thread: Aspergers/Autism/Sensory Integration Chatter #3

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  1. #1
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    oh Lu.... I have tears in my eyes and stomach in my mouth.... I can't imagine how hard this is for you! How hard to hear that he isn't fitting in to the best place possible for him! BUT I LOVE the teachers attitudes, that they love him and want him back, what an awesome place.

    See, we would be in a similar position if M reacted the same way at her school, they just don't have the ability to have one on one time with these kids all day. They are nuturing and more involved, but they just don't have the capacity that larger schools have. I'm so glad there's somewhere he can get some intense help NOW.

    My BIL used to have teachers pass him around all day in Primary School. My friends mum was one of the teachers there & he used to get passed around because the teachers would bring him into the next class and say "I've had enough, I can't do this". My MIL has no idea that this happened to him in primary school. My friends mum used to take him all the time with her, she thought he was a lovely kid with heaps of energy and enthusiasm for what he liked, but he was misunderstood" Unfortunately, she wasn't there his entire education.... but she remembers him well. My BIL has asperger's and only got diagnosed this last year, he went through most of his life thinking that he was "evil" or "bad" because that was what adults tended to label him as.

    Thank goodness mindsets are changing and people are becoming educated.... for our kids sakes.... they won't be thought of as "evil" or "bad" just because they struggle with different things than "normal" kids do.

  2. #2
    Registered User

    Oct 2006
    Sydney NSW
    4,837

    Lu, the mum in my class gets funding for her DS with aspergers from DADEC (I think its changed names again this week but its dept for disability and aging) she also gets FACSIA (can't remember what that stands for!!) She seems to be right on top of all funding available so I will ask her for advice for you if you like. She has been awesome with advice about Riley.

    Riley is going to see a new OT who is heaps cheaper (I know it shouldnt be about money but sadly it is) and she is going to chat to speechie he saw a year ago, his previous OT who was great but as I said exxy and only did 1 hr sessions and was a 30 minute drive away, and also send a questionaire to his FDC lady. She will then see him and decide if he needs a referral to see a behavioural psyc. who is fab at diagnosing spectrum disorders. I finally feel like all the things are lining up and I may find out finally whats going on with him. I am pretty sure he has some kind of language disorder but the speechie didn't even test for that, she just kept saying how hard he was to work with- um der he wasn't yet 3 and he obviously had issues or he wouldn't have been there!!! Needless to say I didn't last longer than 3 sessions with her.

  3. #3
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    thanks for that mrsmac! I think DADEC is a NSW thing....will try to chase it further though.

    xxoxoxo

  4. #4
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    Sp how has everyone's week been??? Mines been up and down. I've been sick still with this stupid head cold that won't go away, then it travelled to my chest and I've got an infection now I had to take today off work in order to rest... and I slept 4 hours.

    M's been.... well up & down. Some days she's unbelievable, but then days like today, she's trying so hard and yet can't control herself... but you can see her trying. Its hard for everyone I suppose.

  5. #5
    Registered User

    Oct 2006
    Sydney NSW
    4,837

    Hugs Christy, hope you get better soon. We have to catch up Riley still asks about you and Erin loves M!

    The EI teacher from school has been observing R when they are playing with the pre school kids ( he is at preschool and the EI unit usually goes and plays with them in the yard) She thinks he may have verbal dyspraxia so we will investigate that.

    My ASD boy at school used to go to Lifetstart and his mum said that they had a meeting last night about school integration and that both she and the lady in charge of the program gave me a great rap for being kind, caring and making T's transition to school so easy. I got all teary, its nice to be appreciated and I feel so happy that his experience with maninstream schooling is so positive. (sorry to blow my own trumpet but I felt so proud)

  6. #6
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    We're ok here. I spose

    I have to move this weekend, it's been a really sad time for us. Even though I want to kill Nikki most of the time for his lack of patience with DS, and even though we argue all the time...it's going to be the last time we will be together in our fractured little way
    Nik won't be able to mosey on in and hang out with us anymore, he just won't be able to see the kids so much - or drive me crazy...

    I checked out the potential new school today. I really like it. 6 little boys speaking beautifully to the visitor (me!), in a quiet classroom with a teacher that clearly loves them but won't take an ounce of crap from any of them. If it sounds scary think again - firm, clear boundaries and rules are what keeps my boy feeling secure. I hope he can get in soon.

    You rock mrsmac, it makes all the difference in the world to know a teacher 'gets' what level your child is on. I have often driven away from school in tears of gratitude from DS's carers xoxoxoxo

    oh and I've started to blog our travels in autism land - http://luluandthecyclone.blogspot.com/

  7. #7
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    Lu as you know I love your blog. Its fantastic! I needed my debrief thread I put on here... it helped me so much in debriefing and seeing how much I actually knew about M. YKWIM?

    mrsmac, I don't doubt that you are an amazing teacher. You actually CARE about the kids which is a wonderful thing!