thread: Aspergers/Autism/Sensory Integration Chatter #3

Hybrid View

Previous Post Previous Post   Next Post Next Post
  1. #1
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    Okay way to stress out your ASD child....

    Take them out of their routine (school holidays), have their mum work more than usual, get them back into their old routine, then send dad away for a weekend, and you have one messed up kiddo.

    Poor little M. I took her to church, not because I felt up to it, but because I didn't want to screw up her routine anymore... but it wasn't a good idea. It was communion... and M doesn't cope with that on a good day. She usually tries to get to the front of the church and drink all the little juices. BUT today she wouldn't even go in the main church building... fine, I took her back to where they have set up a creche like place for us to go during church, which feeds a video of what is going on in church. She decided she wanted to go to Jovie's kids room before the kids arrived, but I couldn't get the swing down for her and she lost it, then we went back and she saw on the video the communion juices.... then I tried to get Jovie settled into her room and well... Matilda lost the plot. Screaming the place down.

    One of my friends, a young 20-something metalhead guitar player, was trying to help but it made it worse. Then I just packed up and said "thats it, we are leaving" and carried a screaming Jovie and dragging a screaming M behind me. My friend was trying to help because M kept biting and kicking me and wound up walking 3 metres behind me just trying to make sure M wouldn't dash out in the road. M kepts running back and forth between me and the church gates... finally laid down in the middle of the road in the rain kicking and screaming and punching the ground. My friend stayed in the street trying to block traffic and I stood there trying to figure out how to do it. The poor guy, he's such an amazing guy, and he kept saying "I just want to help Christy but I don't know how". Finally, I talked her back into going back to the church and setting up the swings in the kids church area. I told my friend that just being there and helping make sure she didn't get hit by a car was the best thing, I thanked him for helping her stay safe and just staying with me while she was like that.

    The creche for 2-4 year olds was set up by a paediatric OT who works with Matilda's OT, so alot of the stuff is in the room, like the hammock swings, and a mini trampoline, fit balls etc etc. We did some OT work and she quieted down finally, with 15 minutes of church left to go.

    When DH got home this arvo, I went straight to bed.... I'm tired and sore from carrying and dragging children.

  2. #2
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    bugger and dammit hun

    I love your metalhead friend though xoxoxo

  3. #3
    Registered User

    Oct 2006
    Sydney NSW
    4,837

    Hugs Christy, we had the same scenario but at a big family function.

  4. #4
    BellyBelly Member

    Mar 2006
    Getting to know Brisbane all over again
    2,047

    Hi all, have been MIA for a while as we settled into life in Brissie and me working full-time. Phew loving my job but really hating the logistics of two full time working parents.

    Christy - hugs to you hun. What a massive day and yep loving your friend too :-)

    Hi to the new faces here - your kidlets remind me so much of Xanny with the bike and the dressing issues. Xander actually asked today if we could get him a bike.. I'm still wary after the countless injuries we had last time we tried a bike as he doesn't know how to stop himself from falling. We tried rollerskating the other day and he loved it - not brilliant but he really loves doing it and seems much calmer - not sure if it is the deep pressure from falling on his butt or the rolling :-) He loves rolling (cars, buses etc)

    Well we have managed to backtrack to 12mths ago by missing 4 mths of OT - bugger. Life is not fun but don't have the eneergy to go into it.

    It's just great to touch base with you wonderful parents. Thanks so much.

  5. #5
    Registered User

    Dec 2007
    Adelaide, SA
    896

    Hi ladies I have a question

    Has anyone had to deal with a death in the family ?
    My Dh's nanna passed away this weekend and the kids seem to be struggling .

    She was a 100 yrs old and Hamish seems to be focusing on 100. If anything is brought up about it he mentions 100 , is anyone else 100? etc etc.
    But of more concern to me is that he has been very very quiet this weekend and seems to have withdrawn. We had family get together and a few people mentioned how quiet he was. He has been like this for 2 days ... Should i start to worry

  6. #6
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    M's Opa died just before she turned 4. She was... unaware that it was happening. She didn't understand us being sad about it at all? It was hard to get her to understand the grief we were feeling and going through. I suppose because she didn't see him... we saw him a few months before he died, but not when he was bed ridden. We talked about it a lot and in front of her and she just didn't seem worried about it at all.

    On a better note.... better day today. Not as good as its been, but better.

  7. #7
    Registered User

    Dec 2006
    In the Angelic Realm
    1,675

    D has been lucky enough to not have experienced the death of someone he sees regularly ITMS. His Grandpa (DH's dad) passed away almost 3 years ago, but he was in Turkey and D only got see him the two times he was overseas.

    D came up to me out of the blue a few weeks ago crying about what he would do if i died or if anybody close to him died. I just told him that it was part of life and that we will all die one day and for him not to worry as we weren't going anywhere soon.

    I'm sure it will be very hard on him when one somebody he sees regularly dies.

    No advice, i'm sorry Tan.