ahhh there go the sneezles again!
i swear, pregnancy has made it 100 times worse
some of the candles i love are giving me sneezles if i sniff them (which i have done seeing i just opened a party order to sort out for a friend to pick up lol)
All the bets for today Naomi! I hope it brings fantastic news!
Hi girls.... slowly melting away here.We're around 36 degrees at the moment and it always gets hotter at around 3-4pm.
Not much happening. Allira's sleeping well of late, but the fricking mozzies we have here are eating her alive. It sucks. Can't get rid of the buggers.
I was meant to head into town today, but it's just too hot to take the kids out in this, so will ahve to do what shopping I can on Sat while the boys are at swimming lessons, before we go and play tennis.
Very defeated at the moment........ Baileys hip angles are no better, and in fact probably worse at this stage of development. He has to wear a dennis brown brace 24 hours a day. TWENTY FOUR!! FOR 6 F%CKIN MONTHS!!! For flying F's sake - give the frigin kid a break. So now on top of the already poor tone in his arms and neck and we are going to immobilise his f'ing legs - great!! So what's the poor kid gonna do, lie on his playmat and stare at the frigin roof?
Sooooooo, sooooooooooooooooooooooooooooooo pi%^ed off at the moment in case you cant already tell, I want to punch someone, scream, rage at the frigin world. Cant stop crying, cried all the way home, cried while I bathed him, cried while I rocked him to sleep.
So bye bye to swimming, baths, his jumperoo, no point going to gymbaroo, cant use the 'around we go' playstation we got him for xmas, bumbo is now useless, will need to find an alternate high chair, dont know if he'll fit in his car seat, stroller, pram - its totally a pi**er.
My Mum will have to return the porch swing she bought for xmas as he wont fit and the inlaws will have to return the paddle pool as we wont be able to use it.
I know you've dealt with all this Vic so sorry if my ranting offends, but I am seriously annoyed that at the 7 month mark when he has just started to eat his feet, roll over etc we are at this point. He'll still be in it for his 1st birthday!!
They wanted me to come straight over to the hospital to get him fitted for his brace, I refused as he was hungry, grumpy and tired and I wasn't about to have him fitted on a 43 degree day, I have put it off till monday. In the meantime I am going to give him a million baths and he can spend as much time in his jumperoo and rolling around naked as he likes
i'm sorry Naomi - i don't know wha to sa - that's seriously messed up. i'm so upset for ou and Bailey that the didn't find and treat this much earlier.
i don't know what else to say - i feel like crying for you both
Naomi I am so very sorry to hear the news It's totally understandable for you to be totally devastated, and yes, it is completely unfair on all of you. I'm almost in tears over here just thinking about you guys. I'm sure Vic won't take offence to anything you write or feel. I know she went through something similar, but it's still different because Bailey is at a different stage in his development. One thing that will probably be similar is that Bailey will probably get used to it pretty quickly (probably much quicker than you will sweetheart). I think Vic said is took Cerys 2 days and then she was used to it? If he likes water, then you'll probably find ways to incorporate water play into his play time. Things like putting a shallow bucket/bowl of water in front of him (once he's sitting up) that he can splash his hands around in and make a nice big wet mess in. Not quite the same as baths and pools, but he'll still enjoy it. And I bet he'll work out a way to become mobile in the brace as well. I saw Cerys on her belly while she was in the brace, and I can just picture Bailey in a similar position managing to semi-commando crawl around the place. I'm sure you'll still have to chase him.
I know none of what I write at the moment will make you feel much better about the situation, but please know that we are all here for you and Bailey and we love and support you. Don't try to suppress your grief, it's better for you to let it out and deal with it in whatever way helps you. There's no right or wrong way to grieve. So yell, scream, cry, laugh, throw things or punch pillows as much as you want. Our thoughts are with you xoxox
Rant all you like Naomi - it is a different situation for you and Bailey - for us was always in it 24 hours for a few weeks and then we will review - I don't think I would have dealt with it as well if had been told 6 months. We also had an easy ride with everything else with CJ so for us was only the hip thing to deal with which made it easier. I have been thinking of you all day and hoping for a different outcome - I really don't know what to say - but here are some practical things:
The ortho we saw said some babies can roll in the brace, it all depends on how determined they are to do it - if they already know how to roll then is more likely (so once is on don't assume he is immobile on change table etc. as may surprise you).
We had no issues with car seat or stroller, but like you say bumbo, jumperoo etc no good, and I think would depend on type of highchair. CJ could actually sit up really well in the brace (e.g. on sofa's in the pub etc) the positioning of her legs helped balance her, so if you want to give Bailey a different view, I used to use one of those long pillows you use for sleeping with in pregnancy and sort of wrap it round her so could sit up and be ok if fell over (they actually sell donut shaped pillows with toys etc on them for the same purpose - have seen them in Early Learning Centre).
I am sort of surprised about the 24 hour no baths etc as was the impression I was given when we were allowed to take it off for baths that the reason they do this initially was because the hip was too unstable and might move out of socket/position - and then they allowed it to be taken off for baths once had become stable enough. From what you have said about Baileys situation didn't sound like the hip particularly unstable is more the angles (which CJ still has mild issue with) as they let you wait and see, so surprised they are saying needs to be in 24 hours. Make sure you ask exactly why he can't have it removed for baths - because for me understanding things medically made it a whole lot easier to accept.
Not sure if they will suggest this to you, but to protect legs against the brace they suggested cutting up your old socks so you have tubes to go between brace and leg. I went into Target and got some knee high socks and chopped them up. With us we had to go back two days after it was fitted to check all still ok, and then two weeks after that (just seeing the orthotist - didn't see ortho doctor till about six weeks after). Find out when you get it fitted if when you see the orthotist they will let you bath him with it off there because I believe some places let you do that.
Also not sure if you can do this because I know your DH has just been on holiday but if you can get him to go with you when have it fitted. CJ screamed alot and DH could deal with her while I listened to the instructions asked questions etc - I think you will need him for the support as well, even if he can only take half a day or something for the appointment. The first day is really tough.
Massive hugs to you and Bailey - will have to get Cerys to have a chat to Bailey all about it on Sunday and she can tell him the positives like she has very strong arms now.
Oh Naomi! What can I say? The girls have said it all. You are in our thoughts so much. I agree with Krystie about grieving. as long as you don't bottle it up, express it however you like
btw Naomi, I got your teething gel the other day and it has helped so thank you.... in the world of sleep deprivation I forgot to mention it.
Something occurred to me to say to you that I didn't think of straight away was it may be easier to cope with this whole situation if you don't think of the whole thing. Maybe by just thinking of what you have to cope with in that hr of that day..... I don't want to tell you how to do this very difficult thing you have to do, but I find that the best way to cope and stay positive whilst dealing with hardship.... I say to myself, "this too will pass, I only have to do this bit" That is only after I have fallen apart totally at least once and talked it all thru, you can't get perspective if you don't let yourself be ok about the fact that you are in a grieving situation and you have a right to be sad, your just not choosing to be. That may be the only choice you do have in this whole terrible situation is how you choose to deal with it.......
AFM- well I booked into a hotel for the stay in Melb cos I just felt it was gonna be less hassle.....actually in a moment of sleep deprived internet surfing I ended up with one night in one hotel and the other night in a different hotel... Don't ask me how I did it, it embarrasses me to tell how much of a moron I was at the time..... So on Sunday morning I will be moving hotels before I come to meet you all. To be honest when I got my confirmations of what had happened this morning I cried...... It wasn't such a bad thing, I will be fine, the hotels are only 2 blocks apart.... but I didn't want it to happen and I am sleep deprived so I cried. Doesn't happen very often but there you go.
Vent, rant, rave, cry... do whatever you need to hun. As I have so eloquently put it before... and it still applies... THAT SUCKS.
Also sending lots and lots of to BG and Amy
BG- sounds like a sucky coupla weeks for you too hun. Glad the poo issue resolved itself. Now if the financial situation would just kindly sort itself in such dramatic style, that would be awesome. Perhaps a random ATM explosion as you walk past! I'm so sorry that all the recent stress is getting you down so much. I know it doesn't sound like much consolation, but I have complete and utter faith that you'll get through this just fine. I just look at all the sh*t you've already overcome and I know that you are such an incredibly strong woman... that doesn't mean though that you're not allowed to just feel like cr*p at times like these though. Huge hugs to you hun.
and AMY- I'd employ you! Can I write you a reference explaining how much patience, perseverance, compassion and selflessness I have seen from you in the past year?? I'm sending all the positive vibes I can muster out there... the right job will find you eventually and they'll be damn lucky to have you.
It's late and I'd best be off to bed. Huuuuge hi to everyone else and I'll see most of you very soon!!
ETA - Bella I just saw your last post. I had no idea you were stuck for accom... I'm soooo sorry. I should have offered. I live ages from the city but you're very welcome here. Any one of you is.
Thanks guys for all your sweet words, I know I can count on you all for love and support (even though I am still so angry I feel like fighting you all on all your positive points right now just so I can fight something, hahaha at least I still have something resembling a sense of humour)
Vic - I truly didn't even think to ask exactly why he has to wear it 24 hours. I think I was in a bit of shock with the outcome and as I was alone I was tending to Bailey and I wasn't really thinking straight and then I started to cry in front of the surgeon and it was all a bit of a mess really. I couldn't really talk without blubbering so my brain was a bit all over the shop. Then I was trying to get out of taking Bailey straight over to the hosp to get fitted and he was cracking it and wouldn't let me put him in his pram etc. I will make a list of all the great advice you have given me above and sit down with the orthotist BEFORE the brace is fitted so I can concentrate and get some more info to understand a bit more, I am feeling a bit confused atm, hopefully Sean can get the day off. I know the Dr said that there is a chance the angles could mend themselves but it was only about 30% and we want better odds than that. I know that he said Bailey had great movement in his hips but explained it to me that the angle he was trying to correct was the angle of the socket covering the hip, I think?, god now I am confusing myself, does that sound right? I would never forgive myself if we got to the point of Bailey walking and there were issues that we could have resolved
Anyway, I think I was expecting to go today and get the all clear, and thats why this has hit me for a six. I was in a deluded state that things like this happen to OTHER peoples children, not mine - obviously not, welcome to reality Naomi!!
I better go and try to get some sleep, We haven't told the parents yet, I think if they'd said anything 'wrong' we would have jumped down their throats tonight (and you know I would LOVE to have an excuse to tell my MIL where to go), so will wait until the emotion has settled a bit and call them tomorrow
Naomi, babe. So very sorry.
You must be in for something very good soon. You've already had way too much to deal with. Big cyber hugs to you, sweety (and will give you a massive hug on Sunday whether you like it or not). Thinking of you, mate. Hope all goes well with the parents (and praying they don't say anything stupid).
Bella - Like I said you are welcome to stay with us both nights but is cool if you think hotel easier. Do you want a hand on Sunday moving hotels? Things like that have happened to me before, and when I couldn't use a new baby and sleep deprivation as an excuse. Once I found out night before was due to go to Italy with DH (our first ever holiday together) that my passport had expired! The photo I have in my current passport is truly awful because had no sleep that night and then had to queue up at some ungodly hour in morning to try get a new one before afternoon flight. Also I don't have your mobile number. If you want to meet up on Saturday let me know, we go to a farmers market first thing but after that have nothing on.
Naomi - Amy - Can you post on FB group event what time your flight arrives and when we were planning on meeting at DFO - we had it somewhere but can't find it.
Naomi - I was the same when first found out but then had a few days before got the RCH appointment so was able to get used to the idea before the brace appointment which made it easier to ask questions etc. I found the orthotists really great they deal with alot of babies so are really used to explaining to mums etc. What you say about the angles makes sense, there is still a mild issue with the angles with CJ apparently and when we have the X-Ray in 6 weeks is a chance will need to go back in brace, is just the no baths ruling for Bailey seems quite extreme but maybe there are different angles - which is why getting them to explain the importance of not being able to remove the brace will help you accept it. I did find telling the parents hard and in the end just bit the bullet and told them and then everyone else via facebook with a picture of CJ in the brace. I figured was easier just telling people all in one go than having to tell over and over.
Vic - I'm gonna ring the orthopedic surgeons practice this morning when they open and ask him to explain to me why initially we were told at the last appt that he would have to wear it for sleeps etc and now its 24 hours, I'll ask about hip stability (I thought it was good) etc, hopefully he is available so I can talk to him today.
For some reason I cant seem to post in the event, so here is what I was trying to post My flight arrives at 850 at tullamarine so I plan to get my stroller as I will have to check it in as luggage and catch the first available skybus - so maybe give me an hour? I'm estimating my arrival by 10am-ish. Pretty sure Amy arrives at the same time at Avalon so chances are she will get to southern cross at a similar time. So I guess the DFO food court is the way to go? I think I said before that I have a red stroller - it has the word holiday on the canopy - I reckon we'll recognise each other from all our photo's anyhoo Bella - are you meeting us there too?
Then all we need to do is go to the supermarket to get some supplies and head off to the gardens
Foxtel says the same re the forecast - trust the weather to rain on our parade - literally!! DOH
the BOM doeant make it sound quite so bad...
Forecast for Sunday
Cloudy. Areas of rain, easing to isolated showers during the afternoon. Winds southeast to southwesterly averaging up to 25 km/h.
Naomi - Sorry they have never given me figures for CJ's hips just showed me things on the ultrasound about how it looks and how they would ideally like it to be. I think your idea of ringing up to double check about the 24 hours is a good idea, to be able to take it off for baths or swimming etc makes such a difference even if is still in it the majority of the day.
Right o - you will see me in the food court perhaps with Bella - at 10:00, I will prob be there a bit before.
Registered User
It's totally understandable for you to be totally devastated, and yes, it is completely unfair on all of you. I'm almost in tears over here just thinking about you guys. I'm sure Vic won't take offence to anything you write or feel. I know she went through something similar, but it's still different because Bailey is at a different stage in his development. One thing that will probably be similar is that Bailey will probably get used to it pretty quickly (probably much quicker than you will sweetheart). I think Vic said is took Cerys 2 days and then she was used to it? If he likes water, then you'll probably find ways to incorporate water play into his play time. Things like putting a shallow bucket/bowl of water in front of him (once he's sitting up) that he can splash his hands around in and make a nice big wet mess in. Not quite the same as baths and pools, but he'll still enjoy it. And I bet he'll work out a way to become mobile in the brace as well. I saw Cerys on her belly while she was in the brace, and I can just picture Bailey in a similar position managing to semi-commando crawl around the place. I'm sure you'll still have to chase him.
naomi i can only imagine how u feel right now
to BG and Amy
Bella - are you meeting us there too?
Bookmarks