Just a whinge really, I need to vent about the food DS CAN"T eat!

[Lulu]

Hun, can you start 'growing your own'?

As my understanding goes - the salicyclate stuff comes from fruit picked too early (as it is these day for transport etc), so if you could try growing your own, picking and eating it when they are ripe and ready to go naturally it shouldn't be so much of a problem?

Strawberries are fun to grow and I've seen watermelon seedlings around..

[Janie]

Well yeah Lulu, I'm totally happy to grow my own (have done strawbs in the past), but my understanding of strawberries is that they are just naturally high in salicylates??? I know some foods have their saliclyate content 'enriched' by use of pesticides etc , but as far as I know the foods that have naturally occurring very high amounts are just that - there's nothing you can do about it.

I have been having a quick google LOL and can't find anything.....if you have any info could you please let me know? I find it really hard to know where to start looking with this stuff.

[Trillian]

Yeah, with some of them you just can't avoid it unfortunately. You could also try growing some heirloom varieties too - they haven't had their DNA screwed around with by monsanto and see if that helps? As for the nuttlex, I don't mind it but there are some really good margarine alternatives and I have a friend whose boys can't have dairy so she uses marg but you don't have to use a lot. We had Alister tested for coeliacs and other allergies a few months ago and I was so scared because of all the changes that you have to make and how hard it would be when you have older children too and I was soooo glad that all his tests came back clear, so I can sympathise a little with you at how daunting it would be. I hope that he does grow out of most of it at least and that in the mean time things get easier for you all

[Janie]

I just found this old thread! I'm pleased to report that DS1 has probably half outgrown his salicylate sensitivity He can eat small amounts of salicylate-rich foods without any dramas. He doesn't seem to be outgrowing his protein intolerances, but I kind of expected that. And DS2 has protein intolerances too, dairy, soy and oats (go figure). As I'm breastfeeding him, I need to completely avoid these foods, so it makes it easy to just avoid them as a family.

It's still very frustrating at times, but more because DS2 is just starting, and I know it's a bit of a road ahead of us. I'm scared to offer him foods high in salicylates, because he is at higher risk of being sensitive, with his cows milk protein intolerance. But I'm going to have to get brave at some point, and just see how he goes. DS1 copes very well though, with only occasional tears over not being allowed something. He knows that he can't have "dairy" and frequently asks me and other people giving him food if we've "checked the instructions, does that have dairy?" (LOL, it's pretty cute). He is very understanding, and usually only breaks down when we're at a party or something, and EVERYONE else is having ice cream cake or something. I feel so mean at those times, though I know it's not my fault.

Sometimes I wish I could be completely in the dark, and just blindly give him stuff, and let him have stuff that he can't have. But honestly, our lives are so much better for knowing our boys food issues, so although it is tough at times, I wouldn't really change it. Knowledge is power and all that . Thanks to everyone who was so supportive when I posted this thread originally

[belfie]

I just stumbled across this thread - thanks for posting the update. And secondly I know just how hard it is when you have tonnes of restrictions in a household (ours is more than a bit mental at present too) and it's a drain that's for sure.

Next BB catch-up we can have a good food intolerances vent, think we deserve it!