Now that you have some resources it may be worth working out a sensory diet, and making it part of the routine. I've found this works really well. We can provide the stimulation my DD needs in the areas she seeks or needs jump starting, as well as working on introducing and managing the things that set her off in a controlled environment (she is sensory seeking textures, scents, oral; sensory avoiding noise; and under-responsive vestibular and propriopeception). I've also made sure I have her school's timetable so that I know what sort of stimulation she's had during the day, so I know if she's only had furry or rough texture fixes all day I need to provide her with something gooey for instance.
Oh OH OHHHHH!!!! I found out something this week. Did you know families with ASD can get disabled parking passes? Apparently its well known that ASD kids are runners.... so they feel its safer for them to park closer to shops etc...
I found out because DD went running and I was talking to my GP about stress levels.... I mentioned the running in the car parks and she said that we could get the permit. I went to the RTA and all you need to do is pick up the form, go to your GP and get them to sign off the diagnosis along with your ASD diagnosis letter from the Gov. then you get the permit!!! I can't believe it... all these years and the numerous times she's run out in front of cars. All my grey hairs....
hey, would I have to wait for a definate diagnosis to get the carer's allowance (or payment, can't remember which it is), or can it be approved after seeing a gp while getting all the assessments done before diagnosis...? I'm thinking after diagnosis & back pay??
Good luck with the carers payment without a diagnosis Skye. We've applied TWICE and had all the different medico's say there is something most def wrong but we're trying to figure out what and they STILL wont give it to us. I hope you have better luck though.
Well apparently I would've been eledgable back when Bri was just doing speech therapy, but I was only going every f/n & it was free, so I didn't worry.
I talked to the principle today (Bri's teacher is away) & she should be sending the report home from the councillor to go to the gp in the morning, then we have a 3 way conference/parent teacher interview tomorrow afternoon.
She said that Bri was improving, but has slumped again. She's very happy with DD1 though I'm so proud of that I could cry! She's so difficult at home.
DS is in melt down mode today. He's always been easy to set off, but today was a real winner. We didn't walk out the right gate from play group, so the screaming started... half hour later he settled long enough to tell me he was ready to go to his mates house, but that the car had to drive itself (sure!)
Then just any little thing, so I brought him home & 5 minutes later he's crashed out. I think he's coming down with the flu Lets hope he doesn't share.
I'm outta coffee, sugar AND coke! I dunno how I'm gonna survive the next 2 days til I can get more!!
Ok, just heard back from the school councillor.
She's given me her number for the gp to ring her & talk about Bri, but hasn't done the report on her yet.
She said there is definate Attention Deficit, but not ADHD, & she's sure there are no problems with visual processing.
Bri is low average on what ever acedemic scale she measured her on, but she said she's quick witted
She's agreed that paed & OT are definately a good idea.
We saw the new paeditrician today for a 3rd opinion. I think I could cry.
Finally we have answers. He's got Aspergers. The paed said he didnt even need to do a "test", he could just see it in everything he does. Plus every concern I raised about him ticked off all the boxes. So now we're waiting on the diagnosis report and we can get the ball rolling for the FACHSIA funding so he can get into OT and we can catch a break from spending ridiculous $$$ on appointments here there and everywhere. He said he was proud I trusted my instincts because early intervention means he can learn to cope and we can learn to meet him halfway, so everyone is happy.
I seriously could have kissed the man. Now I really belong here. And I really wish Lu was around so I could pick her brain about Aspie wonder boys
oh Freya its great to have someone FINALLY agree with you.... I'll be here, I know I'm not as good as Lu, but she and I held each other's hands through it all....
So guys, is it true that the auditory processing testing can't be done til they are 8?
We had the gp yesterday. referral to paed & OT, as well as number for private OT who will BB so we can see her before the paed.
Spoke to the school councillor tuesday... She thinks there is a definate attention deficit (ADD, not ADHD), but said alot of her processing is fine (visual).
Said Bri is on the low average scale of learning, but is 'quick whitted'. So this is the reason they would repeat her if they thought it necessary. If she was slow whitted, they wouldn't (not too sure what I think of that whole thing...)
Thats all i really know til i get the report. She definetely agree's the paed & OT are the next places to go!
They tested my DD at 5, so unless it is a new thing, you should be able to do it before 8.
I kept my DD home for a "mental day", i.e. a day off from school. She was beautiful! I'm now seriously revisiting the possibility of having to homeschool again because the change was so obvious and large. This week she had regressed even further and in some places has gone back almost 4 years, I'm becoming really concerned and the school just doesn't get how they are responsible for it despite multiple meetings. The fact that they've refused to do in any personal development (which is free) is ringing alarm bells.
I keep meaning to pop in here, although we are only going through the diagnosis journey now. Hope you don't mind me crashing the thread. It just seems like this is the best place for advice and info.
We should have ds's diagnosis on the 20th, seems so far away but, i know that's actually really quick.
Had an appointment yesterday, I'm not sure what about what she is thinking. She said ds is definitely more than just shy, he seems threatened. She mentioned tactile defensiveness a few times and said there looks to be strong sensory issues. She did say he isn't autistic, but that he does have some of the symptoms. As for his development, he's above normal mentally but a little below in fine motor.
So, all in all, I'm just completely lost! I keep going over what this could mean, is he just this way and that's l there is to it, will he need treatment, is there a name for this? I don't think I could bare being told that he just is this way and they can't help him. I want him to be happy and I'm struggling to do that by myself.
Sorry for the vent, and crashing your thread.
X
Last edited by loulabelle; April 1st, 2011 at 06:42 AM.
I'm so proud of that I could cry! She's so difficult at home.
Lets hope he doesn't share.
I'm so pleased you can get some help for your precious boy now x
Bookmarks