hysterectomy options and advice

[AnyDream]

Tough decision, and certainly one you shouldn't go into lightly, because of the possible permanent side-effects. FWIW a friend of mind used to work in a pathology lab & 95% of the uteruses that came through had nothing structurally wrong with them at all (ie - they were not the cause of the problem).

I dont know what specific treatments you have already had, and there may still be other less drastic options for you. Get another opinion from a different gyno, ask for recommendations or look for someone who operates in a best practice framework (hint: consultant at a tertiary level hospital or teaches at university is a good sign they are expert in the field). When you see them, ask specifically what options other than hysterectomy there are, and look for signs that they are patient-focused (ie listen to you & give weight to what you tell them).

Treatments can include: oral contraceptive pill (several different types), or other hormone pills, implants, injections, vaginal ring or IUD. I know you've tried a few things, but a different combination of things might work better than a single thing. There are also other surgical procedures, like crimping off the offending blood vessel(s) or removing the lining of the uterus that may work well for you.

At the very least, after this amount of time, they should be running another full set of blood tests - check all your hormone levels (incl thyroid) as well as platelets, clotting factors etc in the blood. Another specialist may have access to better imaging equipment to detect other abnormalities (eg fibroids) that might have been missed earlier on. After all of that, there may be some new information which can inform your treatment.

Finally - in the absence of another explanation, give traditional Chinese medicine a try. They have some fantastic herbs for hormonal regulation (often used to stabilize menstrual cycles in order to get pregnant) - you will know after 2 or 3 months whether you are getting any benefit from them.