Coeliacs disease

[nellbe]

Yes I would agree with caddie, vitamins are ver important to a coeliac. I hope that you guys stick a thread up in the cooking section - I haven't checked if you have yet.

caddie - am interested how you are going with the breadmaker and what bread mix you are using? I had been using the Orgran but I need to find something cheaper.

I also have put on weight, I was about a size 10, then found out I was coeliac, then got pregnant, had Matthew and have had a devil of a time getting the weight off ever since! I have a great diet too, have nothing too bad. Don't eat too much during the day, I think that is my problem.

Currently I am having a bout of bad luck, I keep getting sick and I cannot think of what it i. I am super sensitive so am thinking its cross contaimation. Matthew may have it too He is having some bad luck too and all signs point to it. Fingers crossed he is not.

I would love to know if you accidently gluten yourself, does anything work to make you feel better? I have been eating plain rice crakers but wondered if anyone else has a miracle cure?

[caddie]

OK i make my own bread from scratch in the coliacs approved machine.Its fab! will post it today for you.Basically made from rice flour. I need to clean my car first.
Apparently some people swear by a cabbage and celery type soup as its meant to be soothing and healing for the gut.I stick to crackers generally too!!!
I wonder about millana.Always complains of tiredness,bruises easily and whingy in general!
I go to have a ct scan on wed to check my stomach lymphnodes as they have been enlarged.
I am currently on a "diet" to lose these extra kilo's.Will be doing WW but going gluten free options.

[MargOZ]

Hi guys, just found this thread. I have been feeling really average this year with symptoms of severe bloating, nausea, extreme tiredeness, stomach pains, indigestion, bowel changes, joint pain and more than a little stressed! My usual GP has basically ignored it so saw a new GP recently and she mentioned it sounds like a gluten intolerance. She has suggested I eat only gluten-free foods for two weeks to see if there is a difference (this is day 3).

I was wondering, do you think she should have done some testing, rather than just have me cut gluten out for two weeks? I would have thought tests would have given me a more specific answer.

And how long do you think it should take for me to notice a difference? This is only day 3 of eating no gluten and I can't say I've noticed a big change yet, still feel pretty crap actually!

Happy for any advice!

Thanks,
Marg

[MissWingBat]

HIya Marg,
I was actually diagnosed very quickly through one blood test -they can check your positive antibodies in regard to tolerating gluten, and will tell if you have coeliac disease. If the test is negative, you still might have a wheat/gluten intertolerance, like my mother. If it is positive, they will send you in for an endoscopy to see how much damage there is to your stomach lining.
All the symptoms sounds right though. And it takes longer than a few weeks to feel better - I am 1 1/2 years in and still have really bad weeks...
Keep us updated and good luck!!!!

[caddie]

OMG that is so outdated. You dont eleminate something like gluten and expect to feel good in a couple of days.It has taken me months to feel better and even now i am not 100%. Some people can take 2yrs as that is how long it takes for your villi in your small bowel to heal. You need to see a gastroenterologist who will test your bloods for the coeliac gene,your blood levels(mine were out of wack seriously) and i had a colonoscopy and endoscopy. Some drs do not take this seriously and you will need to try and find a dr who will.Even if you are neg for the gene you can still have coeliacs. You may even have wheat intolerance which is completely different or irritable bowel. There are lots of different diseases for the dr to consider. Number 1 rule from everyone i have spoken to say dont eleminate gluten as when you find a dr who will test correctly it will be an abnormal reading. I have weird things happen to me quite often related to bowels and if you do have coeliacs unfortunatly you are likey to be supersensative in the stomach/bowels to other things. Preservatives and the like as well!

[MargOZ]

Thanks so much for the replies.

I did just get a test result back today from my previous Dr who reluctantly ordered a gluten blood test last time I saw him a couple of months ago. I didn't hear anything back from him or his clinic and in the meantime decided to find another GP. But then decided to ring the old clinic today and the test result for both gliadin and transglutaminase was 4. They say it should be less than 20. I know you can test negative and still have a gluten problem - so I have to say this is all extremely confusing!!!

Actually I wouldn't mind getting an endoscopy done just to see if there is any damage but then I've read that I would need to start eating gluten again first before getting any testing done.

And considering how sick I've been for quite a while now, I did wonder how much difference there would be in me cutting out gluten for just two weeks! As you've mentioned, considering how long I've been unwell, I assume it will take just as long to start feeling well again.

Well, I guess at the moment I'll stick to the two gluten-free weeks and then go back to my GP and see what she has to say. Would just like to feel well again!

Thanks again,
Marg

[Michelle_k]

hi,

im GI as well. But i have been a naughty girl and still having a sandwich once or twice a week. Theres no point in trying to have a nice sandwich with gf bread. Its friggin useless.
But i def agree with the san remo pasta.
My cousin sent me a recipe for a gf custard sponge. Im more than happy to share it.

I have found that coles has a greater range of gf products than woolies.