Christy hun, I have been following your posts but really have not had any words to express how I feel. I still don't. I am so sorry that you are going through this, and that you are not getting more help. The OT sounds really good, but you need so much more support than that. I can't even imagine how you are coping at all. I really hope something can be done to get things somewhat on track for you soon. In the meantime, I admire how strong and patient you are. I can tell you now, you are doing a bucket load better than I would be.
Maz, Saram and everyone else - I wish you all the best with the school holidays and hope that the New Year brings you good things.
I finally rang the Mater to bring DS's assessment forward, but I really feel like a fraud, as I don't deal with anything like what you guys do. He certainly has issues, but they are different, and far easier to cope with on a daily basis. It has also occurred to me that DS2 seems to be showing some warning signs too - he tanties all the time, seems to have sensory issues with clothing, and is pretty hit and miss as to whether he will tolerate being touched. But I guess one step at a time. DS1 for now.
Christy - I wish there was more we could do to help! We have one of those camps up here too but I was under the understanding it was going to be fairly cheap but we had to arange our own accomm. good on you for not smacking that physio in the face! OMG!
One day we need to organise a mummy's weekend away so we can all catch up in real life and spend our days having massages and enjoying the silence :-)
Maz - I am racking my brain but I can't think of anywhere we have stayed in brissie that I could recommend :-) Unless you want to stay with my MIL :-) Whenever we travel we stay in those caravan park cabins and they are quite good if you can get one with inside toilet and kitchen fac. We are looking at hiring a campervan for our next trip so that we are always in the same space and we don't have to eat out.
Mantaray - Don't feel like a fraud. When we first started getting DS assessed I felt the same way. We had issues but maybe I was making too much of them etc. The earlier you can get help in understanding where your DS is at the more help you can give him. The most important thing we learnt was not to make little of your worries at your appointment.
Just popping in to introduce myself to this thread.
Aidyn has Autism. He was diagnosed in early Sept this year (aged 4). He is classed as High Functioning. Funnily a multidisciplinary assessment 6 weeks prior to the paed assessment, said he displayed no signs of ASD. *sigh*
But anyway, I do agree with the diagnosis. Aidyn's rigidity and anxiety can be fairly pronounced...
Since getting the diagnosis we have made heaps and heaps of progress.
He has been attending a Early Childhood Development Unit 2 days a week, which he will continue next year as a split placement with prep. They are fantastic there, with a ratio of 7 student to 2 teachers! They teach the kids basic socialising skills, and structure their days so well that the kids just thrive. Aidyn particularly has done SO well attending this program, whereas at his community kindy he was just getting lost, as it was so unstructured.
Um, I have recently set up a visual aid system for home, which is really really helping too. So we have gone from having a tantrum or meltdown about any minor thing (such as breakfast or getting dressed) to only a couple (or NO) tantrums per day.
It has been a hard 6 months for him, as me and XP seperated in May this year, and we have moved house a few times, and he has been staying back and forth between us, and also had a few months period without seeing his dad at all. So I am very proud of him for coping with all of these upheavals.
Anyway, I need to read through this thread properly, then come back to add more replies later!
Christy - I mentioned in another thread (not sure if you saw) if you need any visual aid pictures, feel free to ask, cause I have a whole CD worth, and more....
Hang in there hon...
oh Ambah! I'm so happy to hear how well Aidyn is going with it all. I think I would love to have the visual aides. I've been trying to get mine together & its pretty sucky.
Its hard to set up isn't Christy, cause its such a huge thing... I have a set for home, and am also setting up some to take out with us when we go out (using an A5 folder, with velcro), and am also setting up a shopping list set, so he can help me with the groceries and find things on his own list.
Can you let me know if there are any images you need, and I will email them? Or do you just want me to email everything I have (which is hundreds if I pull everything off the CD).
I even have bought a cheap laminator to laminate my own, however I don't have a printer, so can't print them out for you to do that way, sorry
I have been following your posts but really have not had any words to express how I feel. I still don't. I am so sorry that you are going through this, and that you are not getting more help. The OT sounds really good, but you need so much more support than that. I can't even imagine how you are coping at all. I really hope something can be done to get things somewhat on track for you soon. In the meantime, I admire how strong and patient you are. I can tell you now, you are doing a bucket load better than I would be.
good on you for not smacking that physio in the face! OMG! 
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