thread: Aspergers/Autism/Sensory Integration Chatter #3

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  1. #1
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    *Lulu grabs the flagon, sinks the lot and passes around the Bourbon.

    Further points -

    *we raced through the dx to beat the clock for funding. Dx psych wasn't entirely happy with concrete aspy dx and did mention PDD-NOS and shades of other bits but god love her pushed it through for the $$$ and therefore extra help with intervention.

    *ODD was something I did research, in fact before Aspergers. ADHD didn't even want to consider because of the constant mentions of medication. He really does ping off the walls though.

    *He has not rated very high on the sensory tests either. After all that crap with the other stupid OT, a proper Autism-y OT has come to this conclusion. It's still there though.

    I don't think he is ticking things off (totally get what you mean RE), he seems to really be looking for connections lately. There is to AND fro. When on form he is charming. He engages people right back - when he approched the snake people, apparently he did it with such a smile they all grabbed him and gave him head noogies and he laughed his butt off.

    Jury isn't out either way but the ODD has always been at the back of my mind.

  2. #2
    Registered User

    Apr 2010
    1,118

    Had another minor argument today ... this is about a thermometer that remembers minimum and maximum temperatures. To clear the memory, you press reset. Pressing min (or max) twice returns you to the ordinary temperature.

    "Can I press the min button?"
    "Er, yes ..."
    "It says zero!"
    "That was last night's minimum. Press the reset button so we can find out tonight's"
    "I pressed min again! See, it says six again!"
    "That's just the current temperature, press reset"
    "I already pressed min!"
    "Can you press the reset button then?"
    "But I already pressed min!!!!"

    Ugh. I just took it off her and did it for her and showed her that now the min, max and normal temperatures were all 'six'.

  3. #3
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    good o - then next time she wants to press stuff, ask her which button does what...

    Maz, I don't mind the labels as long as we have access to help and early intervention.

    The best thing about it all is the fact I have got this funding. Without it I would not have been able to access the people that are helping me. Oh yes, I know my son better than anyone and we share a certain brainspace - but these people know about brain function and neuroplasticity in ways that I don't. These are the people that have a passion for the inner workings of the mind and have studied it for years, done stats, research and observations on many more children than just mine.

  4. #4
    Registered User

    Oct 2006
    Sydney NSW
    4,837

    I have had the BEST day!! I went to an inservice course run by Sue Larkey on Autism/ASD and sensory issues and it was inspiring and helpful and fantastic. She is an amazing speaker and I came home wanting to be her!! She started out as a teacher who had an autistic boy in her class and no extra help or training and has gone on from there to be an expert in ASD especially teaching.
    Some of the great quotes I got from today were:

    To know someone with autism is not to know autism. Everyone is different even those with ASD
    Choose your battles
    Without a label you will be mislabelled like badly behaved/rude/undisciplined .

    I have written a couple of pages of notes and I have some handouts too. She has written a number of books which I am hoping the school will buy.
    Anyway enough of my new girl crush LOL

  5. #5
    Lucy in the sky with diamonds.

    Jan 2005
    Funky Town, Vic
    7,070

    I'm SO JEALOUS!!!!!

    Isn't it amazing to hear someone so passionate - and what a fascinating subject.

    I'm really annoyed I never became a teacher, because I'd love to be able to support kids in the school system...bit too late now dammit!

  6. #6
    Registered User

    Oct 2006
    Sydney NSW
    4,837

    There were parents and teachers aides at this course too. It never too late Lu!!

  7. #7
    Registered User

    Oct 2003
    Forestville NSW
    8,944

    Hey guys!!! Sorry I've been outta the loop, I've had heaps going on here at home, not all to do with Matilda though, more to do with family overseas.

    I love those quotes Christine and the "Choose Battles" thing has been a motto in our house for the past 4 years, glad to hear its a good one

    I'm so exhausted all the time right now. I wish I had the energy to contribute more, but I will get back to myself sooner or later.