Arthrogryposis / Contractures in Arms & Legs

[bestgirlie09]

my name is sasha i have a 9 month old lil girl called skye who has arthrogyphosis (amoplasia) (sorry for spellin mistakes) she has fixed elbrows and flexed wrists and stiff shoulders.
skyes in night time splints for her wrists which makes her very restless at night is there anyway i can make her more comftable?
is there anything in the uk that is done bout fixed elbows? i no there is alot of things done to help with wrists, hips, knees ect but cant find anything bout fixed elbows no one can be seem to answer that question at appointments either does anyone else no bout this type of thing?

[Mildez]

Just wondering if anyone with children or close family members can PM me about this condition. It appears a very close family member of mine most likely has this condition (only a week old) we are needing alot of advise please if anyone has contacts and information about Drs in Australia etc, support forums etc that are good with this. Any help would be greatly appreciated.

[HotI]

There is an Aust support group based in Sydney

The Australian Arthrogryposis Group (TAAG)