Hi girls, quick update. I'm at my sisters place, waiting for my sisters baby to be born. Very exciting! Will let you all know.
Bella
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Hi girls, quick update. I'm at my sisters place, waiting for my sisters baby to be born. Very exciting! Will let you all know.
Bella
Bella - How exciting!!!
sounds very exciting Bella!
Vic: Would be so cool if CJ's first word was "knees"! LOL! So pleased you are having such a good time and wahoo @ CJ going back to her normal routine after 2 days :)
Naomi: Congratulations for BF 6 months :) It really is an awesome effort. I'm glad you've let yourself off the hook... and particularly glad you are no longer devo ;) But seriously, sounds like you've made a fantastic decision for your family, even through enormous pressure (even though most of it probably was from yourself) - that's a huge win, mate.
Bella: Yay for being there for your sister! Heard the great news of Trista's birth on FB - congrats @ becoming an aunt again :)
DH's niece turns 18 in November and is having a party - the theme is pink and black. Yesterday we went shopping and found the most gorgeous dresses for the girls! My cousin is going to lend me a hot pink full skirt (woohoo!) so we are going to be a family of stunners, LOL.
Had a great breakfast out yesterday with mum and SIL and nieces (Natty and her cousin were both at childcare - it was great, LOL!) and then the shopping expedition, and then DH's 9yo niece came over and looked after P while I cleaned the house a little. Today we are off to playgroup for the morning then possibly catching up with a couple of my nieces this afternoon... school hols are busy times ;)
Hope you all have a great day. I am personally thrilled that the weather isn't going to be quite as crap as it's been of late! xx
Selfish Post.........
I think I am going to break down, I dont know how much more worry I can bear in relation to Bailey. Our paed rang today as it appears Bailey has 'developmental dysplasia' in his right hip. I am very concerned as it appears that treatment is much more effective if caught early and as we are nearing the 6 month mark some options may not be avail etc. Our paed advised that unlike congenital dysplasia which is picked up at birth or 6-8 week checks like CJ (Bailey was checked at these times and at his 4 month health check and nothing was detected) the developmental dysplasia occurs as the hips etc develop so there was nothing to identify earlier (If I have heard him correctly I think have this right, the whole conversation is now an emotional blur in my head now). Anyway, I need to take Bailz for an ultrasound on his hip asap (he had skeletal xrays which picked it up as you may remember I had to take him for xrays re his gross motor skill development) and then pending that outcome, then off to the orthopedic surgeon. I am devastated as I am concerned that this will further hinder his gross motor development issues and also as he is almost 6 months am concerned how agressive treatment might be if needed. I just want to wrap him up in cotton wool and run away. I just posted a similar post in the hip dysplasia support thread too
Vic - Now I know how heartbroken you must have been when CJ was diagnosed. I cant stop crying. I can only hope that what the Paed has seen in the xrays is not as bad as he thinks and the ultrasound is clear or that its mild and easily treatable. I have been having a look at info on line and am completely freaked out as it seems to indicate that for older babies surgery, traction and casts are common as well as harnesses/braces. How can my little boy cope with that?
I have had a massive cry with DH, I feel like I just want to punch someone in the head as I am so angry, distraught, worried. I know lots of people have much worse to contend with but currently it feels like the end of the world
Naomi
x
:hug: naomi u definately need it :hug:
Hugs Naomi
i don't know what to say hun - i can only imagine how stressful this is for you. thinking of you DH and Bailey
BG
Oh huuuuuuuuuuuuuuuuuge hugs to you Naomi. That sucks - for want of more eloquent expression. Cry all you need to. Hubby's have big shoulders for a reason.
Oh mate. :hug: So sorry you are going through this.
I don't want to sound trite, and please forgive me if this seems insincere, but Bailey is going to be great no matter what because you are there for him. I do TOTALLY mean that. Not that that changes your worry for your little guy, and for that I am so sorry. It must be beyond stressful.
We're here for you whenever you need us. :hug: xx
Oh Naomi!! That is terrible! No wonder it feels like the end of the world, it must be just awful imagining what he is going to go thru with treatments and stuff. He is so lucky tho to have two loving and incredibly strong parents, to help him thru. It may be the hardest thing that you ever do Naomi, but I am sure you will be the rock that your little boy clings to, when he needs you, you WILL be strong for him, because we all know how much you love him. And at the times when you are at the end of your tether and you don't know what to think, we will all be here waiting to listen. If you can imagine arms holding onto arms, which all link back into a circle, that is what the women here are for you. We are here to catch you and help as much as we can, even if only by listening.
:grouphug:
Bella.
Naomi - Fingers crossed for you and Bailey. I know for me the hardest bit was the waiting to see the orthapedic specialist, and once I saw them and they explained it all was so much better. Also remember it is much harder for you than it will be for Bailey - they are so adaptable babies that they just cope with whatever is thrown at them - and it is us mums and dads who get distressed by it all. Don't try to second guess the treatment either as all babies are different and grow at different rates so the age of the baby isn't necessarily an accurate indicator of what the treatment will be - it will be so hard for you waiting to hear what has to be done but I am sure like me once you know what is going to be done you will feel a whole lot better. It is so natural to want to find out as much as possible about what the possibilities might be - but really if you can I would try not to look into it online because all individual cases are different and you might worry yourself unecessarily. My advice would be enjoy Bailey as much as you can until you get to see the orthapedic surgeon, especially naked or nappy only cuddles because they might put him into a brace like CJ's for example the day you see them and I really missed her chubby little legs when she had it on full time and also enjoy bath time as much as possible.
Also my GP who gave me the referral made it sound much worse than it turned out to be when went to the hospital, she only sees a certain number of cases whereas at the hospital they see an awful lot of babies with hip complaints - so it could be similar with your Paed.
As for hindering his other skills, if CJ is anything to go by you might find while his lower half skills will lag behind if in a brace his top half improve as CJ has excellent head control compared to other babies her age in Mothers Group and I put this down to the additional tummy time I gave her due to brace and changing nappy challenges.
Anyway CJ and I are thinking of you and Bailey and keeping everything crossed that it turns out to be something that is easily rectified. (Oh and CJ even smiles at Mr Brace when I go to put it back on her these days - babies they truly are amazing). Feel free to PM me or message me on facebook etc if you want to chat about it at all.
Thanks guys, I had a bit of a cry reading your messages of support - they really mean alot. I think sometimes only another mother can understand how much we worry and stress over our little ones. We are off to have the ultrasound tomorrow then back to the Paed on Wednesday and then to the Orthopedic surgeon from there. Vic - you are right, I just want to talk to the Ortho surgeon and find out exactly what this means for Bailey, but the whole process takes a few weeks. If I thought the IVF 2WW was tough, I think I am going to find it was easy compared to this.
We had a rough night, neither myself or DH slept much, we ended up taking Bailey to bed with us, just needed the little guy to be close by. We have decided not to tell our families yet as a) We dont really have enough info yet and they will ask a million questions we cant yet answer, b)We dont want to have to report in every 5 mins as to whats happening and c) my Mum with be overly sympathetic which will do my head in and the IL will be at the other end of the spectrum and not understand our worry with their 'she'll be right mate' but then bombard us with their opinions - frankly I cant be bothered putting any energy into anyone other than Bailey and DH currently. I know this sounds completely irrational as it seems this way to me even as I write it, but last night I was thinking stupid things like 'is this our punishment for messing with nature' eg our infertility - DOH, so annoyed at myself for thoughts like this entering my head. I told DH and he said he had been thinking the same thing. :o Then I felt guilty as I was wondering what this means for our 7 day Gold Coast trip which is only 2.5 weeks away - obviously our sons health comes first but I was bummed that we may need to cancel that (and I stupidly didn't take out travel insurance). Sorry to rave on, DH is at work and I need to talk this out so typing it out is helping.......
I rang our Womans and Childrens today as I was trying to organise Baileys Physio appt for his gross motor development delay and the stupid woman nearly caught my wrath (I'm still looking for someone to punch in the head) as she told me off for only leaving my mobile number "as it cost the hospital money it doesn't have to call mobiles" - FFS woman, just make my frigin appt and get off your high horse. I always have my mobile in my pocket unlike my landline as you guys will be aware if the phone rings while you are at the change table, feeding etc, you ignore it if it is not right by your side. At least she gave me something to direct my anger at LOL. I still have my sense of humour.
Vic - I will definately send you a message later, I do have quite a few questions and would love to pick your brain, thanks for the offer, and Kat - you summed up my feelings exactly - "That sucks", however there were a few expletives between 'That' and "Sucks' :angry:
Better go and do something productive!!!!
Naomi
PS Bella - cant wait to hear about your experience at your sisters birth :)
Aw sweety. :hug: Will be thinking of you at the u/s tomorrow. I am one for filling my head with awful thoughts too, so won't tell you off... ;) Understand not wanting to tell the family too. Makes sense to just wait and see what Bailey needs, if anything. My thoughts are with you. xx
We braved the shopping centre today at Castle Hill with Natty's little mate from playgroup and my friend (her mum) for a coffee. The girls had a ball dipping their hands in the fountain! Played and squealed for ages. Then we had our coffee and the girls were all over the place. It was a bit embarrassing! We were those parents with the out of control children... We didn't stay long - it was a bit of a nightmare. At least the girls had fun.
Natty has been very headstrong in choosing her clothing of late. Today she needed to wear a dress (with no sleeves) and refused to wear a jacket (it's only about 22 degrees). Then she found her new sandals and decided she'd wear those even though it turns out they are still too big for her.
Phoebe has had a disruptive couple of days, but hopefully tomorrow will be more relaxing for her. I feel a bit guilty as she doesn't really have many sleeps at home, nor much of a routine. Hopefully she still feels secure enough. She is certainly a happy little bub most days.
Hope everyone else is doing ok.
Naomi - i'm a wreck everytime i think of what might be with E and her eyes - and that's something we already knew was a maybe - and probably won't result in much other than patching or glasses - so i can only imagine what you're going through hun! yes, it's silly to be thinking about whether you messed with nature by using IVF - but i've had the same thoughts! you know though that's not the case. if it wasn't meant to be, science would not be able to create life the way it does! we're just blessed to live in a time when it is possible hun. and Bailey is blessed with parents that wanted him so much that they went through this hell to have him, and will go through whatever else comes up, by his side, and offering him every ounce of strength they have
AFU - not much happening. E has stopped sleeping through which is doing my head in. for a while she was waking at 5 when DH was getting up for work - no drama - at least his sleep isn't being disturbed - but it's now back to 4am wake up's - and i'm stuggling to keep her quiet and get everything done so that he doesn't get disturbed... i think it's a growth spurt as she seems to be really hungry and really tired all at once. ah well, thems the breaks! she could do with some growing!
right now i'm feeling like absolute crap i cant stop crying
DH and i have decided to separate well if it was up to me then i wouldnt want this to be happening but i cant put up with being told to leave and then him changing his mind it was just hurting me and i couldn't do it and he told me he's in love with his ex and i cant be with someone who doesnt have the same feelings for me that i do for them
he picked her over me and im shattered im staying with my mum at the moment
:crying:
its the best thing for Jamie he doesnt need to see us fighting
Oh Sweetheart, thats heartbreaking, I dont know what to say except look after yourself and Jamie x x x
We are here for you :hug:
Naomi
x
Ah Jacinta that's awful!!! If he doesn't love you like you love him then you are best being free to find happiness somewhere else. Good on you for knowing that it's not ok for him to treat you less than as a princess. But what a time to do it hey.. So sad for you sweety. I hope your mum is a great support and we are all hear for you
Bella
Well I had kinda put off telling you all about my sisters birth cos with all the saddness it didn't seem right, but there may not be a right time so I will anyway.
Pip called at about 5pm on Sunday to say things were begining to happen but not in a hurry. So I asked friends who were over to leave (typical isn't it cos I rarely have visitors), packed up J and headed over. I bought the family dinner and helped get her kids to bed cos it felt like it was still pretty slow at that stage. At about 9pm things got a bit more intense and her hubby set up the birth pool in the lounge room and she txt her other support people. there were 6 women plus one man. Lots hey, but she likes a party atmosphere. 2 were to looks after her kids and mine. one was her doula, one was me, 2 were there to photograph or video the event, plus Alan the midwife. So slowly people started to arrive and pip got into the bath. Her contrax kicked on and we helped her by rubbing her back and keeping her comfortable. The contrx slowed again and she got up and went for a short walk outside. by 3.30 they were slowed to 1/2hrly so we all laid down and so did she. at around 5.15ish they were getting intense again. She began to contract really regularly and the kids woke up. One of her women who was looking after the kids had to leave and so at about 8.30 I had to start helping with that. She was really working hard by then. The kids were desperate to go into the pool by then and so they did and I had Jemima strapped to me in a wrap,but still managed to be in the room for most of the time. At a little past 9 the midwife and doula said "get the kids!" so I did. they were being horrible little rats and so got a lecture at the door about calming down and chilling out when we got the call "Hurry!!!!!" When we entered the room again, pip was squatting and 3/4 of the head was out. she sat like that for 30-40 secs before her gorgeous little bub came out with a rush! Born 7p5oz Trista Grace was 1kg lighter than Pips other kids and is sooooo tiny! At least in comparison to her sister and cousin Jemima. It was lovely! I left to go home and have a rest and when i returned later I found out she had had a small PPH and had needed to have some fluids IV and oxytocin. So being a little concerned for her overnight, I stayed with her for the night and kept and eye on her and just helped with the kids in general.
Today I am gonna pop back over and give a hand with the washing and stuff and generally help out.
Miss Jemima is calling so gotta go
Love to all our ladies who are saddenned today. My thoughts are with you
Bella
ps........... Jemima is celebrating 4months earthside today!!!
Yaaah Jemima for hitting the 4 months milestone
Bella - glad you shared your sisters birth story - for every bit of sadness we need a bit of happiness for balance so I was pleased for the distraction to read it :) My thoughts too go to our Mums with Angel babies...... Re Pips delivery - How exciting, sounds like a busy birth with all those people :) Congrats again to your sister!!
Well about to head into the city for the ultrasound - of course Bailey is having an extra long nap today of all days so I am going ot have to wake a sleeping baby - DOH. (He was having nightmares last night and kept waking up screaming or crying, I think he is definately picking up on our anxiety)I am hoping the sonographer gives me some details, I know sometimes they wont and will wait for your referring Dr to give the outcome but I am going to be pushy if I need to. I'm nervous as hell and on the verge of tears so I need to suck it all up and just get on with it
May not be able to drop in later as my Dad is down from Broome so we are off to see him this arvo - so if you dont here from me it doesn't necessarily mean bad news
Hi to everyone else, I'll be good and get on some persies next time I promise
J - hope you are going ok mate :hug: again x x
Naomi
x
i agree with Naomi - it's nice to read good news stuff Bella! was that the middie Alan from BB? sounds like it was a long night - but a lovely experience for you all
Naomi - thinking of you hun - hoping the sonographer gives you a bit of info so you know what you're up against
AFU - sleep regression happening - so tired. i don't mind the frequent feeds - i get that bit - but why does she feel the need to play for ages during the feed - drink, sleep - EASY! or so you'd think.... apparently having a looooong breather to look around (in the dark!) is appropriate - have to be awake at least an hour mummy!
Jamie is 5 months today xox
Happy 5 months Jamie. Hope you are doing ok Jacinta.
Sending love all 'round coz it seems there's quite a few in here doing it tough at the mo.
:grouphug: :grouphug: :grouphug:
Big hugs eveyrone!
Naomi - I can only imagine how you are feeling right now. I hope that the ultrasound shows things aren't as bad as first thought. Thinking of you today.
Jacinta - I am so sorry. Big massive hugs. Happy 5 months to Jamie!!
Bella- What a wonderful birthing experience! I always think about how I might like to be there for my sisters when the time comes, but I spose that all depends on them.
Hi everyone! I've been pretty busy since being back from our weekend away. I have missed alot. Sorry I wasn't around.
We had a fantastic weekend. The wedding was beautiful. My friend looked absolutely gorgeous and her Hubby is a pretty awesome bloke. He came over and had a bit of a pep talk to DH just before it all started. He was so nervous and white as a ghost... I was a little concerned, but it all went without a hitch.
The B&B we stayed at was lovely. We had some time in between the ceremony and the reception so we popped open a bottle of chardonnay, and I was quite happy after 4 glasses. I was a little worried that I might be a little too happy, but I took it easy at the wedding.
We didn't know anyone but the bride and groom, so we didn't stay at the reception all night. We went back to our B&B and got some drinks home delivered ( loved that!) a pizza home delivered ( haven't had anything home delivered in well over 2 years so it was a bit of a novelty) and had a romantic night. *blush*
Did a bit of shopping around the surf wear factories (had to buy something for the kids), had breakfast on the beach, and just took our time getting home. It was so relaxing and weird. Weird because we haven't been just hubs and I for 3 years. I loved it!! Hubs missed the kids after 4 hours. haha.
I expressed whilst down there and I now know why Allira is so chunky. Each time, I got at least 200mls from each boob without trying too hard. She's drinking massive amounts!! No wonder she doesn't feed overnight. Here I was worried about my supply a little, because I just feel empty all the time. I do have big boobies though, so maybe I hide the milk well.
Ok that's our weekend. LOL.
I've been trying to clean a bit since getting home and haven't had much time to get online. We went to playgroup yesterday, and then Allira had her osteo appt yesterday afternoon. Her head is nearly perfect which is fantastic and the osteo is really really impressed with how far she's come. We have one more appt this year and then we take it as it comes... but the osteo doesn't think she'll need to see Allira much at all anymore which is great.
Ok enough from me. I'll pop back on later if DS lets me. Thinking of you Naomi.
xxoo
Jacinta: Aw, mate I'm so sorry. Hoping you can chill out with your mum for a bit and look after yourself. We are always here for you should you need to talk about things.
Naomi: Thinking of you today, mate. Hope the u/s goes really well and that you get some answers very soon. Enjoy catching up with your dad and we'll look forward to hearing from you when you get an opportunity.
Bella: Sounds like your niece's birth was great! I think you are awesome for supporting your sister and her kids so generously, particularly with a little one to look after... one who's not giving you a whole lot of sleep by the sounds. Good on you - I'm sure your sister really appreciates it.
BG: Bummer about the wakefulness overnight. P has always taken her sweet time during night feeds so I know how it feels. Fortunately atm she is only waking once or twice a night, so I think I've got it easy. I hope you can get a nap in sometime today.
Nicky: So glad you had a great weekend away! It sounds just magic.
I too am thinking of you girls with angel babies today. Peace. I will be lighting a candle tonight.
Little Phoebe is calling. We are headed out to the shops to buy a bunch of flowers before collecting Natty as her favourite teacher is leaving today :( Will pop back on tonight, I reckon.
Hi girls, gosh I've missed you all so much. Things have been pretty full on for Kyson and I lately. My best friend came down with her 9 week old for my birthday party, and my sister flew back from Austin, Texas (although she had only been there for 2 weeks with her boyfriend, before that she was living in London for almost 3 years). I've been doing a few things with my sister because I missed her so much. Plus, Kyson has been sleeping really badly so I've been pretty exhausted.
I came on and read all your posts today and am determined to get a good post out because so much has been going on with you all! The small fry has just gone to bed, so fingers crossed...
Naomi - Oh sweetness, my heart is going out to you. I just can't imagine how tough ti must be for you right now. I hope Vic can give you lots of good information. It's amazing how well babies cope with trying situations though. When I met Cerys I was amazed at how happy and content she was even with the brace on. She is a little trooper and was fantastic on both her back and her tummy. I hope the ultrasound reveals some good news today, and that things aren't as bad as you think. Bailey is a gorgeous little boy, and no matter what happens in the coming weeks/months, just remember that he is a wonderful treasure that will thrive on your love and devotion no matter what diagnosis you receive today. Much love and support for you babe! xoxox
Amy - Your shopping trip sounds like it was fun albeit a little crazy, lol. I can just picture two little girls making havoc together, but having an absolute ball. Especially when you add a little bit of water into the equation, hehe. Kyson doesn't have much of a routine either. We just kind of go with the flow. I figure that each approach has it's benefits. A routine might make most normal days easier, but I've heard that babies in strict routines have lots of trouble as soon as you change the routine, which would make going out pretty hard. Kyson is used to going out and being out and about during nap times, etc, so it doesn't seem to upset him or make him cranky. He just takes it in his stride and naps when he can :)
BG - Gosh I hear you on the sleep regression. Kyson has been sleeping terribly for the last few weeks. He wakes after about an hour to an hour and a half after feeds, and I'm constantly trying to keep him calm and quiet until I finally give up and feed him. I've tried to just settle him back to sleep without feeding, but he screams for a while before he finally falls back into a really restless sleep. And even then I can only keep him asleep by holding him and rocking him when he stirs. Plus, after all that works he wakes up after 20-30 minutes anyway still wanting to feed!
Last night was the first night in ages where he went 3 hours between feeds again, and didn't stir constantly in between. And the little gem slept another hour and a half after his morning feed so I was able to catch a bit of extra zzzz's. :) Good luck!!!
Jacinta - Oh honey! I don't even know what to say :( You must be going through such an emotional turmoil right now. It seems like things were so different last month, and now this! Just because you are crying does not mean you are not a super strong person, because I think you are showing an enormous amount of strength right now. You are a wonderful mummy and Jamie is very lucky to have you!
Bella - Happy 4 months to Jemima! The birthing experience sounds like it was wonderful. It sounds like your sister had a wonderful and supportive group of people to share her daughters birth with her. It's a shame that her kids started playing up, but I guess that it's better than if they had been scared of what was happening. And in the future they will hopeful treasure the memory of being in the pool while their mum was labouring with their sister. I hope you get to have a few cuddles between helping her out with the housework ;)
Vic - Sounds like you and CJ are having a wonderful time in the UK. All your photos on facebook are fantastic. Your family must be thrilled! Good to hear that CJ has settled back into a normal sleep routine. It's amazing that a little baby can adapt so quickly! Although, 2 sleepless nights probably didn't feel so quick to you, hehe. My sister sounds like yours because my sis never wants to have children, but she absolutely adores Kyson. She even loves to hold and cuddle him (but is happy to quickly give him back if he fills his nappy hehehe). Her boyfriend said that he has never seen her look at anyone the way she looks at Kyson, except when she looks at him, awwwwww! Have fun shopping on Monday. I went shopping with my sis yesterday. I am shocking at shopping for myself, but she is great to shop with. Got myself a couple of tops and some new jeans that actually fit me, whoohoo!
Kat - I hope Ivy's sleep patterns are improving. See my response to BG to hear about my fun nights too, lol. Maybe the floor activity that she is trying to do (and getting frustrated with) is a new developmental thing that is causing the sleeplessness. Hopefully she'll work something out soon and then get back to nice sleeping during the night and napping during the day.
Cathy - Kyson is getting even better at picking up his food by himself everytime he eats. He had cauliflower the last couple of days and it was so cute.
I'm looking forward to seeing your professional photos. Your kids are so photogenic! Laura looks like she just adores being in front of a camera ;)
Nicky - I'm glad you had a good weekend without the kids. I think it was a super idea to skip the end of the wedding and have some romantic time with your DH :)
Wow, I can't believe Kyson is still asleep. Maybe I should take advantage of the situation and go and eat some lunch! Love to you all! :hugs:
Quick post to update re our ultra sound. I waited for the films (so I can read the diagnosis for the Paed seeing we dont go back to him until next Wed, the sonographer was a bit of a toss bag - told me my job was to amuse/distract Bailey when I was asking him questions!!!??? Anyway, this is what the diagnosis says (I only really understand a little of it)
The coverage on both sides is good, the right being measured at 77% and on the left being measured at 76% (I take this to be fantastic as a Vic told me last night anything above 70% is considered in the normal range so this is good news]The right ALPHA angle was measured at 77 degrees and at the left 64 degrees. While the coverage is good, the acetubular margins remain quite rounded bilaterally. While this can be associated with immaturity, it is quite prominent given Bailey's current age. (This bit I dont understand - Vic does this make sense to you, or Bella can you or your DH put it in laymans terms for me?)
So while I know parts of it sound promising, I really dont get the last bit so that could be crap news, will try to find someone to explain it to me as the Paed is away until next Tuesday, if anyone has any idea - let me know
Naomi
x
Will be offline for a couple of days - but just a quick reply Naomi, not sure what it means about the angle bit, but I know that the reason we still have CJ in a brace at night is because the edge was still quite rounded and needed to be more angular - not sure if is the same as Bailey but they showed us on the ultrasound and just said would like it to be more angular (showed us a pic of a normal one too). So if is a similar thing and considering Bailey and CJ are similar in age especially if you adjust because Bailey was early than if a brace can improve the angle in CJ's joint then perhaps a brace for only part of the day could work for Bailey too. The coverage does sound excellent. Anyway fingers crossed for you - my totally unmedical opinion is that the ultrasound sounds like is mainly good news.
Thanks so much Vic - one of the girls from the Hip Dysplasia Support Group pointed out that a variation of Dysplasia is 'Antabular Dysplasia' which could be what reflects the finding from Baileys u/s. I looked into it a bit and it seems the treatment is the same or similar to the 'regular' dysplasia (depending on what site I look on, some suggest its exactly the same thing - ahhh the internet, helpful but contradictory at the same time :o). Anyway, I guess it depends on how severe Baileys results are viewed but it seems that some kind of bracing, plaster or surgery is likely :( Perhaps like you mentioned that when Baileys 'adjusted' age is taken into consideration it wont be quite so bad? The thing that keeps freaking me out is that I continually read that after 6 months surgery and a spica cast for 3+ months (a cast that can be from nipple to toe) are commonly used, followed by bracing. Man I need to stop looking and websites and speculating, but I need info, its one of my coping mechanisms. Bella helped me out today by putting some of the medical lingo into laymans terms for me and pointed out that as Bailey is young/little he still has plenty of time for bone growth (thanks again Bella for taking the time to explain some of the info for me). Its really good news that his coverage is good, so hopefully we learn the other bit is good too.
All in all - I am still none the wiser as to what it means for Bailey, but I am a little more info'd up
On a side note Bailey has thrush again - DOH, I was talking to the Pharmacy assistant about it recurring again and asked if it may be from him putting his toys in his mouth etc that has brought it back and do I need to wash them (wasn't sure if the thrush bug could live on them as thought it would only survive in a warm moist environment), anyway she said to wash/sterilise them, so I did and I have melted most of his toys in the microwave steriliser - DOH!!! I have to laugh! After gymbaroo tomorrow I will go to Big W and see if I can find the same ones to replace or at least get him some new ones!! Stupid Mummy hehehehe :rofl:
We just got home from visiting my Dad before, got some great photo's of him and Bailey which I will post on FB in the next day or so, he'll be back for xmas so will get to spend more time with him. He was passing through as flew down from Broome to help some friends who were affecting by the storms a few weeks ago (they live in the country - about 600kms from here), they lost a fair bit of house, shed, and other buildings on their property so Dad was helping with the rebuild.
Nicky - thanks for the support :) Sounds like you had an awesome weekend away, so glad you enjoyed it, its nice to have some 'couple' time. My Mum was having Bailey next Sat night for us overnight but have decided that at the moment I dont want to be apart from him so will take her up on that offer once all this dysplasia stuff is sorted out one way or the other. Wow at expressing 200mls - way to go, thats frigin awesome - you have some serious milk production there!! LOL :)
Krystie - great to hear you have had some visitors from afar, also sounds like Kysons BLS are going really well. I am going to start adding meat into Baileys diet in the next week or so, he has only really had Fruit/Veg and Yoghurt so far. Thanks for your lovely post :)
J - Happy 5 months for Jamie. Hoping you have some great support with your Mum
Bridg - how are you? Thanks for your kind message on FB, I really appreciated it you sweet girl :)
BG - Doh re the sleep regression, what is it with the bubba's waking so early? Bailey was wide awake at 3am chatting (felt like yelling in the quiet of the morning) to himself the other day and awake at 520 this morning - Arrrrrgggggh. I thought with DLS starting they would give us a bit of a sleep in!!
Amy - Bugger re the favourite teacher leaving, hopefully Natty doesn't get a dud replacement, good teachers are hard to find!! And thanks for your sweet kind words too :)
Cathy - I agree, your girls are very photogenic - How are you making all those collages up on FB btw? They look fabulous. I noticed some of CJ too....
Well, I better go to bed, it has not been a good week for sleep so it seems stupid not to try to go and catch some Zzzzz's while the little guy is sleeping
Naomi
x
OMG!!! Do you girls realise that our thread link was on the second page today? I have never seen that before. It is because no-one has replied since the 15th..... I am guessing that as it is the w'end all of you girls have been busy with hubbies and haven't had time to write.
I am gonna do an 'all about me' post, just cos
So DH has just finished a run at work and being on that course of 14days straight. He finished on Friday night. Suffice to say we were both pretty knackered by that because neither of us could relieve each other. Jemima has been settling to better sleep overnight, usually just waking once at around 1:30. However it has mean she has had several days where she has gone back to not sleeping at all during the day. Yesterday she literally didn't sleep at all until about 3:30pm and when i tried to lay her down about 5mins into the sleep she woke up. Poor little poppet was rubbing her eyes and quite clearly tired, but there was too much stuff to look at. Today however she woke up at 2:30am and didn't settle properly till 3:30. then woke again at 5 and went back to sleep in my arms till6:30 at which point DH got up with her and let me sleep in till 10am and she went to sleep at that point.
So all in all she is having a good time but the days make it more difficult. She is also quite obviously teething. She has two little white lines across her bottom gums and is chewing on everything. Her cheeks look rosy at times two. Not that anyone else can see the rosiness but DH and I. We can see it because we r so used to what her cheeks normally look like that the slight blush on them is obvious. Anyway she has had a couple of really miserable days where she has been in pain. Panadol helped but didn't eliminate it completely. She is still so little that alot of the teething rings that they make are just a bit too heavy and/or she just has difficulty maneovering them into her mouth. Her hand eye coordination is coming along but she is still so young, too young almost to be teething. I have read that they can start this young tho. Anyway she is pretty happy for the most part despite that. People are always commenting on how content she is. I can put her down and she just keeps herself amused looking at things. She is therefore simply ecstatic if I am looking at her or talking to her and that is very sweet! I just love her to bits!
Anyway I had better go spend some quality time with DH and post this so we arn't so far down on the list! Love to you all
Bella
well nothing much going on here except im hanging at mums and yesterday jamie and i had the pleasure of meeting krystie and kyson we went to the baby expo yesterday well with her having trouble getting in and us having trouble getting home jamie was really well behaved and patient and we had a nice day i bought jamie a hat ready for our meet in nov and a few nappies almost full time in cloth still 2 chicken to do it when we go out lol
it was a nice day out and i've finally met someone off BB lol its taken me a while xoxo
Bella - our womans and childrens hospital make and sell the most awesome teething gel, all the SA Mums swear by it, I used it when Baileys first tooth came through and it works a treat. Want me to send some up for you? I highly recommend it. Unlike the reports about bonjella, this stuff is safe, I have put some on my gums and it just numbs them, giving instant relief and you can apply it 4 hourly. Its like a thick syrup and I just put some on a cotton tip and rub it on the gum where the tooth is coming through
Naomi
x
PS - If anyone else wants any, let me know, one of our local chemists sell it on behalf of the hospital so I can grab it easily and send off if anyone needs some :)
Finally we have a physio appt to get working on Baileys gross motor skills - first appt is Nov 11th (still over 3 weeks away DOH). I think he is the only baby not rolling (and the first one born :o ) Poor little under-developed man **sigh** Oh well, at least I'll be the last to have to baby proof my house :) On a happier note he is starting to hold his head up from tummy time - I know everyone elses babies have been doing this for months, but this is a big milestone for my little pipsqueak!! Yaaaah!!
2 more days until we find out more from the Paed (how slow is this time going!!) - Sean has taken the day off to come with me which is good as I am worried I'll get all emotional and forget important info that the Paed may tell me
Hope all the bubs are well, Love the video of Kyson laughing Krystie - that made me laugh, Bailey cracks me up when he laughs like that, honestly its just the best thing isn't it? I have found a few ticklish spots that make him absolutely cack himself, that and the tickle or kiss monster work everytime :)
Naomi
jamie isnt rolling yet he prefers to be upright so i cant even try to get him to roll so dont worry and he was born right on time xox
Allira's not rolling a heap yet. She does it when she feels like it. LOL
Good luck with the appt Naomi.
Allira's not cackling yet either. She has started pulling herself up her knees for longer periods, but no arm action yet.
Krystie - Kyson is adorable! That video is just gorgeous!!
Hi everyone! Just a quick post. Will be back tomorrow. We've been really flat out here.
Hi all. Sorry I haven't posted for a bit - I have been reading but find I keep getting interrupted.
Krystie: Yeah, I suppose no routine isn't really that bad. Phoebe is a lot more flexible than Natty was. I wonder if that's just her personality or the fact that it's just the way she has to be. I too think that video of Kyson is just magic! What a little cutie.
Naomi: LOL @ melting Bailey's toys! Hope his little mouth is getting better. Phoebe's not rolling either. She's only ever rolled about 3 times from tummy to back and I reckon they were flukes and just the effects of gravity, LOL! I'm sure I've mentioned before, Natty didn't roll properly til she was about 9mo, so I'm not too fussed - she crawled and then walked in her own time. I have no reason to believe Phoebe will be much different, except that she seems to not mind being on her tummy as much as Natty did. Bummer about the wait for the physio. But I'm sure it'll be worth it once you get there. Did you find that jumping thing you were after for Bailey?
Bella: Good that Jemima is sleeping better overnight, although it makes a long day when they don't sleep. Sorry about J's teething - hope they come through quickly and she gets some relief soon.
Jacinta: How was the expo? I haven't been to one before but have been tempted a couple of times. What nappies did you buy? My girls are often in sposies to go out too, mainly because the nappy bag's just not big enough for two lots of cloth plus clothes etc. Need to invest in a bigger one, I suppose.
Nicky: Phoebe mainly just laughs at Natty. Sometimes I can get her to laugh by tickling or laughing at her, but she really only lets go when Natty entertains her.
I am so knackered. I'm finding myself going crook on Natty all the time and I hate myself for it. I've been keeping busy, trying to eat better and exercise. I had hoped it'd make me feel more awake but so far hasn't.
We got a big box full of hand-me-downs from my niece yesterday and Natty is in dress-heaven. She's been SUCH a girl lately, desperate to wear dresses and pretty shoes. Quite impractical, but kind of cute.
Ok, little one is awake and slightly larger one is telling me I HAVE to help her, so off I go.
I still find wearing pretty dresses and shoes impractical (especially heels LOL) but like Natty I would be in dress heaven too with a box of hand-me-downs hehehehe:
I was reading some of my previous posts and realised I have become a bit "Woe is me/us" LOL, I have told myself to "Toughen Up Princess" and get out of my downward spiral hehehehe :)
Swimming was great fun this morning - Bailey was smiling and talking (actually, he yells now) up a storm, hilarious!! His swimming teacher is in love with him and steals him for cuddles all lesson, he loves it, he is such a ladies man already!! I bought him some bathers for QLD so we put them on today - he looked too cute, will post a pic on FB :)
Naomi
x
Hi Girls'
Just quickly, Naomi I would love to have some of that teething relief you were talking about. I have a few options but they arn't seeming to help alot.
I took Jemima to the CHN yesterday for her 4month stats, I had been doing the measuring myself, but was a little worried cos her head is sooooo big that i wanted a second opinion... she's fine but here they are
Weight 7.18kg
Height 63cm
Head Circ 44.5cm
one big bubba!
She was supposed to have her needles but we have delayed them cos she is a little sick. She is coughing at night and wakes crying/distressed instead of how she ussually wakes which is just by stirring and grunting. So we have broken out the panadol and neurofen and have been dosing her when she seems like she is in pain. Last night she woke 2nd hrly. I didn't mind getting up to her tho. I feel better knowing that being with me gives her comfort, so I am happy to get out of bed for her especially when she is sick...... I might take her to bed tonight with me. Anyway I am sure she will be fine, but with teething and a cold she has had it tough. this am she woke with a real pained cry. i got her panadol and neurofen and she relaxed and so i then took her back to sleep and she slept in bed with DH and i till 8am.. DH then took her for me so i could catch up a bit
Must go put little one to bed and make tea
Love to you all
Bella
oh dear! it's five days since i posted last! so unlike me! okies - will see what persies i can get through before either DH finishes cooking dinner or DD wakes up
Naomi - glad things are looking a little better for Bailey after the scan. i know the wait for proper results must be wearing on you - hopefully tomorrow gives you a few more answers (your appt IS tomorrow isn't it?). it's ok to have a little bit of negativity to get stuff out sometimes - we're all going to go through phases where life just plain sucks - and we're here to support each other through it (here's hoping we dont all hit crap patches together!)
Nicky - sounds like your weekend away was fantastic! sometimes i want time out and some time just for DH and I - but i'm happy to wait it out a few more weeks lol December 1 will be our first real time away from her - watch me stress in the lead up and bawl my eyes out when i have to leave her! this concert soooooo better be worth it! Don't worry about Allira not rolling much yet - E just started all of a sudden - now we can't stop her! put her on the floor and she'll roll if she's in the mood. take her nappy off, and she rolls no matter what! either that, or she does donuts around the change mat on the floor! Allira will catch up when she's ready... i wonder if, for Allira and Pheobe, it's easier for them to not roll cos they have their older siblings keeping them entertained so there is no need to roll...
Vic - hope you're still enjoying your holiday - esp now that DH is there! have been scoping out your pics on fb - looks like you and CJ are having a ball!
oooh, on the topic of pics - Cathy - you've gone nuts lol! the collages are looking fantastic!
Amy - sounds like your shopping trip the other day was pretty full on - little kids are great fun to be around sometimes - their joy at simple things, like playing with water in the fountain, just makes it contagious! if anyone doesn't like it, phooey to them! sounds like natty is loving the dress ups! we have been given heaps of hand me downs for E - some of them will be wrong season for her, but some are just so very very sweet. must have looked like we don't do washing very often when i hung the clothes out. most of them had been stored for ages, so we did a quick wash - between the clothes and the nappies (including some new ones i was pre-washing) - it looked like i hadn't done washing in a month!
Bridg - E refuses to go in the sling, so if you need it back, i'll post it up for you asap. am kinda thinking i need to work out how to use it for hip carry though - she refuses to lay down anymore - cheeky brat!
KL - gorgeous vid of Kyson! bubba giggles are the sweetest sound! E will giggle for me lots - but pic up a camera and she clams up big time! no chance of catching it yet. well done on getting it on film hun
J - hope everything is improving for you
Bella - thanks so much for your support and understanding recently - it really has helped. i am with you on the day sleeps (or lack of) making life difficult. E still refuses to be put down for a sleep during the day. it's hard to get stuff done! thankfully she is mostly good at night so it does have an upside....
i HOPE i got everyone - having a braindead moment!
AFU - well, i have a sleepy bubba in my arms - so i'm typing around her. been outside a fair bit today and i think it's caught up with her. E is now rolling at every chance, and even tried commando crawling on the weekend - i'm SOOOOOOOOOOO not ready for that! i dislocated my wrist again at the weekend, so have been struggling a little with a lot of stuff, but hey, thems the breaks (or dislocations as it is in my case lol yeah, i'm tired - weird SOH coming out!).
ummm, E has started transitioning from bassinette to cot. it's going to take a while to sleep through again, but i'm ok with that. she seems to wake up and think it's party time when in the cot. not so bad most of the time, but when daddy has to be up at 5 it's a problem! i guess we'll get there...
on other news - we have our first WORD!!! well, two actually! cheeky little monkey. we've been getting a LOT of mmmmmmmmmmmmmm mmmmmmmmm mmmmmmm when she looks at me for about a week - on Friday i went to walk past when she was on DH's knee and she looked at me and said mmmmmmmmmum. was very drawn out, but clear - and she's done it a few times. i also have a way that i say "hi" to her when she wakes up and stuff - i got out of the shower on saturday and she said it to me - so cute!
i doubt we'll get much more for a loooong time yet, but it's nice to know her first word was mum! and that it was directed at me so she knows what she was saying
Bella - PM me your address and I will send some up, I am getting some for Bridg too so will get it in the post before the end of the week
BG - re the 'Hi' from E, I swear Bailey has done the same a few times but I dismissed it as thought he was just too young and it was a coincidence, but now you have me thinking....... We always say "Hi' when we go into him in his cot so perhaps he is imitating us, cool if he is, he copies sounds that we make endlessly but the "Hi" is much clearer than his other ramblings :)