thread: Aspergers/Autism/Sensory Integration Chatter #2

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  1. #1
    murraysmum Guest

    yeah we have a prado big four wheel drive so the fact that he sits behind the passengers seat means i can blast the music and i cant hear him and still beable to hear the engine lol

    yes hes also chewed through 2 of my debit cards and tried to eat all the zips off his jumpers forgot to mention that as well lol

  2. #2
    BellyBelly Member

    Mar 2006
    Getting to know Brisbane all over again
    2,047

    Maz - super big and I think we should all get stoned together - wouldn't that be an awesome party :-)

    Chewing - we have some chewy tubes and also chewlery (like the plastic stretchy keychains you used to be able to get) necklaces and braclets as Xander chews... on people. Mainly himself and his sister but also started licking kids at school. But of course his stupid f head of a teacher doesn't see this and doesn't want him to wear it at school. But that is a whole other vent. I can usually sneak it in under his uniform as she is pretty unobservant

    Welcome Dee - how old is your DS? Hope your referal turns up soon.

  3. #3
    murraysmum Guest

    he will be 3 in october

    thankyou for the welcome

    me too this waiting is sending me barmy the disablity rep saw him yesterday and she said basicly this last test isnt to say he has autisim but to tell me what degree he has
    she also said he has alott of work ahead of me and asked what goals i would like by december and know what i said

    words i dont care what they are i would love for him to say a clear word or maybe 2 i think i belive in miricles but it could happen

    thats how we got him to stop biting us give him things to chew on he licks too and it grosses me out something cronic i found him licking our washing machine one day yuck can you same ummm germs yuck lol

    and yes we have had the poo issue too where he used to cover himself in it and sometimes eat it never been so grossed out in my life

    but alas life goes on and we somehow find a solution to the problem

  4. #4
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    So the sensory stuff is separate, but generally part of the spectrum?

    All I feel like (today anyway), is my ds just doesn't like hearing the word no....

  5. #5
    murraysmum Guest

    i dont know my pead did tellme that he will come out with more and more as time goes on murray tippy toe walks when hes off in his own world he hummes this tune i dont understand and tippy toe walks


    im sick of saying no and dont and what did i say dont touch that lol

  6. #6

    Dec 2005
    not with crazy people
    8,023

    Lulu....maybe its a trigge word for him then....we couldnt say no..WIlhelm could go off his nut big time. The new trigger word is 'calm down'..joy.

    If we're gonna have a party and all get stoned together then I suggest someone bring a bucket

  7. #7
    murraysmum Guest

    hahaha horse feeder buckets are biggger then a normal plastic bucket lol jj

  8. #8
    BellyBelly Member

    Mar 2006
    Getting to know Brisbane all over again
    2,047

    From what I understand Lulu - most kids on the spectrum will have sensory processing difficulties however you can have sensory processing without having autism. A lot of the "classic" autism traits can stem from sensory issues and can be calmed with therapy.

    Yep we have a licker and a toucher he too. He just can't stop touching/feeling things with his hands and feet. You can see him try and stop himself but he just have to do it. So what the hell we let him touch it. Most of the time. If I really don't want him to stop I will hold his hands and explain "why" he can't touch it. The why is very very important to DS. A valid reason will stop a tanty. eg at a hotel once he burnt has hands touching a naked light bulb so now if I say to stop - grab his hands and explain that it might burn or fall etc he will stop but we will probably get some other form of outburst like his new "quirk" is obsessively shugging his shoulders

  9. #9
    Registered User

    Jul 2007
    Camden - Sydney
    297

    I'm a bit of a lurker here as my nephew is going through the long process of being diagnosed with aspergerrs, and I want to know what I can do to help (even in a small way) and what his parents must be going through as they deal with him on a day to day basis.

    I just want to say that all of you ladies have my utmost respect with the kind and loving way you talk about and deal with your children, even when they are being difficult. To see the light, while still in darkness, is a tremendous quality.

    Christy & Maz - I have been reading your stories and they have brought me to tears several times. Your obvious love and devotion to your children, and your tenacity is something that we can all learn from.

    You are all doing a wonderful job .