Aspergers/Autism/Sensory Integration Chatter

[Lilly-Pilly]

Christy, how has the translations part gone??

Welcome KidsAreLIfe

[christy]

Well the OT translation went as we expected. She has sensory processing disorder, she got definates all the way.... So now its the wait and see another 2 weeks for the rest of the results. We got the physio back, and it doesn't really indicate one way or another about anything. Just she has low muscle tone and needs to work on evening out both sides of her body (there is an extreme difference from the left side and the right side in strength).... so I have no idea what that one means!!! I don't know if it indicates anything. I'm happy though not to worry about that until the final results. Whatever the case is, I feel justified already in having the assessments done and having the sensory processing diagnosed. I knew she had those issues already, but I guess I wanted someone else to say it was so... someone in the know. YKWIM?

[maz]

Oh hon - atleast you have something to work on now. Make it a positive.....let it help you to stand up and get things organised for her. We have low muscle tone with Mateauz...he couldnt move his left side after his strokes as we made sure that everything that he had to move for made his left hand side work....God I wish I lived near you so I could show you the physio I do!!!! yes we still do it..its not 4 times a day but its 1 -2 a day now. Oh and Massage helps heaps too.

Now anyone noticed what a weeks its been with our kids??? Dame full moon!!! it always sets Wilhelm off. Ive had such a bad week with him...ive cried so much the last few days. I took him to school tuesday and he didnt want to go so I took him in and when I went to leave he had a massive tantrum fit...to the extent of kicking, punching screaming and stomping up and down on the spot. He's never done that to me before and I felt so horrible leaving him at school afterwards. It so broke my heart...I had the 2 little ones with me and Vy jsut cried and cried (Wilhelm and Vy and very close) I had a horrible fight with Jed about it cause he set him off...he yelled at him in the morning and when he's in a bad way its the worst thing to do. I am so looking forward to this saturday cause I get some me alone time for the first time in 3 years but then Im so worried about leaving the kids...especially Wilhelm. I could cry about this now as im writing it. AHHHHHHHH

On a different note...sunday morning we made some coloured rise (which is agreat sensory thing to make and let play with) for the kids. The department for special needs kids have it here as a treat when the kids have done the right thing in their work. Made some rattles for mateauz out of it and a little box for Wilhelm so he can run his fingers through it. It helped him calm down last night thank god.

Anyway enough dribblings...Mauws Christy

[~Raven~]

Dee good to see you! Sorry I have no suggestions for ODD.

Hi KidsAreLife! Need the long hand for these abbreviations PDD - NOS. Sorry don't understand but could be having a vague moment.

Christy I know it's hard for you ATM but like Maz said once it's official you can get the help she needs.

Maz full moon! Hmmm didn't even consider that.

Mason has had a few playground incidents in the last week or so. We got an official letter because he kicked another child. We had a big chat with him and he knows it's wrong but in the moment he can't control what he does. He has been the target of an incident earlier in the year when he was dacked in the playground and since then he has been quite aggressive. Poor little mite was mortified that everyone saw his bum.

[christy]

oh poor thing Raven. I can totally understand. Matilda was sobbing this morning about having to go to Montessori... apparently she has no friends She's 4!!!! So when I went to drop her off, she ran up to one of her "friends" and punched him. Ways to win friends and influence people

KidsAreLife - Welcome Are you on the Aspect site as well? I've been lurking and reading there...
Saram told me about it.

Maz this week has been full of illness as well & generally on the bad sick days, Matilda's behaviour is much better. But then she gets better & gets more and more crazy. Jumping off walls or bunk beds... anything really. I sent her out yesterday to jump on the trampoline even though she is still coughing just to get it out of her system.

[christy]

Sam - Just got this off the Yale University website:

Pervasive Developmental Disorder, Not Otherwise Specified (PDD-NOS) is a 'subthreshold' condition in which some - but not all - features of autism or another explicitly identified Pervasive Developmental Disorder are identified.

[KidsAreLife]

Raven sorry theres 5 parts of the autism spectrum and my son is pdd nos - which christy beat me to it. lol very well described there. thank you.

my dh has asperges which have been where my son inherited some of the gene from which sucks. very worried if we want another child.

christy - i will google the aspect site. i dont know what it is. are you able to pm me about it please??

hmm what can i say. he had a good day yesterday on his birthday but only a bit unsettled today. dreading tomorrow at playgroup. he seams to be ok except at the end when they all sing songs its a bit to much for him so my dh takes him outside for some quiet air time b4 the drive home. or else he will arch back and scream. he turned 2 by the way. were on an 11month wait list for help at the austin hospital and for an official diagnosis. puclic sucks. so in the mean time we have to try and work things out and help him ourselfs.