thread: Aspergers/Autism/Sensory Integration Chatter #3

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  1. #1
    BellyBelly Member

    Oct 2004
    Cairns QLD
    5,471

    I bought rice milk today to try Evan on. While we don't have major issues with his bowels I have noticed he rearly has a formed poo. Its always soft/runny. I have also noticed this with Isla. Dh can't do cows milk. Isla likes soy but Evan does not, so will try the Rice milk & see how we go.

  2. #2
    Registered User
    Follow Early Kids On Twitter

    Oct 2007
    Eastern Wheatbelt WA
    3,282

    Wow Thanks! Will def get onto some rice milk then, if I can avoid seeing the ENT altogether then I'm all for it! Makes me kinda mad thatb the Dr's here wont do anything other than keep giving anti biotics for ear infections... Generally Brendan gets a throat infection at the same time...

  3. #3
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    Yep we had tonsilitis.... even to the point that our GP suggested we get her tonsils out and grommets in with a referral to the ENT. We were dealing with all the behaviour as well.... and then DD2 was born and I went to a LC who said that she was allergic to dairy... and took one look at Matilda and said "I can bet you that she is allergic to dairy as well" . We went on a waiting list to see an allergist who was a GP as well, he did heaps of tests on Matilda and found she was severely allergic to cow milk protein... 4 weeks later, no more ear infections, no more throat infections, her faeces became normal and her speech improved. Her speech stalled at 2yrs 5mths for 7 months.

    We were nearly convinced that we would see everything disappear and that it was only a milk allergy, not ASD or sensory... but we were wrong, the milk allergy was responsibile for a lot of things, but not her ASD stuff. Having said that, her meltdowns went from 6 hours a day on average to 3 hours and even missing the odd day. It was a HUGE improvement. So much so that DH went on a "milk is evil" kick and tried to convert everyone . I still suggest it to breastfeeding mums who have reflux issues or multiple ear infections because really, what does it hurt to avoid milk for a while?

    ETA: theres a huge movement amongst the ASD community that gluten and milk intolerances are common. Most of the kids are allergic or intolerant to one or both. In fact there's heaps of autistic T-shirts that people wear that say GFCF C=caesin protein that is the main allergen (not lactose which is commonly thought). This is also why A2 milk is suggested.

    ETA2: if you google gluten free/caesin free autism you will find heaps of info out there, some of it is quite... ummm..... antagonistic? I don't necessarily believe it all, which is why we went through all the testing, but I promise you it works for us.
    Last edited by christy; March 20th, 2010 at 05:56 PM.

  4. #4
    Registered User

    Dec 2007
    Adelaide, SA
    896

    wow ladies I am learning so much.
    Hamish is dairy intolerant and it causes upset stomachs, he prefers soy milk and will only have one type of it...
    He has a lot of bowel problems but his is the opposite where he actually becomes extremely constipated, he has to take parachoc every day to stop the problems.

    I had a question to ask, I am wondering if you find charts and reward charts on any benefit. I have seen how Hamish reacts with the homework chart in class and he loves placing his sticker on the spot.. Am thinking of setting up a chart at home to put a sticker on for when he completes his routines.like taking lunch box out of bag , doing homework, etc

    We have our first appointment with the peads this week and I am still extremely nervous.

  5. #5
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    Pead appt today. It went really well, I LIKEY this woman!

    She agreed he sounds borderline ASD and wants to do the next lot of testing - hearing, IQ, psych x2 to confirm.
    She is booked up till 2501 but says she will see him in her lunchtime to make sure we can get a fast dx and access the funding.

    I also love her because she has a Childrens Foundation in India

  6. #6

    Dec 2005
    not with crazy people
    8,023

    why do I stay away and then head back here when Mario is in his zone again!!!

    I am getting so frustrated with the agression atm.....not pyhsically but the verbal and its always towards MIni me and myself..

    Rice milk you say Christy...must get some again..soy worked well for us too.

    Lu - the drops are working well to hon..I really cant thank you enough for them atm...that and incremin.

    we had 3 weeks of wet beds...it was doing my head in until he told me on the way back from Melbourne that one boy is continuously telling him to shut up and another is lashing out at him...light bulb moment. thank god he has a great teacher who has taken him out of the special needs room and back into the mainstream.

    We start school holidays next week...HELP!!!!!!!!!!!

  7. #7
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    oh Maz I hear you on school holidays.... AND I'm working most of it!!! Soooo I get to pay for it the few days before school goes back when I am home looking forward to that.

    I've tried to go through the schedule with her beforehand, and we've marked everything into the calender for her, she's spoken with MIL about what she wants to do on her days with her. She's spoken about how she won't see me much and how she may want to sleep in our bed during that time to be near me, so DH & I said that was okay if she needed too. Fingers crossed it goes okay!!! I'm going to be working at the Royal Easter Show for 11 days straight, big huge days.... so I hope we get through it alive!!!

    Matilda had a bad day today, it was pretty full on, but we've gotten through it. It didn't help that her 3 yr old sister was screaming most of the afternoon about things we couldn't do anything about.... how can I get the clouds to move??? I just can't! *groan*