could you cope with him being home 2 days? So missing school on Friday as well as Monday? I know its hard, but maybe easier for his brain to handle?
You know Maz, it was like I could say "something is wrong with my daughter" and the doors opened... where if I hadn't said anything, I would have missed it. And the end of the world would have happened. It was hard enough being away overnight.
I could handle him home but we want to try and get him use to full time school cause he'll be in year 1 next year and thats a big goal for us. I just hate upsetting him and him being hurt by the change.
Andyes I agree....drop the - autisum word and people give yo a look of pity and help you. I found it very hard to say in the early years but once I noticed it helped Wilhelm then I dropped it when needed.
eg when I had Vyolett - Wilhelm would come to the hospital to see us and could only stay 1/2 an hour cause I had to share a room. He was a mess for a month afterwards and **** it made things so hard for me at home.
When I had Mateauz I told them that I had a child with autisum and that he didnt handle me sharing and that I couldnt BF my daughter were I wanted to BF Mateauz...bang single..PRIVATE room straight away. In the end...one very happy Wilhelm until we were transferred to Royal Childrens for that 3 weeks.
Went to an awesome seminar run by Sue Larky and it was great. Got heaps of books and fidgets for Xander and my kids at school including a CD with symbols to use on our timetable. Can't wait to play and Xanders school are interested in buying some stuff too like a learn to play CD where you print out pictures to teach them how to play step by step. All very exciting.
Christy hope everything was OK with your flight. I too started dropping the autism word as DS was being diagnoised. As he was dx PDD at first I would say he had a form of autism particularly when I was getting dirty looks from old ladies at the supermarket while i was holding DS down while he screamed and punched me :-) It does help and in stressful situations I wish DS had a shirt which say "I have autism"
we are off to his speech pathology assessment tomorrow although his speech has improved out of sight since last year when we made the appointment I figured it was still worth going just to add to the profile. he is a bit anxious about it as we have an excusion in the morning as well but the figets are coming in handy tonight. He is sitting on his vibrating cushion with a squishy ball at the moment :-)
Maz - hope your week settles down, what about some social stories for the next couple of days to help him adjust??? Hey did I miss an announcement? Are you pg???
No not pg....i just have a little something in the making thats all and I class it as one of my babies
Wilhelm has an excursion down to the river today to the schools memorial gardern...he is not going to like going....we kept getting told its boring.
Social stories have never worked on Wilhelm little bugger is to smart but I just keep telling him its cool and that he might see a crocodile or dinosaur and he warms to the idea.
I get jealous that pic's and symbols have worked for others. We tried it with Wilhelm and it just doesnt work with him. I do do a little bit of sign language and thats about it.
Its funny..i remember when Nikolaus was in prep and we were having parent/teacher interviews...Wilhelm was 4 and on the wall it had written community something and infront of the teachers he read it out and said the meaning (I have never taught Wilhelm to read) they both sat their gob smacked. times like that Im glad that he has this 'super power'. His techer this year has given up giving him a home reader cause he just doesnt find reading challenging adn drawing...****. I'll have to find one later and put it up in the gallery for you to all look at.
Now on their 'special' things....I just want to let you all know that I try and make everything a positive...eg Wilhelms reading is a 'super power' and he loves it when I say that to him. when he's in one of his moods I try and make it positive and makes jokes (he's quiet the commedian). I cant be negetive...depression is hard enough without having the added bonus of a SN kid on top. Ive gotta look at the happy things in life..at least I have him...he makes life alot more interesting...its like having 3 adults in the house rather then just Jed and I.
Maz - bummer on the social stories and images not working :-( Hope the excursion went OK. I can't believe how many excusions Xander goes on???? He has been on at least 3-4 this year and now they are going to gymnastics every Wednesday just to throw our routine out even more.
Speech path went well. She is going to give us some resources to work on social speech and he'll do two appointments with her to work on this. Something I hadn't noticed is how much better his speech is at the moment the stutter/repeating sentences thing has really eased off, not sure if it's the diet, OT or just ???
Loz - great seeing you today. Your son is just beautiful!!! That laugh is gorgeous. he and Xander had heaps of fun playing together. I hope you got some answers from gillian.
Excursion went well..thank god! I think cause there was al ot of reading involved and Wilhelm loves reading. He told me the books that were read and then proceeded to 'read' them to me.
Sarah - I find that WIlhelm goes through stages in everything. HIs speech was one thing that went in leaps and stages. I notice that when he's really inadequate that he repeats movie scenes. We have slowly gotten the block down that he has about movies since I ask him everyday what he did at school. Its only taken almost a year lol.
Id love to know how you guys do it with diet's? I have so much trouble getting Wilhelm to eat anything healthy. I often give him Incremin which is a Iron based suppliment for kids that dont eat. I find I usually give it to him when he's having areally bad stage and it helps to calm him down.
hmmm I posted something earlier... must have been eaten by the gremlins.
Diets: Our results with the diet thing, at 2.5 yrs old Matilda's speech stopped developing. 4 weeks after stopping milk (8 weeks after going chemical free) it started developing again. She still hasn't caught up, but she is getting better! I can totally say it was dairy related. Scary.... but so true.
Maz, Matilda eats at the best of times, when the wind is blowing the right direction and with just the right amount of chocolate is involved . Seriously, its pulling teeth most of the time. I bought these jelly bear things that are concentrated veges that I give her periodically as well. We are 50% gluten free now... cutting down on it, but thats hard too!!
Matilda loves pasta and noodles, so I use rice pasta and noodles. She hasn't noticed the difference, but we do!! Blerk! She loves sausages... so we have heaps of sausages and mashed potatoes... done with rice milk. She likes bolognaise so the rice pasta goes to work. I also make a soup, for the bad days. She has issues sometimes with textured food so I make a pureed ham, potato and leek soup (which I throw cauliflower and broccoli in to hide!) and always have some of that in the freezer for the days she hasn't eaten anything. At Montessori, she has to have the same lunch EVERY time. That is why we aren't gluten free.... or totally chemical free anymore. The lunch is rice snacks, fruit strap (one of those ultra healthy ones with 100% fruit), and a vegemite sandwich, cut in 2 squares and 3 triangles if its not cut right, she won't eat it. Morning tea is fruit, and apparently Matilda will only eat apple or watermelon... *groan*
At home, its heaps worse.... breakfast is only maybe a slice of toast with honey, if I'm luck 1/4 cup of plain rice bubbles... and anything sugary she could get her hands on, or thats it. Dinner is my best bet for getting food into her if I hit the right time and its not too late. But she did go 2 months without eating dinner as well.
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could you cope with him being home 2 days? So missing school on Friday as well as Monday? I know its hard, but maybe easier for his brain to handle?
hope everything was OK with your flight. I too started dropping the autism word as DS was being diagnoised. As he was dx PDD at first I would say he had a form of autism particularly when I was getting dirty looks from old ladies at the supermarket while i was holding DS down while he screamed and punched me :-) It does help and in stressful situations I wish DS had a shirt which say "I have autism"
. Seriously, its pulling teeth most of the time. I bought these jelly bear things that are concentrated veges that I give her periodically as well. We are 50% gluten free now... cutting down on it, but thats hard too!!
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