thread: Aspergers/Autism/Sensory Integration Chatter #2

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  1. #1
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    We use the failsafe diet as well most of the time. I find if her behaviours get worse, if I take out preservatives and chemicals out (as well as her allergies) than we can get a handle on things better. Maitlda is allergic to dairy already, so we have that out of our diets as well.

  2. #2
    Registered User

    Oct 2006
    Sydney NSW
    4,837

    I did failsafe and found that the additive 320 sends him off his face, I have been a bit slack about the other additives since them but am really strict about no 320.

    We are off to our 1st OT appt on Thursday, lots of forms to fill out , I think I am expceting a miracle LOL

    BB meetup on Friday, I am terrified Riley will meltdown and hit some kid then lose it completely. I am almost tempted to leave him with my dad.

  3. #3
    Registered User

    Jul 2005
    Sydney
    7,896

    mrsmac - the meet-up is at my place and if anyone dares say anything if Riley has a meltdown they can take themselves somewhere else! We love Riley and I'll be very upset with anyone who dares look askance or makes a comment. I don't think there's many Riley and Lucy's age coming, so there'll hopefully be less provocation.

    I'm also blocking off upstairs (where the bedrooms are). If you and Riley need a break, you are welcome to take him up there with some toys to give him some space. I'll make sure the aircon is on. If he's okay outside there's also plenty of space to play.

    If there is anything you think would make it more comfortable for Riley and you'd like to bring him, let me know and I'll see what I can do.

  4. #4
    Registered User

    Oct 2006
    Sydney NSW
    4,837

    Thanks so much Jen, I have left quite a few places in tears with him and I just get scared of what people must think. I am having a tough time atm and feling a bit fragile.
    Erin is coming which usually makes things easier so fingers crossed.

  5. #5
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    I will be there sans kiddies too!!!! So you will have some back up from me, I promise

  6. #6
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    So, how is everyone going?

    Today, its hot where we are and the cicadas were up early Fricken Cicadas!!!!! I now have my super princess all over the place. She woke up flappin' and then couldn't sit down, she just fell over everything and paced for a while. We all sat down to watch a movie in our PJ's and she wandered back & forth in front of the TV.

    Thankfully, after getting frustrated with her, I asked her what we could do help her settle down. She said "I think I need the bean bag squish" So we did it, and then I asked her "How many do you think you need?" and she said "3". So we did it 3 times and you know what? She's now standing on the back of the lounge balanced on one leg watching the movie with us. I'm happy that she's not pacing anymore, of course I would prefer she sit on the lounge, but *meh* at least we can watch the movie without her pacing in front of us and falling over toys and the table.

  7. #7
    murraysmum Guest

    i have a woo hoo and i did get soooo excited only for my sister to break my bubble of excitment

    murray has gone to bed for 3 nights and woke up dry in underpants and used the potty all day only had a few accidents when out

    he has been so much more easier to control but inthe arvos hes still really chanlanging i have no idea where this change has come from but i like it

    im hoping hes ok when we head home tho

    but i have a big queastion

    Teeth Grinding how do i stop him from constintly grinding them he even does it in his sleep i was told to use a mouth gaurd but im sure it would just get chewed to bits