Michelle just letting you know that I have you, Alex and your family in my thoughts during this waiting period.

I can tell you that unless something is critically wrong with the kidneys they wont opperate until 4 or 5. With a most childhood kidney conditions the little ones will grow out of them before school age. Most do not cause any discomfort to the kids unless they get a bladder infection.

Alex will be fine. If you need to chat please pm me, I have kidney disease which I have lived with for the past 10 years. I know this is not the same as what you are going through but please remember if the doctors are taking their time getting back to you this is a GOOD thing, as it means they are not overly worried about Alex's condition. While this doesn't help easy your uncertainty or concern at all it is infact a good sign.