Thanks again girls.
I checked out colin he said it was 'a type of cerbralpalsy' which angelman is not. Its a faulty copy of the maternal chromosome 15. It is its own thing.

I have looked at the angelman foundation website but it seems more like people from over seas. I guess its to be expected when its a one in 20,000 to 80,000 depending on the study you read. Hopefully in time, i'll find some local people with earth bound angels too.

Honestly the hardest part so far was the emence disapointment my fil showed when we broke the news to him and mil. People where we are now just see dj as happy. In melbourne a mother with her dd dj's age stared for half an hour at djs flapping. Broke my heart...but she had no idea.

Angelman was orginonaly named puppet child syndrome because if you look at dj flapping his arms are strait, hands floppy. His legs the same. He is also almost always smiling. But I have told dh if any one calls dj a puppet to mock him they can have a black eye. When dj had his fits last week I did have to explain to the ambos and pead in the hospital that puppet child = angelman. But hopefully we wont need to go through it again any time soon.

The hardest thing for dh and I is that to get more than 3hrs sleep a night dh has to co-sleep with dj on a matt on the floor. We do hope to move it into our room soon though so at least dh and I can sleep in the same room. Daysleeps are ok. We get two hours sometimes...

I'm glad that by telling people about it i'm opening up eyes. Its not an easy road...but I guess signing up to being a mummy isn't always easy. Hopefully in time i'll be able to share the mile stones, should we reach any. No doubt i'll share the tought times too. As dh and I are currently weighing up if an mri is needed knowing its angel man syndrome or not.

Thank-you for your support though. It means so much to me.