Lilima I am glad that some one came and sat and explained it all to you. Sorry that it didn't happen that way first. Sounds promising that they are going to look at getting J some extra support.
Lulu I don't know how I managed not to loose it at this child's mother. I think the fact that I was so focused on trying to get Hamish to breathe and help him as much as I could.
I am still quite angry , especially when Emma told me after that the two boys had turned it on and knew that it was hot. So they knew it was hot and they still told him to touch it.. I cannot get my head around a child that does this.
Emma also told me that the child tried to blame the other by saying he turned it on. I am really mad. I know this Mum quite well and we have been friends for a while. The boys went to kindy together. Unfortunately she also sees this one child (she has two) through rose colored glasses.
As for scaring we are not sure yet, he has some dressings on , which are meant to be on for 7 days but already today he has been picking them off. He hates anything on his hands and the tape holding the dressings is driving him crazy. Tomorrow I have to go get it re dressed. I can see some very nasty blisters and some skin which is dry and cracked. My main aim is to try and keep dressings on and infection out. I am aiming for Wednesday that the blisters still be intact. I guess we will know then as he is going to the burns unit so they can have a better look.
It appears that the main concern is the large blister he has which is at the base of his fingers, we are hoping it will not tighten and impair movement.
I cannot believe a trip to the local park for a picnic would end in burns... I watched him like a hawk next to the creak. I stood next to him as he climbed a tree and i watched as he happily played on the playground and rolled down the hill. I never expected a burn, we were not using the bbq's and were no where near them.
Today Emma sat him down and told him that she didn't think he was a very good friend and Hamish told me he doesn't like him anymore. He was quite upset because this little boy is coming to his birthday party in 2 weeks, that's if he can still bowl..he is meant to have a bowling party.
Sorry I just rambled along trying to get my thoughts out of my head. While Hamish lay sedated in hospital I shed a few tears with a wonderful nurse as I explained what had happened and about his Aspergers. She sat with me as I cried wondering if we will always face these challenges. I am thankful to her for taking the time to sit with me...
Last edited by tan32; October 2nd, 2010 at 11:06 PM.
: add some more rambling
Tan. Poor little Hamish It's so saddening that even at such young ages, there are others who will take advantage of his condition (as it seems that this is what this little boy has been doing, and it's incredibly disturbing that his mother won't acknowledge his behaviour).
Heya girls! Sorry I haven't been around, been working heaps and I got sick while working... blah blah blah.
OT. Occupational Therapist. The kind our children generally see are paediatric sensory OT's. To get a good one, you need one that understands Spectrum issues as well as SPD (sensory processing disorder). If they don't know what SPD is.... move on.
88% of kids on the Spectrum have SPD. All of their issues with SPD are different, some kids only have one area, others have different ones and sometimes they have them all.
Pre-OT Matilda was 4 years old and screaming 3 hours a day and having meltdowns where we had to physically restrain her and escaping once or twice daily and running away. Matilda is now 6 and after 18 months of OT it is rare for her to have a full meltdown. I can happen maybe once or twice a month and she doesn't run anymore at all. I can now go to the toilet and shower without dead bolting the house. The OT helps them learn how to cope with their sensory issues, and has helped Matilda learn how to teach her body to calm down when she gets upset.
When Matilda got anxious, she would breath shallowly and almost hyperventilate when she was winding up for a meltdown. The OT taught her how to take deep breaths by doing exercises and games with bubbles and races with those blow toys... (think party noise makers). She gave us a listening tool to help Matilda cope with different noises (AMAZING!!) and gave us exercises to train Matilda's body to hold urine and be able to make it to the toilet.
I know that was just a peek into what we do with the OT, but I thought I'd write it out for you all
Oh Tan my heart breaks for him I hope his hands are okay.
Lilima, the ipod touch is an awesome idea, I have known quite a few spectrum families who have gotten them on funding. I haven't tried yet, but I will
OMG Tan, I feel sick reading about what those monsters did to Hamish. To me THEY need some psychiatric help, I am a teacher and that kind of behaviour is disturbing in the extreme. Normal children do not encourage other children to do things which will harm them.
Will come back later and write more about OTs too!!
Christy - youalways have awesome information to share.
Nelle - How is Riv going with Spath? What are they hoping to achieve for him in OT?
I hope everyone else is going well.
I am still not feeling the best about everything. I really want to pull him out of this EI and find something else, but as we are semi rural, the options are limited. I think because I have anxiety, I just make the whole thing worse for J.
I got a report back from our psych yesterday. She has written it in fairly strong terms to ensure we can access the maximum school aide funding....but it's still fairly confronting to read.
Well... we are about to have a quirky kid meet up tomorrow at my house!! If anyone else with one of our super kids is in Sydney, you are more than welcome, we will be meeting up at my house from 11am so PM me & I'll give you details in the morning
Us... well we have a friend who is 11 and spends every Wed after school at our house. She has issues. Her mum is over it, over being yelled at constantly and having a child who is explosive. She said she wanted to rehome her daughter but her ex husband wouldn't agree to it, he thinks there is nothing wrong with T. I adore T. Yes, she is definately quirky. Yes, she has issues, but I love her. I have her a few days a week during school holidays, I have her one arvo a week after school and I have volunteered a bedroom for her if her mum needs a break.
Anyway, I suggested to her mum that she go to our OT because she was over the explosions. I said, if anything the OT can help T learn how to physically calm herself down. but her mum is really on the edge. I love T and I hate to see this happen to them. Anyway, she went to our OT and phoned me afterwards. She said "OMG... I walked in and she knew T. She knew all about the way T works. I don't understand, I read about SPD and it doesn't make sense, she's not like that but I don't know." I explained that T has learned coping mechanisms in her world, and when she gets home she explodes with mum because mum is the one consistent thing for her, the one with unconditional love so T can relax herself.
Tonight I took T through some OT stuff... we talked about exercises that would help her. She said she didn't want to scream at her mum, and her mum cried. Their next appt with our OT isn't until next November, so I showed some exercises that the OT asked I show to them. T promised me she would do it. So we shall see. I told her the next time she came over I would check and see if she had, because she has 0 core strength and I would know.... I feel a bit over my head doing this for someone else, as I am NOT an OT, but I did as the OT asked me to do, exactly what she asked me to do (she sent me a letter). So hopefully we will see a corner turn for T. She is supposed to go to high school next year, but I can't see how she can do that. She's one of those who would turn to drugs etc because she just doesn't feel right within herself, ykwim? I just don't want to see that....
Anyway... M had a tough day today, we had a play date prior to T coming over, and that always sets M off.
Tan. Poor little Hamish 
It's so saddening that even at such young ages, there are others who will take advantage of his condition (as it seems that this is what this little boy has been doing, and it's incredibly disturbing that his mother won't acknowledge his behaviour). 
but her mum is really on the edge. I love T and I hate to see this happen to them. Anyway, she went to our OT and phoned me afterwards. She said "OMG... I walked in and she knew T. She knew all about the way T works. I don't understand, I read about SPD and it doesn't make sense, she's not like that but I don't know." I explained that T has learned coping mechanisms in her world, and when she gets home she explodes with mum because mum is the one consistent thing for her, the one with unconditional love so T can relax herself. 
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