Ah ha! I see, it isn't just us at all.... digs not only a hole, but a HUGE dam which we can all float in and hopefully the kids will wear themselves out while we float with our vodka and cranberry..... (tis the season and all).
Swimming is awesome for ASD kiddos. Their low muscle tone makes it hard, and a different exercise for them rather than for NT kids (neuro typical). BUT it helps work on the core muscles and therefore is relaxing for them.
*sneaks over and grabs a welcome bag for the rum of course.... now.... margaritas anyone?*
*maz waves empty glass(s) at christy*..... PLEASE TOP ME UP LADY!!!!!
Since W was little Id run a shower for him, he loves the feel of it pelting him yet HATES the rain I breed weird kids.
We had a lovely date, W and I....not one wig out , happilly licking his double scope chocolate icecream and wearing his Australian flag thongs cause darn it
'they just dont make the correct American stuff here in Australia mum'
Yes my W is now hell bent on everything American. He hate's being an Australian and tell's me we're all dork's which is nothing like all his good American friends ( I have no idea so dont ask) mind you he tell's me this in his fake American accent. Im actually considering buying him an American flag and mkaing him remember all the states ect cause im NASTY!!
*maz skull's last bit on vodka from bottle*
hick...Inow have old lady feet from having them soak in this dame to long now
Maz, did W know that we just went to the US? Maybe he cottoned on to us going to Disneyland and the fact that I still have a bit of an American twang.... really, maybe its just me he loves :P
Okay, I'm making some sorbet for Christmas dessert.... cranberry, lime and vodka.... nommmmms
Just a quick pop in, its nearly bedtime for the kids and I have Krispy Kreme donuts calling my name beside a pot of tea.
This paed was not a douche. He took in everything I said while watching Ripley play and interact.
He came to the conclusion that at this point in time he wont diagnose anything other than a severe developmental delay. He assessed him to be more like an 18-24mth old mentally than a 36mth old. Which could account for the speech issues and his behaviours (and the no toilet training). He agreed he does have a few notable ASD tendencies. So the plan of attack for now is regular OT and keeping up with his weekly speech. He wants to see us in June to reassess where he is at (and hopefully miracle of miracles he will be closer to his age capabilities than he is now) and most likely we'll see a child psych for an assessment as well after that. Im happy with that. I understand he wants to give Rip 6 more months to try and get ahead without delving into diagnosing a disorder. I dont think there will be much change but I would love Rip to prove me wrong.
Now I have to find a private OT to fit us in ASAP and the $$$ to pay for it seeing as Centrelink refuse to give us Carer's allowance &$%@.
Its so nice to finally have a weight off my shoulders with some support and a plan in place. Seeing as we dont fit the A/A/S diagnosis at this moment I'll go back to lurking but THANKYOU THANKYOU for all your help, advice and support.
im just really looking for an outlet at the moment and to gain some knowledge on what im looking for and what are obvious signs that im overlooking..
My son has Adhd and has also got signs of autism but dr will not diganose him due to his vocabulary and speech..
He told me my son has signs of High Functioning Autism but he still cant seem to wrap his head around my ds's intelligence and therefore can not be diagnosed with autism.. I just want a full diagnosis to help my ds and also take some weight off my shoulders
Some things he does just so you can tell me what you think:
He constantly is hiding under tables and chairs basically anything he can fit under.
e.g- today he had a sepcialist appt and my son spent the time under his desk (dr's desk)
He acts like he is a baby and always causes a commotion when out in public. drops onto the floor and becomes limp and babbles like a little baby and will yell out silly noises
He is ok on eye contact but will only give eye contact to people he trusts
My son also has adhd so at the same time he is hyperactive its very confusing..
I have to basically tell him 2 days in advance where we are going to try and prevent a episode but usually doesnt matter his always going to do it whether i like it or not
He hates crowds if i take him into a shopping centre he will get frustrated and revert to baby like behaviour
He is extremely sensitive to noise even if my dd cries he covers his ears and even a car door shutting.. This due to ongoing hearing probs since birth but still highly affects him
He will never eat food with out wanting to know what it is all about and smelling it and looking at it
He also gets extremely aggressive if you breach his space boundaries and can not play with anymore than 1 child before he goes off his rocket and i mean extremely violent
so much more but i dont want to go on and on,,
Im just really at a breaking point, I know his only 4 and i shouldnt look into it so much but its that out there it gets pointed out to me.. he has been expelled from pre-school abused at prechool due to his issues by a teacher, i feel like im going to lose my son and never see the real him ever again...
I really just wanna break down and cry cause i just want him to be at peace and happy.. and i know his not... even looking in his eyes i see dispear..
Tan, You need to do what is best for Mr H, and I remember reading that post. Those boys are the worst thing for him right now. If that means a change of school then it is definitely worth looking at.
Zaki, Contact someone at the NSW Association for Gifted and Talented Children (NSWAGTC). They are a wonderful group of women, some who were in the same position as you with higher functioning spectrum children. They might be able to help you with a contact for a paed that DOES accept HFASD and can get him the help BEFORE he is too old for the funding. There is a cut off and it sounds like his Dr is messing you around.
Had our Paeds appt yesterday. She is looking at Spectrum for Princess. Have a battery of blood and urine tests for her including iron, lead, thyroid, blah blah blah. That is going to be fun, but she told me to take it to Lismore Base because they have the people to help.
Also she said that due to the HG I suffered and Princess' low birth weight we will have future weight problems. It is hard because she is constantly hungry. I am going to go talk to a chemist to see if there is something we can do about that. Its just started on her too, she went from healthy weight to at risk in just a couple of weeks.
Dream of perfection shattered =(
She things Tsunami is ADHD as well, but as I said to her, he isn't hurting anyone or anything, including himself and so if he is, its only his lack of concentration so I would prefer to NOT medicate my boy just for that. So she told me to use fish oil to see if that helps, obviously mentioned diet but we have already been eliminating our nasty numbers.
With Chill, she just thinks that the stuff that is worrying the school is not entirely a "him" issue. He is in survival mode after the last school and she feels that its not really anything she can help with but will keep seeing him more sparingly as she doesn't want him to develop depression and anxiety from it. (For those that missed, he was shoved into the path of traffic and threatened with a knife at his last school - hence why we moved).
Tan, sounds like a change in school might be the way to go
Zaki, I can see some similarities between your DS and my DS1 hang in there, no advice, just hugs
HA, Massive HUGS for you too, what an overwhelming day. How old is princess and how much does she weigh?
We are still trying to settle in to the house, every bit of wind and DS1 freaks out and says "roof not come off" poor thing, he's terrified now.
I found something that helps calm him down today... it's not exactly the best thing, but it is at the same time iykwim. It's my vibration machine! He sat on it for about 2 mins and is now still calm after 30 mins! that's a record for us!
Last edited by Early Kids; February 10th, 2011 at 05:20 PM.
Firstly I'm so sorry for the selfish post. . . .I have not had a chance to read this whole thread yet.
I finally did it. I got the courage to have a good chat with DD's daycare teacher today about my suspicions that DD has a sensory disorder and her teacher did agree that DD has certain traits.
I have suspected something for a couple of years but the only thing thats held me back is the fact that DD is actually very social with other children so I kept telling myself that she is okay.
The main traits that DD displays are:
She wont look you directly in the eye
She is always on the go running around etc.
She is very very clumsy. She seems to trip over thin air and always has bruises on her legs
She is very tactile. hates cetain textures, dislikes anything woolen, hates getting creams or sunscreen put on, hates toothpaste on her toothbrush etc
She is very into routine and really strugles with change. She will have a major meltdown to the point of being inconsolable at anything that is different.
She has an awesome long term memory and is very intellegent. Boy is she intellegent.
She has been quite slow to TT and still refuses to poo in the toilet
She kind of seems to lack empathy.
I'm sure there is more that I just can't think of right now.
I have made an appointment with our local child health clinic to get the diagnosis ball rolling. Can anyone here tell me more about what the process will be? Her daycare teacher said they will probably send them forms to complete about her behaviours at daycare and may also visit the kindy to observe her.
MamaSpice - your DD sounds like my DS (he isnt much younger than your DD, a Jan 08 baby!) except my DS can look you in the eye sometimes. We're currently trying to figure out our best avenue for assessment. Our first step was to go see a child psychologist as they are the ones who can do the assessments. He is in speech therapy atm and should be in occupational therapy but unfortunately we cannot afford the private costs right now. Your DD's daycare teacher most definitely should put any observations in writing, my DS's daycare teacher is currently doing a social and behaviour observation report up for us. You've come to the right thread for advice and support, the ladies in here have been wonderful to me since we started on this rollercoaster!
Ugh. Things are not good with us. Rip's daycare teacher pulled me up last week to raise concerns over his social behaviour. He has become quite a loner at daycare now, he doesnt play or speak with any of the other kids, not even his little twin 'girlfriends' from whom he was inseparable before the christmas break. She mentioned it again this week; and that she was going to start observations and write up a report for us to give to his assessors. Even she said he isnt the same kid he was 6mths ago.
We're currently saving up for his assessments because the wait lists for public assessments is a million months long. We should have it all done by April.
Her triggers are usually quite obvious. It's usually when something is not "how she thinks it should be" eg: she dislikes the fan on when she goes to bed but it's so freaking hot we usually turn it on for a while after she's gone to sleep. Anyway, she woke up at midnight and noticed the fan was on which lead to a 1 hour meltdown. Even though we turned if off straight away. Another was, I had to strip her dora sheets off her bed cause she wet through and even though I explained why and that they'd be back on asap she lost it cause her dora sheets weren't on the bed. Stuff like that. And it's not just a normal tanty, she really struggles.
I hear ya that's exactly what we get here. DS1 has 'cars' on his bed and washing those is an absolute nightmare! He also has a security blanket... which goes EVERYWHERE, couldn't even tell you the last time it was washed We are still trying to work through those ones and it's really tough, as you know.
Welcome to the thread Mama Spice. I truly can relate. I used to wonder when the cops were going to rock up on my doorstep. I am sure some kids not liking bath time is normal, but the screaming from Princess during a bath was something else entirely. My ears would be ringing for hours afterwards. It has thankfully passed over now and bath time is not the nightmare it used to be, but she is still set off by the tiniest thing.
Tan: I am so glad to hear they have come to the part with helping Master H. Hopefully this will be an extremely positive role for his future now. Especially learning about 'real friends'. May those boys never get near your boy again =(
Hurry back, Clover!
Here, I have a problem.
Princess was moved into SPED for the last term of 2010. That was fine and we were pleased, only this year her new teachers (yeah, plural - not at the same time! UGH! Job sharing special needs kids, you have GOT to be kidding me, right???) have this policy which DH and I are having an issue with. We have to go pick Princess up from class or the quad (after all the other kids have been picked up and her teacher brings her up). She is not allowed to walk to the car herself.
This is a independence skill she has had for 2 years. She has been walking to the car without issue or drama since year 2. I understand if its a whole classroom thing, but we are very very worried that it will drag her backwards. People only have to suggest something and she runs with it and won't change it. Someone once said her aversion to white foods could be a dairy allergy, and now nothing at all ever in the world is going to convince her she is not allergic to dairy food. She isn't, but she wont believe us or the paed that she isn't.
If they make her believe she needs to be picked up from the quad, her ability to independently navigate her way around is going to be utterly destroyed.
Problem is, I don't think the school is going to change their mind on it. I am going to try but it may not happen. Being regional, we don't have any other school options either.. so here is the problem.
She coped mentally and emotionally in mainstream, she just wasn't doing it intellectually the way all the other kids do. But if I have to, should I ask them to put her back in mainstream and supplement her learning at home?
Early Kids, DD has a security thingy too, hers is one with a ducks head on a blanket. It's her "duckie" and god help us all if anything ever happens to "duckie". She is good at Kindy now she only has it at rest time and the rest of the time it stays in her bag so that's a step forward.
Honey Aspen. DD has been okay at bathtime but HATES getting her hair washed and she HATES bubbles in the bath. We had a moment last week where I put some pinetarsol in the bathwater to try to relieve her ezaema. Big mistake. She lost it at the bathwater being yellow. I had to pull the plug and start again. Oh and she very matter of factly told me to take the pinetarsol back to the shop!
What a pain that they wont let your DD walk to the car on her own when she is very capable of it. I agree with you that it could be detrimental. I hope you can get a resolution (and that the school see sense)
I keep meaning to pop in here, although we are only going through the diagnosis journey now. Hope you don't mind me crashing the thread. It just seems like this is the best place for advice and info.
We should have ds's diagnosis on the 20th, seems so far away but, i know that's actually really quick.
Had an appointment yesterday, I'm not sure what about what she is thinking. She said ds is definitely more than just shy, he seems threatened. She mentioned tactile defensiveness a few times and said there looks to be strong sensory issues. She did say he isn't autistic, but that he does have some of the symptoms. As for his development, he's above normal mentally but a little below in fine motor.
So, all in all, I'm just completely lost! I keep going over what this could mean, is he just this way and that's l there is to it, will he need treatment, is there a name for this? I don't think I could bare being told that he just is this way and they can't help him. I want him to be happy and I'm struggling to do that by myself.
Sorry for the vent, and crashing your thread.
X
Last edited by loulabelle; April 1st, 2011 at 06:42 AM.
Clover and loulabelle, all the best for getitng your diagnosises done and dusted.
I kind of feel like I'm not sure if I belong here yet either seeing as we havent been diagnosed yet. I'm still pretty sure DD has aspergers, although quite mild. I've been reading a book at the moment that talks about how girls are often more difficult to diagnose as they learn to camoflage some of their behaviours from a very young age. The book is called The complete guide to Aspergers syndrome by Tony Attwood. He's a clinical pychologist in Brisbane who works with and diagnoses aspy kids and adults.
Another reason why I'm convinced she is an aspy kid is I'm certain my DH has it, and they have striking similarities. He has never been officially diagnosed (apart from his paed telling his mother he thought he was mildly autistic as a toddler - to which my MIL refused to acknowledge). Does anyone else here have a spouse or other family member who has signs? I've read that 40% of aspy kids have a parent who has it too.
DD has been very tough of late. I think it's a mixture of her aspy tendancies with the usual 3 year old defiance added into the mix. Oh boy...
Just to bounce something off you all. How has your child been when you have added siblings? DD is getting used to DS but when I ask her if she wants another brother or sister she always replies with a definite NO! I would dearly love another bub (unless we're having a bad day then I'm like, that's it! I couldn't handle another, lol), but I worry how DD will cope and that it will compromise the amount of time I can put int DD if that makes sense. I almost feel guilty for wanting another ITMS.
BellyBelly Life Subscriber
Aspergers/Autism/Sensory Integration Chatter #4
PLEASE TOP ME UP LADY!!!!!
I breed weird kids.
, happilly licking his double scope chocolate icecream and wearing his Australian flag thongs cause darn it
I have no idea so dont ask) mind you he tell's me this in his fake American accent. Im actually considering buying him an American flag and mkaing him remember all the states ect cause im NASTY!!
that's a record for us!
Honey Aspen. DD has been okay at bathtime but HATES getting her hair washed and she HATES bubbles in the bath. We had a moment last week where I put some pinetarsol in the bathwater to try to relieve her ezaema. Big mistake. She lost it at the bathwater being yellow. I had to pull the plug and start again. Oh and she very matter of factly told me to take the pinetarsol back to the shop!
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