I found I was a bit lost for about a month after dx THEN the Autism Advisor called me, sent me the list of providers and it all went nuts from there.
Tan - why don't you call Autism SA yourself?
Thing is - no one will tell you what to do. After you get your funding "the golden ticket" lol it's up to you to arrange services etc - but once you are in the swing (well for me anyway) things really fly along.
this is why I started this second bloody blog of mine. I want to get this sort of information out there for the newly dx, there isn't much out there about the first few months. If you don't mind chickens, in the near future I will pm you for info about your own path to dx. It really seems to vary from state to state and it's easier when you know what to expect.
We had an adavisor or social worker for mario and as soon as he started school she dropped us like a hot coal. She was ment to get us a new social worker but nothing. I waited 3 years and went stuff it.....I rang around last week and now have a new case manager for ME the career who will support and help me with anything I need. I have bene set up with a playgroup for childs with special needs..offered respite left right and centre (not that we will take it) and just recieved a phone call to say they will fund me a year's memebership at my local gym for respite for ME!!!!!
I went to a carerrs day away that was organised by some volunteer group for careers. It was the best day because it opened my eyes to funding, help and shoulders when I needed them. Ive found in the last 8 years no one is willing to help you unless you go out and demand help. Yep...hard for us who dont like asking and it feels like Im begging sometimes but they are there for us to help us so I have decided if there is something they can help me with that I cant do myself then im going to ask from now on.
Sun is shining....birds are singing and we are all breathing
I hope you can change your mindset when it comes to asking for 'help' - most of the volunteer places have been set up by those with Spectrum Kids because they know and understand what a difference support can make to the entire family. I'm glad you are tapping into that network hun xoxoxo
I know 2 ladies who go to Lifestart with their kids and they have mum's weekends away etc. I have my one weekend a year in Melbourne with Holly to keep me sane LOL
Hugs Maz xx
Queens birthday weekends with the BB girls are my life savers. I let loose big time ...I know not alot of people get it and probably think the worst ofit but honestly..its the only weekend I get to not worry about what Wilhelm is doing let alone one of the other kids and have some fun.
We're going to Griffith this weekend......for our special guy's Baptism...yep he's decided to be Baptised and is so excited. He picked out a suit, his tie..even the ribbon colour and font on his candle spectrum much. Im touched and blessed at the people who he has picked for godparents...especially one inparticular and honestly...he couldnt have picked a more understanding and wonderful woman she gets him totally...dont you Raven.
Have started out therapy (maz version) with Mateauz today. UP and down... he's not permitted to go down until he say's the word up with hands up in the air...and it worked after 3 hours he said up and then went down......and I asked him down and he said NO!!! PMSL cracker but hey progress.
Maybe us spectrum mum's should get together once a year to get toally ****faced
...I know not alot of people get it and probably think the worst ofit but honestly..its the only weekend I get to not worry about what Wilhelm is doing let alone one of the other kids and have some fun.
spectrum much. Im touched and blessed at the people who he has picked for godparents...especially one inparticular and honestly...he couldnt have picked a more understanding and wonderful woman 
she gets him totally...dont you Raven.
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