thread: Aspergers/Autism/Sensory Integration Chatter #2

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  1. #1
    Registered User

    Oct 2007
    Grafton
    208

    Wow Saram thank you for such a detailed look at your beautiful son's journey. He sounds like such an amazing little man and truly unique. I can understand that the last few years must have been very frustrating and hard for you, i can understand when you say that you assumed Xander was just like any other bub because he was your first and you had nothing else to go by. I have felt like this as well to some expent however Ethan has never had a problem reaching his physical milestones and has always been a very active little guy but with things like waving bye, building a tower etc i also had to 'teach' him to do that.
    I find it interesting that looking back, there were things that you noticed were 'different' about Xander starting from when he was still inside you with the kicking to loud music thing. You are a very intune mummy!

    By 2yrs of age he had developed obsessions. Wheels were a big one, locks were another. I actually made him a toy of padlocks and keys.
    This sounds a lot like Ethan's obsessions, his were/are doors, lids, and plugs/sinks and flowers. For a while there Ethan was really obsessed with these things and would get pretty upset if i took them away but now that he's nearly three he seems to have melowed out a bit and i can tell him no and he'll be ok with that.

    I was reading up on Aspergers/Autism last night and something i read stood out at me, i realised Ethan doesn't have interactive speech..yet anyway. He will tell me about his plugs, their size, colour etc but wont actually have a conversation. I really don't know if this is because he is just getting the hang of talking and will work up to that?? He does ask for things like rub my tummy, shower etc but he want say 'i want a shower' or i like my tummy rubbed etc.. its like he lacks that insight IYKWIM? Like if i say something like 'you're drinking milk, its yummy isn't it?" he'll say 'yummy milk' but i don't know if he's just repeating what i said or if he really thinks the milk is yummy. He doesn't ask questions either, but again i don't know if thats because he hasn't learnt to do that yet.

    Ethan has never had a problem with change, textures, inappropriate reactions or things like that. He's always been affectionate and made eye contact. He will play with kids now and is really getting into imaginary play. He will look at what i'm pointing to and is good with non verbal communication- things that i've read some children within the spectrum can lack/have trouble with.

    The things that do ring bells for me though are
    his obsessions
    delayed speech
    not 'getting' things. Like in agroup situation where other kids might, for example, be doing actions to a song or actively participating in a story Ethan sort of doesn't 'get it'. He will just winge and want to go and play outside or play on the play equipment.

    I guess there are a lot of varients within the Autism spectrum disorder and i guess Ethan could be perhaps on the higher funtioning end? Is it possible to be developmentally ok but just have some quirks? what i mean is can a kid just be quirky and be ok?
    I know that sounds like i'm in denial but i just don't know what to think. Sometimes i watch Ethan playing and i think, he's absolutely fine, there's nothing wrong with him and then other times he'll do something or say something and i think hmmmm is that normal.

    We went and checked out a day care round the corner from us today, i'm planning on starting Ethan there Friday next week. Just half a day a week to get him socialising with other kids and so i can get some study done. The staff seem great there and one of the carers specialises in speech delays so i feel confident sending him there. They seem very excepting of all kids and they have 2 kids there who are on the Austism spectrum (sorry if my terminology isn't right ) So that put my mind at ease a bit becasue i figure that if it does eventuate that Ethan is a little 'different' then at least the staff will know what to do and accommidate his quirkiness. I'm soooo nervous for him though, i wont be there to protect him. I'm so used to making excuses for him and sticking up for him, what i mean is i'm used to saying 'oh Ethan is just grizzly today, or Ethan is reeeeally into plugs, isn't that cute?' when he's around other kids and its obvious he's 'different'... like when he makes a beeline for the sinks wherever we go and pinches the plugs lol. I guess i'm worried that i wont be there to do that IYKWIM.

    Anywho so sorry this post is so long. Thank you sooo much saram for sharing your journey with me, its really helped me understand things a bit better. Thanks so much also for pming me those scales. I think Ethan is a little young for them as they seemed more suited to school ages kids but they were helpful and i really appreciate your help.

    Fingers crossed Ethan goes well at his first day at day care next week. I'll let you know what happens!

  2. #2
    BellyBelly Member

    Mar 2006
    Getting to know Brisbane all over again
    2,047

    Lestyrox - i think our story is a little different as Xander was different from the get go. We have a very strong family history ofautism on DH's side with 3 kids now on the spectrum and another one (2yrs old) showing traits.

    Waving goodbye - yep never really got that. Even today DS will rarely acknowledge someone saying hello or goodbye - but at times I really admire him as he really doesn't care what others think about him (most of the time anyway) god I would love to have that self-confidence :-) He is happy in his world and that's the main thing.

    Autism is so difficult because the kids are all so different. I would love to hear some of the other mums tell their story cause they would probably be so different yet have some similarities. As for being "quirky" and OK - absolutely there are a lot of people who have autistic tendencies but not enough to be on the spectrum. My gosh I think we all have a few tendencies don't we. DH and I often joke about how 'autistic' we are and no wonder Xander is the super kid he is with us as his genetic blueprints :-) I guess it's really a waiting game for you to see if he needs help as he goes along. I would stay in close contact with the daycare - be upfront about your suspicions so they feel open in discussing any issues with you. Early intervention has the best outcomes for these gorgeous kids so it's good to get help early as things present themselves.

    I know just what you mean about not being there. It's hard to let these little ones go off on their own but good too as they have to learn there own ways of coping and interacting in the world - even if it isn't the way we would do things. I found it interesting when we had some professionals point out how much I protected Xander from changes/differences and people just out of mummy instinct. Had to take some BIG steps back so we could let xander find his own feet and work on his issues :-)

    wishing you all the best - hope daycare goes well

  3. #3
    Life Subscriber

    Jul 2006
    Brisbane
    6,683

    Thanks Christy. I hope you are doing ok - I can totally understand you not wanting to drive for a while

    Thanks Sarah. The thing is, I'm still a bit torn about whether getting a diagnosis is a good thing or a bad thing. I still have in my mind that Christy was told M was quirky at this stage and that it wasn't Aspergers, which it now seems to be. But J is really different to M. And different to X by the sounds of it - we don't have the tanties and it really isn't just because I manage it. DS2 tanties and I can see they are totally different in the way they react to things. I think there is just so much overlap between being "bright" and being "autistic" that in many cases a diagnosis is very subjective, and J doesn't quite fit. I know having funding for an aide at school would be a plus, but then he's labelled so it's good and bad at the same time. Either way, we are going to struggle with schooling and may have to seriously consider home schooling. But one thing at a time, I'll wait to get the final results. The OT assessment in a fortnight should give us many more answers.

    LR, I know how it feels Our story is similar to yours, but different. But I well know that indecision about whether it's worth pursuing assessments etc. I hope you are able to find the answers you want.

  4. #4
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    Mel my friend has two boys on the spectrum, one tanties like there is no tomorrow and the other doesn't at all.... its confusing but they are both there.

    Us: not going well. I've borrowed my best friends wireless USB thingo..... our internet is down, so our phone is down. And I have a week to find a new car in with a public holiday there and I have to get a new car seat.... fantastic. life is just throwing lemons at me and by god I'm going to open up a lemonaide shop soon!!!!

  5. #5
    Registered User

    Oct 2007
    Grafton
    208

    Thanks Saram, again appreciate the input

    I really admire him as he really doesn't care what others think about him (most of the time anyway) god I would love to have that self-confidence :-) He is happy in his world and that's the main thing.
    Thats beautiful and so true. What a wonderful mummy Xander has

    DH and I often joke about how 'autistic' we are and no wonder Xander is the super kid he is with us as his genetic blueprints :-)
    I was reading up about some of the traits of Autism and i actually thought i had more than Ethan I hate crowded places, don't really like eye contact unless i know the person well, Hate loud noises and i get 'funny' in social settings..the verbal diarrhea starts flowing

    DH and i took the kids to the beach today and the whole time Ethan just talked about plugs and water. He picked up a rock and pretended it was a plug and then dug a hole in the sand and that was the 'sink' lol he's such a funny little thing.
    Still nervous about Ethan starting daycare, i couldn't sleep well last night because i kept thinking about how he'll cope but i know i have to stand back and let him find his own way in life and i know having exposure to other kids his age will be great for him.

    Thanks again everyone for letting me hijack the thread. Sorry to hear about your car Christy and hope it all works out for you.