thread: concerned heparin and baby aspirin for next pregnancy

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  1. #3

    Oct 2005
    A Nestle Free Zone... What about YOU?
    5,374

    Hello Sunshine and welcome to Belly Belly. I am sorry it's under such sad circumstances - I am sorry to read of the loss of your daughter.

    It's very true that we don't know all the reason for losses and many many many women lose babies and there is no cause known.

    I am one of those women too. I said goodbye to two daughters and one son before I gave birth to Imogen in October last year. She is my 5th live child.

    My tests all came back borderline - there was great debate over weather it was antiphospholipid syndrome, lupus you name it. I have all the symptoms but my tests are inconclusive. It was decided that I clearly have "something" that we don't yet have a name or a test for. None of my babies had abnormal chromosomal karotyping.

    I commenced on clexane from a bfp at 10 dpo. I commenced on asprin prior to conception, high doseage folate and prednisone. Prednisone is a steroidal drug - I just had a very very strong hunch that I needed it and it does help some women.
    At 26 weeks and 5 days I developed severe upper right sided shouldertip pain. It was excruciating. I was admitted to hospital and my platelets (the part of your blood that helps blood to clot) were critically low, my kidneys were beginning to fail and my liver functions were burko. I was transferred to a tertiary hospital where the surgeons believed I had HELLP syndrome (severe preeclampsia) and the medicos believed I had a "severe autoimmune episode of unknown name". I was given steroids (by this time in my pregnancy I had been convinced to wean off the prednisone I was on against my better judgement I did this.) to help my daughters lungs develop. At 26 weeks her chances of survival were only about 50%. I was having bloods done every 2 hours - and I was nursed in high dependency. About 6 hours after my first steroid injection my platelets went up and my kidney function improved. Just a coincidence! Harked the surgeons. AHA! Harked the medicos - it's autoimmune. This continued on and off until I reached 27 weeks and 5 days. I was told she needed to come out as I was dying. They were afraid due to the very very scary level of my platelets and my liver had begun to bleed. I said I need to get to 28 weeks - so she was then born at 28 weeks.

    As I write I have the most beautiful daughter sleeping peacefully, healthy (except for constant colds. )

    It is scary being on daily injections - but it does work for a great number of women. Given your experience with "severe preeclampsia" I would leave no stone unturned. I would investigate the autoimmune thing. I will include a link for you that you can look at a thread on this. The thread is HERE

    I know how sad and how confused you must be feeling - I felt like that too. But the clexane/asprin regime is a fairly standard treatment for women who have had stillbirth or recurrent miscarriage.

    You might like to join the TTC thread HERE

    Big hugs my love as you heal.
    Last edited by Inanna; August 19th, 2008 at 11:35 AM.