majority of women pregnancy leads to an improvement or a disappearance of the condition, particularly during the later months of the pregnancy; however the beneficial effects are usually only temporary and many women will experience a recurrence within a few years.

How is endometriosis treated?

There are a range of options available for the management of endometriosis. It is important to carefully consider all of the options available and to discuss them with your health practitioner before beginning any treatment.Treatment will depend on the severity of endometriosis, the symptoms occurring and if having a baby is desired. Treatments can include
surgery,
hormonal management ,
natural therapies and lifestyle changes,
as well as medicines for pain relief.

The treatment of endometriosis, once the diagnosis has been made, will depend on many factors including:

1. The symptoms experienced and their severity e.g. pain / infertility

2. The stage of endometriosis and site(s)

The goal of treatment is to improve and reduce symptoms, eliminate endometriotic implants and maximise fertility if desired.

Because endometriosis is a chronic disease, the recurrence rate is high despite both hormonal and surgical treatments.

Hormonal management

Hormonal therapies may be used to suppress growth of endometrial cells in endometriosis in the short-term but also for longer-term therapy. Hormone therapies may be used to treat mild endometriosis, or may be used before or after surgery to remove endometriosis. Sometimes the hormones, in particular the Pill, are used to suppress the period with the aim of suppressing the recurrence of endometriosis as a form of maintenance therapy. For more information see Hormonal management

Surgical treatment

Surgical treatment removes the sites of endometriosis but the degree of surgical removal will depend on the degree of the disease, whether the endometriotic implants are superficial and visible, nodular or infiltrating into other organs such as endometriomas (chocolate cysts in the ovaries) or the bowel.

Laparoscopic surgery can be performed in most women but it is recommended that surgery be performed by a specifically trained laparoscopic surgeon. There are different laparoscopic techniques to remove endometriotic deposits including excision, diathermy or burning and laser therapy.

Endometriomas, or chocolate cysts, within the ovaries should be completely removed if over 3cm, taking only the cyst and preserving the ovary. For more information see Surgical treatment

Recurrence of endometriosis

Regardless of the treatment used however, some women will have a recurrence of their endometriosis. Approximately 20 per cent of women will have a recurrence within twelve months and as many as 50 per cent within five years.

[bubno.3]

Update: i have been totally pain free no meds not even a panadol for the last 2 days hooray!!!

well i dont know what it is but i reckon endo plays up whenever it friggin feels like it

Thanks for the link however xx