Things are going okay, I'm waiting with baited breath for Tuesday's assessments. They are the final ones prior to all the different groups meeting together to decide what they think.
BIL was diagnosed with Asperger's on Tuesday and has been having a hard time the last few days coping with the reality of it. I am finding that supporting him through this has helped me. ~Saram~ was so lovely & met me on Friday at a park & we had a brief chat while chasing children. She lent me 2 books on sensory processing/integration which I have had a quick skim over, and am looking forward to reading through some of it tonight.
Of course today she went to an indoor playcentre for a birthday party & did extremely well. She came home & had to destress by laying in bed with lights off and no sound but after 15 minutes of that she was ready to get up & eat lunch and have a real rest.
Last edited by christy; September 28th, 2008 at 03:33 PM.
Well I hope when they all get together for their meeting that they can come up with a definative diagnoses (or none would be better) so it ends all this too-ing and fro-ing for you. I'm really happy for you that she coped so well after the party today, it must give you a few anxious moments when you come home before you know which way she's going to wind down from it all.
Christy - it was great to catch up with you, Matilda and Jovie - next time I'm bringing a baby sitter so I actually get to sit down and have a chat :-) Hope the assessments are going well and that you have some answers soon.
We have had such a difficult week with coming home from Brisbane (including our car breaking down in Mackay so an extra motel stop over + now having a hire car - not good for our routine) and trying to get back on our diet after the usual holiday + grandma diversions. Xander is so depressed and emotional at the moment it's like he is a ticking time bomb. We have another OT session tomorrow and I'm not looking forward to it as OT under stress never ends well :-(
I can understand that now Saram. Matilda had such a terrible arvo because our routine broke down. We had the real estate through our house this arvo and we had to be out of the house, so I decided to pick Matilda up & go to the park. You would think it would be fun, but uh... No. The entire afternoon was stressful.
Thanks for those books! I've been understanding Matilda better and better from reading them.
I'm having a terribly hard time with DD at the moment. Knowing she has sensory processing disorder made everything a little easier to handle everything, but lately its just been awful. Her moods are terrible, not one single day ever goes by without some major big meltdown. She si rude, answers back, defiant, when she gets introuble she cries like you wouldn't believe it, screams at the top of her lungs, yells out all sorts of things (along the lines of AND ITS SO UNFAIR AND YOU DONT EVEN CARE ABOUT ME YOU JUST CAR ABOUT EVERYONE ELSE AND I WONT EVEN LISTEN TO YOU NEXT TIME YOU TALK TO ME AND BLAH BLAH BLAH BLAH)
If i ask her to do something - put your socks away, pack your school bag, tidy your room, no matter what, she carries on like she is so hard done by. She has tantrums all the time, its almost like walking on eggshells around her.
She is an angel one minute, then does a complete 360 and acts like a little monster. She'll get put in time out, she'll scream for over half an hour then come out like nothing happened. If i try to speak with her about why she was acting like that, about why she was put in time out, about why she thinks i was upset and what made her upset she just gets all vague and tells me she doesnt know, or makes up an answer that she thinks might be right. Its like she's learned things that make you upset, so she'll blame that (eg: I miss my dad) when she never any other times misses dad. She sees her dad every few weeks and calls him when ever she likes, but she never gets upset over anything to do with him.
Sh'll settle down after a big tantrum, be all nice, then 5 minutes later ask for something and if i say no it starts all over again. Even if i tell her there is something really special i want to do with her, or take her to, but that if she wants to do it she has to behave herself, and she'll get so excited and can't wait and within 5 minutes she's screaming and carrying on again that something isn't right. Every single thing i do with her ends like this, whether it be a walk, shopping, visiting peeople, going out for coffee, and it just doesnt make sense.
I'm again at my wits end, i ended up smacking her today cause nothing else was working. I'm just having such a hard time of it
Came across some information on ODD (Oppositional Defiant disorder) and it kinds seemed to explain her perfectly. Does anyone know much about it, is there a link between sensory processing and ODD??? I just dont know what to do anymore.
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