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thread: Aspergers/Autism/Sensory Integration Chatter #2

  1. #109
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    So the sensory stuff is separate, but generally part of the spectrum?

    All I feel like (today anyway), is my ds just doesn't like hearing the word no....

  2. #110
    murraysmum Guest

    i dont know my pead did tellme that he will come out with more and more as time goes on murray tippy toe walks when hes off in his own world he hummes this tune i dont understand and tippy toe walks


    im sick of saying no and dont and what did i say dont touch that lol

  3. #111

    Dec 2005
    not with crazy people
    8,023

    Lulu....maybe its a trigge word for him then....we couldnt say no..WIlhelm could go off his nut big time. The new trigger word is 'calm down'..joy.

    If we're gonna have a party and all get stoned together then I suggest someone bring a bucket

  4. #112
    murraysmum Guest

    hahaha horse feeder buckets are biggger then a normal plastic bucket lol jj

  5. #113
    BellyBelly Member

    Mar 2006
    Getting to know Brisbane all over again
    2,047

    From what I understand Lulu - most kids on the spectrum will have sensory processing difficulties however you can have sensory processing without having autism. A lot of the "classic" autism traits can stem from sensory issues and can be calmed with therapy.

    Yep we have a licker and a toucher he too. He just can't stop touching/feeling things with his hands and feet. You can see him try and stop himself but he just have to do it. So what the hell we let him touch it. Most of the time. If I really don't want him to stop I will hold his hands and explain "why" he can't touch it. The why is very very important to DS. A valid reason will stop a tanty. eg at a hotel once he burnt has hands touching a naked light bulb so now if I say to stop - grab his hands and explain that it might burn or fall etc he will stop but we will probably get some other form of outburst like his new "quirk" is obsessively shugging his shoulders

  6. #114
    Registered User

    Jul 2007
    Camden - Sydney
    297

    I'm a bit of a lurker here as my nephew is going through the long process of being diagnosed with aspergerrs, and I want to know what I can do to help (even in a small way) and what his parents must be going through as they deal with him on a day to day basis.

    I just want to say that all of you ladies have my utmost respect with the kind and loving way you talk about and deal with your children, even when they are being difficult. To see the light, while still in darkness, is a tremendous quality.

    Christy & Maz - I have been reading your stories and they have brought me to tears several times. Your obvious love and devotion to your children, and your tenacity is something that we can all learn from.

    You are all doing a wonderful job .

  7. #115
    murraysmum Guest

    ok my good streak has ended and the dark days are here ahhhhg

    he has smashed all my pot plants thrown himself all over our kitchen pulled and bitten my toes under the computer desk thrown cussions at me and hasnt stoped screaching since 9am its 11.32 am atm

    gah and want to know what it was all over

    i didnt have any milk this morning for his ceral

    i had to send my bfs cousion to the shop to get it and once i had it at 10 am he still carried on gah

    btw the lil rascal didnt get up till 8am as he decided to scream from 12 am till 3am

    nothing i did settled him so ive had broken sleep and i feel like death

    how am i going to keep this up beeing early preggo gah and do housework at same time

    sorry for the whinge ladies

  8. #116
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    Mitch is in for an OT assesment in September, had to wait cos they didn't have one at all for a few months.

    Jury's still out here, I think someone in this house is on the spectrum not sure if its ds or dp

  9. #117
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    Lulu.... its frustrating, but the OT assessment will help if there are sensory issues.

    Today was okay... Only an hour of screaming and we are happy. I had an alone day with Matilda, which is rare and unusual.... she loved it, but I made a bad choice. We went out for a Soy-a-chino and they were out of marshmallows. After going to 3!!! coffee places, there were no marshmallows anywhere. I offered to buy her a chupa chup to make up for it... yep I gave her sugar. And Yup I paid dearly for that later. It was so exhausting.... why does 1 piece of sugar mean the end of the entire day?? We only had an hour of screaming, but she was hard work.

    Anyway... Dee... its hard. Its exhausting... is he is any early intervention?

    Lulu... Urgh... we waited ages for Matilda's first assessments.... the ones in Sydney we just went private and spent $$.

  10. #118
    murraysmum Guest

    yeah he is im glad he is atleast then when i see his speach path she helps me to the best of her knowladge the disblity rep for where i live ive met heaps of times and shes giving me so much help

    atm i just document as much as i can i finaly got him to finish his tanty took him driving up and down our driveway to stop him screaming in the end we sat in the car so he could watch a horse rolling in the dirt

    hes now smashing toy cars against a wall and im so knackered i dont want to tell him off as hes playing and hes not annoying me

    i hope u get all the assments you need

    and yep ive caved and given murray leomonaide and paid dearly for it my mobile phone met the toilet

    sugar and cafine is evil some days i wish it was never invented
    Last edited by murraysmum; July 31st, 2009 at 06:28 PM. : spelling lol

  11. #119
    Registered User

    Apr 2004
    Outer East, Melbourne
    581

    At the early intervention where Alex goes, when he first started there, they would say to use other words or sounds. Instead of no, do an exaggerated 'uh uh' and shake your head or add a gasp to it. My thing with Alex is to have an alternative as he is semi easy to divert from something he shouldn't have.

  12. #120
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    Our OT said to never use the word no.... hmmmmm..... We can't seem to get around it in the heat of things though...

  13. #121

    Dec 2005
    not with crazy people
    8,023

    NO was a trigger word for many years here., I even told the kinder not to use it cause he would to balistic if it was said to him......I tried so many things in the end that I just put my hand up in the stop sign and it worked.....mind you I use to put it right in his face

    having a better week...phew of the the pead today but not for WIlhelm....Mateauz turn this time round

    ahhh I have to go rescue my fruit bowl...mateauz has a love for banana's atm

  14. #122
    murraysmum Guest

    well today i got a call finaly my assment will be soon not in 3 mnths like i thought i have an appoitment next week to go see the lady and have a chat then she will talk it over with me blah blah hahah she had me on the phone for a good hour


    murray hasnt been too bad this week hes signing more which im glad no more words alott of babbling

    so thats my update for this week

  15. #123
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    Have you ladies got any good websites or books I can refer to?

    I need better understanding of it all. xoxoxo

  16. #124
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    Autism Australia... is a good google...

    There is another advice thing in Canada... my paed got me onto it & i've promptly lost the piece of paper. I will PM you m'love.

  17. #125

    Dec 2005
    not with crazy people
    8,023

    Sorry Lu hon....cant help. I have never really looked at websites..been to a few lectures were real mums and dads were there to talk but that's it.

    I live it hon...i dont want to read about it sorry im a useless cow lol.

    hope everyone is having a good week

  18. #126
    murraysmum Guest

    ive read a little bit but after living it each day i dont want to depress myself of whats to come or doubt myself as a parent

    atm im coping it from all sides about this new baby apprently its cruel to have another when i have an autistic kid apprently i should abort it

    frankly these comments made my blood boil and yes they came from my own mother

    god some ppl dont have any idea do they

    i know hes hard to deal with but i deal i love him to bits i know no other way ive delt through tantrums and him not speaking ect ect what could be worse

    a newborn eats poops and sleeps im sure i can work that around murray cant be too hard could it ?

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