Oh thanks Shannon. It was lovely to read your post. And please don't apologise for not posting sooner. I fully understand how difficult it is for people to respond to hearing news like this. Its even harder for people when they are standing right in front of you.

You just have to find something positive. I have never lived my life dwelling on things and I won't start now. Frank and I made a decision very early on that we would just get on with it and I like to think that that has helped Alana do so well.

But don't get me wrong I have my days and I worry alot about Alana, but I just have to live day by day. One thing Frank and I have found the most important things is dealing with the now. We don't ask about treatments or how Cf will affect her in the future. When she gets there we will ask the questions. It keeps us sane.

Thanks again Shannon it has meant alot.